Kota went to see Cardiologist today.

[LittlebitsMommy]

I knew I couldnt get this right,(posted in th eparents with IBD) but I dont want to give up on trying to get it right. Just please bear with me I am not sure if I am posting in the right spot now or not. I have only posted one other thread and it got moved lol

We went to see cardio today because Ko usually has low heart rate but the last few weeks (since starting on meds for Chrons) his heart rate has been really high. It will go to 160 just him walking to the bathroom.

He had a Echocardiagram done. We found out he has Patent Foramen Ovale/ Small Atrial Septal Defect. We were told it really wasnt anything to worry about. And that it didnt need to be checked again for 3 to 4 years. They put him on a 24 hour holter monitor to watch him. Not sure whats really causing th ehigh heart rate other than maybe the meds.

The doctor today did say he could take his headache medicine that the meds were not causing the heart rate to go up. To also start his inhalers back. GI doctor stopped all his medicine a couple of weeks ago or all that he didnt put him on. Blamed all the other medicine for the high heart rate nothing that he may have put him on would have caused it. Uh yes it can. So I am glad to start those back. But we are still not sure why the high heart rate.

After we got home Cardio called me and said they were going to order lab work and we could just have it done all at the same time Monday when he has weekly labs done. They are checking his thyroid. Said this could cause high heart rate.

I have been researching a few new GI and also looking at other childrens hospitals because I am just not happy with his GI.

Kota is such a blessing and the things he says always puts smiles on my face. Today while we were at doctor. The doctor says Ko will not have to have the defect checked for 3 -4 years. So when the doctor leaves the room. Ko says mom if we move before 3-4 years (because we have been wanting to move to another state) will we fly back here to see the doctor? I said no son we will have a doctor where we move to. I then said or by then you will be driving and you can drive yourself to the doctor (I was playing). Kota looked at me real weird and said well even if I am driving and grown I still want my Momma to go to the doctor with me God I love this kids..

Hope everyone is having a great day.

Thanks for listening to my update on Kota and bit of a rant

 

[kimmidwife]

Hi Kotas Mom,
How old is kota? My youngest daughter had an atrial septal defect and they told us if it did not close by itself by age 3 she would have to have surgery. I am wondering why your doctor said differently? We got lucky and it closed on its own but she was checked first every 6months and then yearly.

 

[LittlebitsMommy]

kimmidwife now you have me worrying or wondering also.. Kota just turned 12 on the 6th of March. This is the first we have heard of him having it. But he had never had a echo until yesterday.

 

[DustyKat]

Thanks for the update Mom. :hug:

I'm so glad the visit with the cardiologist went well and that Kota liked him, it makes the world of difference.

I'm also happy to hear you are searching for a new GI. Good luck and I hope you find a fab one very soon!

Dusty. xxx

 

[imaboveitall]

Hey there, littlebmom,
V has autonomic dysfunction, a form called "postural orthostatic tachycardia syndrome" and her HR goes wild with very little change of position or movement. Check into that, hers has been around for ages, long before her Crohn's dx, but got a lot worse after she developed Crohn's. They are telling me they are two separate entities, unconnected per se but that the chronic inflammation taxes her body and makes the other condition worse.
A way to assess for this is to take his pulse sitting, then have him stand up quickly and see if it jumps way up. V's goes from say, 84 to 130 from just that position change.