Hi Lorraine, I was diagnosed with Collagenous Colitis then put on Prednisone 40mg,.. 4 days after the colonoscopy. I think one of the hardest situations is having a million question about MC and not getting answers because we have to wait so long to see the GI doctor, very frustrating. I am so grateful finding this forum. Sorry your going through all this sending good thoughts your way.Rollingrfarm...sorry, have no clue about these tests, but will try and find out. Thought I had a simple tummy bug, and have catapulted into unknown and scary territory here!!
Hi Lorna, welcome to the forum! Wishing you luck with your appointment with the specialist. I hope you get put on the right treatment, so you can start feeling better.I've been reading all the posts this last weekend letting them sift through my knowledge and feelings. Diagnosed on the 26th of September of this year thus trying to get a handle on it -- what is this disease. Thank you, every one for sharing. It was good that I found out I am not the only one who couldn't bend down with out consequence, . The shakes at night that are not visible. I think those must be from a build up of toxins/low vitamin/mineral levels from the diarrhea. Ummm. The pain, the sweats, the fear of food -- which is odd for a foodie! The fear -- what life is going to look like in the future and how was I going to tame this disease process. I have a special needs child -- I can't do sick. You have given me hope and lots to think about. Thank you. I go to the specialist at Johns Hopkins for this on Oct 24 because my Dr. here doesn't know anything about it.
Both eyes, but right eye the worst. Severe eye pain. In the eyeballs. I have an appointment tomorrow with an Opthamologist, but I had read somewhere thatI'm not sure what it is about MC and eye inflammation. Until you came along I wasn't even sure if my microscopic colitis was causing my eye inflammation as nobody else said they had it. Do you have it in one or both eyes? Is it your eyeball or eyelid? Do you have reddening?
I've used the steroid eye drops in the past, just long enough to get the severeIndeed. The two I've been to didn't have any suggestions other than to take some powerful steroid eye drops which I don't want to do.
Strangely, utilizing a neti pot seems to be making a difference for me.
Just my right eye is bad.
Please let me know what the opthamologist suggests.
Lorraine, I feel your pain and frustration.Hi David,
Re: post 206
My Vit B12 level was 632,1. Specialist confirmed it is Microscopic
Colitis, "non-specific" as it doesn't fit either of the two main sub-
groups, viz. CC or LC. Went back to GP, who put me on Pro B5
twice daily & Imodium. lf no improvement, she'll discuss Pentasa
dosage with specialist, or send me for second opinion.
This condition is soul destroying but the comments and feedback
on this site are helpful...so thank you all!
Hi Lieisa and welcome to the community. It sounds like you're having a tough time, I'm so sorryHello, I am a 42 year old female who was diagnosed with lymphocytic colitis in July 2012, I was dx with lymphocytic colitis after being very sick for about 6 months and very persistent with my doctor. Three weeks after that ended up with c difficile. Was treated for the cdiff and now am on Asacol and entocort. My GI has instructed me to decrease my dose of entocort starting tomorrow. I am so scared cuz I am currently haveing D and afraid that it will get worse. It kind of comes and goes and I am trying to figure out what foods are triggers for me. Unfortunately I think steak is a trigger which I love. The funny thing is I had gastroparesis for years with bouts of epigastric pain, now I have D. I am wondering about the pain/ cramping. What is everybody doing for the cramping pain. for the last week or so I have had cramping daily, and it is waking me up at night. I have used hycosimine that does not help me. I was started on antidepressant because I had read that it can help with the abdominal pain. It has not helped with the pain but I guess it has helped with my anxiety. Please let me know how you are treating the pain because I dont know if I can keep doing this. Also, how do you react to alcohol. I have not drank any alcohol since I was dx and next week I go to Las Vegas for my brothers wedding so would like to relax and have some fun.
Ehhhh.... my PCP isn't well versed in these things. I see the PA in the practice, which is normally fine, but she had to look up the dosing for Zoloft when I first started it :sign0085: Which I could have told her, but whatever. It was just kind of annoying because I felt a little brushed off, like she wasn't interested in what I have. She did tell me to just eat whatever, and nothing I do will make it worse, but the meds will manage the symptoms. Hello, I have bile issues, That alone can really irritate the gut. I was just diagnosed two months ago. It's not like my symptoms have been stable for a year or anything.Hey Jaclyn, I am kind of surprised she does not need to see you back EVER. Do you have a good primary care doctor? I was thinking you are fairly newly diagnosed. I have not seen my GI but I have had to see my primary several times. I am very glad to hear you are doing so well. Good luck.