- Joined
- Sep 23, 2012
- Messages
- 12
Hello everyone. My name is Amber and I am from Florida. I am now 26 years old, have been dealing with ME for 3 years now, was the first in my area and as of now I still believe that I am the only one. I am so excited to have FINALLY found a group here that has at least heard of my disease and some with experiences.
Crohn's disease runs in my family and I have always been a sickly child lol. Always stressed about everything (for the fear of getting sick). I always had mild stomach problems as a child, contributing it to just the stress.
When I hit about 22 years old, I started to experience EXTREME stomach pain every time I ate something, I would be in the bathroom for up to 45 minutes. My first 'attack' as I refer to it, was at a local Walmart, in which I vomited, had severe D, and passed in and out from the pain. After it passed I was fine. Just really tired from the experience. Months passed and I started to experience this same onset every once in a while.
Then, it hit me. Seemed like everytime I ate something, especially greasy, fried, fatty, or acidic, I would get sick. I lost 30 pounds in nearly 2 months. I started not leaving my house in fear I would have an attack in public. I finally got insurance and went to see a local GI doctor. After one visit, he wanted to do a colonoscopy. He suspected IBS, but the extreme weight loss and exacerbated pain made a red light pop up that something wasn't normal.
I was very sick. I cannot stress this enough, I seriously thought I was going to die. I had my colonoscopy and 24 hours later, I could not eat ANYTHING. I had to have my doctor paged bec to me this had turned into an emergency. He told me over the phone he couldn't discuss over the phone with me, but what I had was very rare and he had never diagnosed it before. He told me to only eat bland foods and go to store to pick up Zantac 150mg and Allegra. 2 Times a day. I finally saw him days later, in which he had time to research the disease and educate me on it. Not that he could really tell me much more then I could have found on the internet.
The medications seem to help somewhat, but I still do seem to have bouts. Stress is a big trigger, but the doctors said I developed general anxiety disorder due to the constant fear of having an attack. I still deal with that. I have not found a great diet as of yet, and unfort. back injuries from a car accident dont allow me to exercise like I would like. Sorry this is so LONG! I just wanted to tell my story and share and hopefully someone can help me deal with this. Tricks, hints, ideas, suggestions, lol would all be great. Thanks!
Crohn's disease runs in my family and I have always been a sickly child lol. Always stressed about everything (for the fear of getting sick). I always had mild stomach problems as a child, contributing it to just the stress.
When I hit about 22 years old, I started to experience EXTREME stomach pain every time I ate something, I would be in the bathroom for up to 45 minutes. My first 'attack' as I refer to it, was at a local Walmart, in which I vomited, had severe D, and passed in and out from the pain. After it passed I was fine. Just really tired from the experience. Months passed and I started to experience this same onset every once in a while.
Then, it hit me. Seemed like everytime I ate something, especially greasy, fried, fatty, or acidic, I would get sick. I lost 30 pounds in nearly 2 months. I started not leaving my house in fear I would have an attack in public. I finally got insurance and went to see a local GI doctor. After one visit, he wanted to do a colonoscopy. He suspected IBS, but the extreme weight loss and exacerbated pain made a red light pop up that something wasn't normal.
I was very sick. I cannot stress this enough, I seriously thought I was going to die. I had my colonoscopy and 24 hours later, I could not eat ANYTHING. I had to have my doctor paged bec to me this had turned into an emergency. He told me over the phone he couldn't discuss over the phone with me, but what I had was very rare and he had never diagnosed it before. He told me to only eat bland foods and go to store to pick up Zantac 150mg and Allegra. 2 Times a day. I finally saw him days later, in which he had time to research the disease and educate me on it. Not that he could really tell me much more then I could have found on the internet.
The medications seem to help somewhat, but I still do seem to have bouts. Stress is a big trigger, but the doctors said I developed general anxiety disorder due to the constant fear of having an attack. I still deal with that. I have not found a great diet as of yet, and unfort. back injuries from a car accident dont allow me to exercise like I would like. Sorry this is so LONG! I just wanted to tell my story and share and hopefully someone can help me deal with this. Tricks, hints, ideas, suggestions, lol would all be great. Thanks!
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