May I get your advice on a personal matter

Crohn's Disease Forum

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May 7, 2013
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:confused2: This may b a little bit embarrassing but I need to find out if anyone feels the same as I do. Me and my partner have always had a amazing sex life, but I've noticed since being diagnosed with IBD my sex drive is very low. I feel like I'm pushing my partner away. I love him more than ever but my intetest in sex doesn't seem to b there anymore. Has anyone else noticed a change in sex drive after being diagnosed??
 
It's normal to feel icky and not sexy or in the mood with a bowel disease. Lets face it there is nothing sexy about diarrhea, blood, gas and cramps. Furthermore in addition to being in pain you can be malnourished and fatigued. Just because you are like this now doesn't mean it will stay this way.

Can you focus on less strenuous activities like cuddling, making out so the affection is there without physically doing it?
 
I defo don't feel sexy knowing I have IBD. Just wish sometimes my partner would understand that. Don't get me wrong he is supportive and is always complimenting me all the time but that don't change how I feel. My mate at work has IBD and I make her right when she says that we may look ok on the outside but inside we are a mess.
 
It's true nobody knows what's going on by looking at us. Some of us even look healthy sometimes but it's the furthest thing from reality and we feel awful. Just be sure to communicate with your partner so he feels cared for and not that you are pushing him away.
 
Stacey1982 hiya i know what you mean sometimes just don't feel up to it but as you start to feel better im sure itll go back to normal. just don't push yourself too far otherwise youll end up feeling worse. btw i see your from dagenham.. im just the other side of the water to you :)
 
Hiya babe. Thanks for the advice. My man is such a great support for me. He does understand but I have days where I feel bad. I'm so glad to b able to talk to people who understand where I'm coming from. I appreciate any feedback. Yea good old miserable dagenham lol. Where has the sun gone? How are u? Xx
 
The sun has well and truly gone! i was freezing today lol. yeh i understand my partner very supportive too but you feel bad / guilty if that makes sense. Im okay thanks in general but crohns as always dragging me down feel like an old woman lol. How are you x
 
Heyya babe. Yea I know that feeling. I get so tired and somedays I need an afternoon nap lol I've had a bad time over the weekend with my tummy. I'm trying to ignore it and hoping it will go away lol. Xxx
 
Yea pretty much. How long have u been diagnosed? I was diagnosed 2011 when my son was 9 and my daughter was 4 months old. Its only taken till recently to come to terms with it. Xx
 
Oooh must have been really hard especially with your little girl being so young. I was diagnosed a year ago and am having real trouble getting it under control everything they give me just either doesn't work or had some sort of reaction to. im on infliximab now but no change so they did a pill cam and think theyve found a strictures in top part of small intestine.. when i got diagnosed was all inflammation of ileum which is gone but now theyve thrown something new at me grrr. what meds are you on and are you in remission? xx
 
I'm waiting for results of an MRI scan I had recentlythey think the crohns has spread to my small intestine. Crohns has got me the most in my large intestine, I can't absorb any iron so I'm constantly tired and dizzy.I also have colitios in my rectum I can't take iron tabs or liquid iron cos it constipates me so am also wqaiting for an answer on me having the iron injection. I'm on Asacol, asathriprine, 2 different antasids for my hernia and folic acid. I rattle lol. I was on prenialone but it made me a horrible person, and I puffed out around my face. I see my specialist in August to see what's nxt. Nope no remission yet, I can't wait to hear that word lol what's nxt for u?
 
Yeh prednisolone i was literally unrecognisable i put on 3 and a half stone was horrendous now covered in stretch marks was constantly ill AWFUL drug they wont even mention it round me now haha. well i have a appt on Thursday and i think i wanna go surgery route now. only other drug to try would be humira and after ive taken EVERYTHING else i dont think its going to make much difference. woww you have had alot of problems! have you considered infliximab or humira? xx
 
Heya babe. My medication seems to manage my crohn quite well. I'm still finding out what foods I can and can't eat at the moment. My son had a stomach bug last week and I caught it which caused me to flare up this week. I was at the height of it yesterday, I had the pain, the headaches,the bleeding and the touchyness with my partner lol. He still don't get it that the pain is unbareable. But I'm not feeling too bad this morning. My insides feel battered but I think its nearly over.
 
staying connected with your partner can be tough. The last six months I have been in pretty rough shape with some really bad times followed be a couple of weeks of relief as the remicade has started to fail. it has been giving me only a couple of decent weeks then i spiral out of control again. the pain/ fevers/ abscess(fistula) has made it extremely hard to have any drive at all. my fiancee(our wedding is june 9th, just wanted to get though feeling halfway decent) has been very understanding and if i can in any way, at anytime i make sure that we make a point to stay close and what not....i make sure i tell her how much i love her, when i am have a bad day, how beautiful and desirable she is, and how thankful i am that she understands that its not her but the pain and me feeling horrible. i think its important to make sure they understand why your drive is down, that it's due to pain, that you don't feel well or "sexy" which i'm certain is something that is more needed for a women to feel up to bedroom adventures. they need to know that mentally you find them desirable so they don't become down about it. i try my hardest to recognize how much stress and strain it puts on her. that she has people she can vent to. its important that our main supporters stay mentally healthy so they can be strong for us.
 
Thank u so much for your advice. I really appreciate that. I do speak to him about it and he does understand, I do feel bad some days but he reasures me all the time that he loves me and that he is not going anywhere. I don't know what I'd do without him sometimes. Congrats on your wedding. Your fiancee sounds amazing. We r both lucky to have supportive partners aint we?
 
Stacey, my husband is the same way yours is - no pressures, full support, constant love. It does help a lot when we are going through all of this! Although I feel bad about not being as interested in sex as I used to be, he understands that it's not easy to feel sexual when there is constant pain. We've found some good ways to work around it and maintain that intimacy that is so important in a relationship.
 
Thank u babe. Its nice to know that I'm not the only one who feels like this about my sex drive. I had a flare up this week and I was very snappy with him so he treated me by getting my nails done and my hair cut. I'm not 100% over the flare up but iover the worst of it xxx
 
It sounds like you have a great guy there. What a nice treat he gave you when you weren't feeling good! I'm glad to hear you are feeling a bit better too. I told my hubs today that I plan on giving him a nice back rub tonight. He's been very supportive and helpful with all I've been going through.
 
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