Sticky Medical Marijuana for Crohn's Disease and Ulcerative Colitis

Well two weeks of vaping mmj and still bleeding throughout each day. Mt last hope is I realized I switched to generic Cymbalta in January - could this be the inspiration behind this miserable flare? I am going back to brand name Cymbalta on Monday night. if that doesn't work - what's next?
 
I tried looking it up, and there's a few forums where people actually report back saying that when they switched to off-brand Cymbalta they definitely got some unpleasant side effects. So I hope for your sake that's the cause and that it can be fixed by going back to the brand. :(
 
Just an update.... Coltyn has been on MMJ for one month now. and he gained 3.2lbs!!!!! His crohns pains have nearly disappeared! It has been the best thing that has happened to him and our family! Thank you all that have helped us figure all this out especially Mr Holistic Joe!! Love you, Joe! THANK YOU!!!! ps... facebook has a page called marijuana/cannabis awareness for crohns and colitis... check them out. They have a ton of good info on it!! One love!
 
So DABS are a vaporizer method? My son has talked about that, but is it the same? And it's one or two puffs? Sorry for my ignorance. I could probably look it up!! I went off my 6MP, because my GI doubled it, and I have been so sick, so nauseous, since starting all that crap, and I just quit it all. Doubling it made me realize I felt worse ON IT, then I did BEFORE IT! I'm down to 6 pain pills. It's gonna be rough, I know. BUT if I puff a little good stuff my son got me, only that, no prednisone, 6MP, sulfasalazine, I can eat. I am working on sleeping. I'm 57. I'd like to WANT to live!
 
Oh and I forgot, I got an appointment with a rheumatologist on May 6. I'm gonna try the biologics. But I HATE that other stuff! I just thought..."what is it worth?"
 
No sleep, no recovery. Do whatever it takes to restore proper sleep. Dabs are a form of vaporization. It's more a technique than type of cannabis. You can also use concentrates in a micro gpen type vaporizer. I prefer this to smoking raw herbs as you need to intake much less smoke and there is far less incriminating odor
 
Hi All!

After failing on all the Crohn's drugs, I've come to the end of my pharmaceutical options. (Except for Tysabri and I don't want a devastating brain disease thank you very much.)

I'm going to make a small batch of RSO this weekend and I was wondering what your personal experiences with dosing have been. The dosing info I've found has been for cancer patients and I'm wondering if Crohn's sufferers need the same amount, less, more? I smoke recreationally and I'm pretty sensitive to THC but I don't want to feel high all the time. Planning on starting with two doses a day the size of a grain of rice, as suggested.

Many thanks to everyone on this forum. I've read many of the posts from the last few months and have found more hope and positivity here than anywhere else.

Isabelle
35 yo, Crohn's since 15 yo
 
isabelle said:
Hi All!

After failing on all the Crohn's drugs, I've come to the end of my pharmaceutical options. (Except for Tysabri and I don't want a devastating brain disease thank you very much.)

I'm going to make a small batch of RSO this weekend and I was wondering what your personal experiences with dosing have been. The dosing info I've found has been for cancer patients and I'm wondering if Crohn's sufferers need the same amount, less, more? I smoke recreationally and I'm pretty sensitive to THC but I don't want to feel high all the time. Planning on starting with two doses a day the size of a grain of rice, as suggested.

Many thanks to everyone on this forum. I've read many of the posts from the last few months and have found more hope and positivity here than anywhere else.

Isabelle
35 yo, Crohn's since 15 yo
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Grain of rice if eating, 1/4 of a tic tac size (or less) for dabbing.

Also be super carefull and make it outdoors depending on method.
 
Thanks JohnnyO...have you ever increased beyond the grain of rice dose or do you stick with that?

I will be careful...thank you for the warning.

isabelle
 
Like all medication with side effects, after a few times you get used to the effects. Forbes just ran an article that it's easier to die from drinking too much water than smoking too much cannabis, so don't be afraid. Just don't do too much. A little will take away pain nausea anxiety insomnia, and too much can cause anxiety. Each individual has to dial in their own dose.
 
isabelle said:
Thanks JohnnyO...have you ever increased beyond the grain of rice dose or do you stick with that?

I will be careful...thank you for the warning.

isabelle
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I have taken more than a grain of rice. I can't really answer your question as it depends on the strain of
Cannabis, the final preparation and potency, and individual weight and tolerance.
I have been doing dabs at home and vape pen when unable to dab. My lungs are
Much happier now. I enjoy edibles too and edibles deliver cannabinoids directly to your gut. Edibles are harder to dial in and last longer. Vaping is more
Precise. If you don't have to leave the house take as much as you can tolerate. Like I said each individual has to dial it in for themselves until
There is federal regulation and stamdards and testing in place. It's still the wild Wild West. Good luck.
 
barelyalive said:
Well two weeks of vaping mmj and still bleeding throughout each day. Mt last hope is I realized I switched to generic Cymbalta in January - could this be the inspiration behind this miserable flare? I am going back to brand name Cymbalta on Monday night. if that doesn't work - what's next?
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hey I'd never suggest someone stop taking anything without consulting their doc, but maybe the cymbalta(generic or not) in combo with all the other pharma are actually causing you're bleeding more so than the disease itself...when I got diagnosed they prescribed me asacol HD, entocort, percocets, promethizine, and told me to take tylenol if I was still in pain. I got soooo much worse taking all that stuff. It was causing me to be constipated and when I was going there was always blood. Then my doc stopped the asacol and tried adding 6-mp. thats when I said no more and went to LDN and hash oil...I had a lot of pain, bleeding, and no sleep for like a week, but once my tolerance got up enough I think I was finally able to get enough medicine in me at once without passing out.
 
JohnnyO said:
Like all medication with side effects, after a few times you get used to the effects. Forbes just ran an article that it's easier to die from drinking too much water than smoking too much cannabis, so don't be afraid. Just don't do too much. A little will take away pain nausea anxiety insomnia, and too much can cause anxiety. Each individual has to dial in their own dose.
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yea youre def not gonna OD or anything, but if you over do it you're probably really gonna make yourself scared to continue to use it which will then only make it that much more likely that you could have the negative "paranoia" that sometimes comes with the ganja....I take like 3-5 rice size dabs 3-5 times a day (id say 15-25 a day) and I feel hands down the best since I started having real discernible crohn's pain. And since going away from smoking flowers completely has helped my breathing tremendously also...
 
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isabelle said:
Thanks JohnnyO...have you ever increased beyond the grain of rice dose or do you stick with that?

I will be careful...thank you for the warning.

isabelle
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I just took a dab ab the size of a nickel and not only am I still standing, but I now have an appetite for the 1st time since the last time i took one 8 hours ago lol
 
ce1210 said:
hey I'd never suggest someone stop taking anything without consulting their doc, but maybe the cymbalta(generic or not) in combo with all the other pharma are actually causing you're bleeding more so than the disease itself...when I got diagnosed they prescribed me asacol HD, entocort, percocets, promethizine, and told me to take tylenol if I was still in pain. I got soooo much worse taking all that stuff. It was causing me to be constipated and when I was going there was always blood. Then my doc stopped the asacol and tried adding 6-mp. thats when I said no more and went to LDN and hash oil...I had a lot of pain, bleeding, and no sleep for like a week, but once my tolerance got up enough I think I was finally able to get enough medicine in me at once without passing out.
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Cymbalta
SIDE EFFECTS: See also Warning section.
Nausea, dry mouth, constipation, loss of appetite, tiredness, drowsiness, or increased sweating may occur. If any of these effects persist or worsen, tell your doctor promptly.

Dizziness or lightheadedness may occur, especially when you first start or increase your dose of this drug. To reduce the risk of dizziness and lightheadedness, get up slowly when rising from a sitting or lying position.

Remember that your doctor has prescribed this medication because he or she has judged that the benefit to you is greater than the risk of side effects. Many people using this medication do not have serious side effects.

Tell your doctor right away if any of these serious side effects occur: easy bruising/bleeding, dark urine, decreased interest in sex, changes in sexual ability, muscle cramps/weakness, shaking (tremor), stomach/abdominal pain, yellowing eyes/skin, difficulty urinating, unusual decrease in the amount of urine.

Get medical help right away if any of these rare but serious side effects occur: black/bloody stools, vomit that looks like coffee grounds, seizure.

This medication may rarely cause a very serious condition called serotonin syndrome. The risk increases when this medication is used with certain other drugs (see Drug Interactions section). Get medical help right away if you develop some of the following symptoms: hallucinations, unusual restlessness, loss of coordination, fast heartbeat, severe dizziness, unexplained fever, severe nausea/vomiting/diarrhea, twitching muscles.

A very serious allergic reaction to this drug is rare. However, get medical help right away if you notice any symptoms of a serious allergic reaction, including: rash, itching/swelling (especially of the face/tongue/throat), severe dizziness, trouble breathing, skin blisters, mouth sores.

This is not a complete list of possible side effects. If you notice other effects not listed above, contact your doctor or pharmacist.

I bolded the side effects that could be particularly troubling for someone with crohn's...actually if you took this stuff and just happened to have the wrong combo of side effects it appears cymbalta could give you "pharma" induced colitis
 
Thanks so much JohnnyO and ce1210 for your help and input. I made RSO this weekend and I've been taking a tiny bit w breakfast, lunch, and dinner. My last dose of Cimzia is set to wear off in the next day or two so it's wait-and-see at this point.

ce1210, are you still on the LDN? I just started that as well. Do you think it's helping you?
 
isabelle- I actually went off of the LDN in December I used it for 6 months and I would say it helped as I weened off entocort but I cannot really say for sure. I would say as long as the cost isn't too high that taking LDN makes sense as there are many out there that have had some degree of success with it. My doc told me he thought it was bogus science when I showed him the studies, but I talked him into prescribing it anyway.

How has the RSO been so far? If you don't mind me asking, how did the extraction process go?
 
that's good to know...i'd love to wean off entocort too but i'm not going to rush it. i'm going to stay on the LDN. if it works it would be cheaper than the RSO in the long run unless i can get into a situation where i can grow my own.

the extraction process went fine, pretty easy. i processed a quarter just to make sure i could do it before doing more. i was only able to use a satvia strain but i have a new source for indica next time. i've been taking a small bit internally 2-3 times per day. haven't felt high at all which is great. i've still got a biologic knocking around in my bloodstream which is simultaneously keeping my inflammation under control and destroying my nervous system. i'll probably get a better sense of the RSO's effects later this week when the cimzia stops working. i'll keep you updated.

how long were you on the RSO before you felt it working for you?
 
Allison M said:
So DABS are a vaporizer method? My son has talked about that, but is it the same? And it's one or two puffs? Sorry for my ignorance. I could probably look it up!! I went off my 6MP, because my GI doubled it, and I have been so sick, so nauseous, since starting all that crap, and I just quit it all. Doubling it made me realize I felt worse ON IT, then I did BEFORE IT! I'm down to 6 pain pills. It's gonna be rough, I know. BUT if I puff a little good stuff my son got me, only that, no prednisone, 6MP, sulfasalazine, I can eat. I am working on sleeping. I'm 57. I'd like to WANT to live!
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If you could procure some hash oil, I firmly believe you could drop the pain pills...I'm not sure what acquiring hash oil in houston would entail since your government still considers you a criminal for medicating, but you could as bf mentioned in this thread, possibly make some. The process can be dangerous and all that, but perhaps your son could help you? Bud helped my symptoms but oil has gotten me to remission...my doc thinks its the ldn and my diet cause I haven't told him ab the oil. Hes baffled, he told me i'd be back in the ER in 3 months or less if I didn't take the 6-mp...
 
isabelle said:
that's good to know...i'd love to wean off entocort too but i'm not going to rush it. i'm going to stay on the LDN. if it works it would be cheaper than the RSO in the long run unless i can get into a situation where i can grow my own.

the extraction process went fine, pretty easy. i processed a quarter just to make sure i could do it before doing more. i was only able to use a satvia strain but i have a new source for indica next time. i've been taking a small bit internally 2-3 times per day. haven't felt high at all which is great. i've still got a biologic knocking around in my bloodstream which is simultaneously keeping my inflammation under control and destroying my nervous system. i'll probably get a better sense of the RSO's effects later this week when the cimzia stops working. i'll keep you updated.

how long were you on the RSO before you felt it working for you?
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I made my own RSO out of 2 ounces of bud and cooked most of it with coconut oil and took orally. It helped pretty much right away, but I was already smoking about 1-2 grams a day before that so I had quite a few cannabinoids floating around in my system already. I really enjoy the psychoactive part :) So cooking with the RSO was fun but wow do you have to be careful cause too much and you might very well wake up the next day still "under the influence". But now I "order" my oil and its actually CO2 extracted or butane extracted (depending on which is available) and I only vaporize now. I too am looking to get into a situation where I can grow my own. The stuff I get is supposedly lab tested clean, and it seems that way based on what I know, but with my sensitive insides I don't cook with anything I don't know the ABSOLUTE source of....want to make some ingestible and would like to be able to juice raw cannabis leaves so badly!

Oh and def always ween off all pharma my doc told me I could cold turkey entocort and I read ppl online saying they had bad experiences so I tapered and I am glad I did. Its hard for your body to get dependent on any chemicals and then have yanked all of a sudden. But Cannabis def helped me get down to minimal pharmaceuticals...
 
Does cooking with the RSO make it stronger? Did you actually put it in your food?

Yeah, I think cooking with only known sources is really smart...
 
If you cannot make RSO oil make cannabutter using a long cook at low temps. Then make brownies. It's old school but works.

The most important thing is using an Indica with high THC and at least some CBD.
 
cooking with the RSO is the way to go for edibles much easier to dose out...you can put 2 rice size dabs in a tablespoon of butter/oil in the oven at 250 for 20-25 minutes. This process is known as decarboxylating and it converts THCA to THC and CBDA to CBD which have different medicinal properties. Its prob decarboxylated somewhat from the extraction process, but prob not enough to get you really high from eatin it unless you ate a lot...
 
I do believe the decarboxylated cannabinoids are far more effective medicinally they do however get you high...
 
to cook with RSO look up no bake reeses bars they are the best cause you can make em where i tiny bite will get you medicated and since you don't have to bake them you dont have to worry about the extra heat vaporizing the THC/CBD that you want to keep in there...
 
thanks ce1210...i'm actually starting to think that my RSO didn't get decarbed. i evaporated the everclear in a pan over a crock pot and never even got the alcohol to its boiling point. i'll decarb it in some oil as you suggest. last night i found this guy on youtube named chef derek butt (i know, i know). he demonstrates how to make all kinds of meds with MMJ. he also decarboxylates his marijuana before processing it and then puts it in the freezer for a while because that releases some other kind of chemical. thanks so much for all your help and input! i'm gonna go decarb some RSO... :)
 
okay...wow...the RSO is SO much more effective now that i've been decarbing it. it makes me a little high, for one thing, which is great as long as i don't overdo it. it's actually relieving the abdominal pain and pressure. when it wears off the pain and pressure starts to come back a little and i take more.

have any of you guys gotten to the point where you're not having ups and downs over the course of the day?

thank you SO MUCH ce1210!!!!!!!
 
I made some paste for a friend last night. Ground the bud up really good and put into coconut oil, in a water bath in my crockpot overnight. Seems super easy, may make some for myself. I have a bunch of kief and may decarb and use that :)
 
isabelle said:
okay...wow...the RSO is SO much more effective now that i've been decarbing it. it makes me a little high, for one thing, which is great as long as i don't overdo it. it's actually relieving the abdominal pain and pressure. when it wears off the pain and pressure starts to come back a little and i take more.

have any of you guys gotten to the point where you're not having ups and downs over the course of the day?

thank you SO MUCH ce1210!!!!!!!
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I know exactly what you mean by ups and downs during the day, at first as I was working my tolerance up I kind of felt like 4-6 hours(kinda like taking tylenol or any other non time release pill) was about the longest I would go bf I needed another dose. Eventually though, once I got to where I was taking much larger doses at once I noticed them lasting longer even as my tolerance increased. So its as though as far as I can tell(disclaimer: I'm not a doc, scientist, college graduate nor do I have any credentials that would warrant you taking my advice) you build up a tolerance to the psychoactive effects while the rest of your body only benefits as you raise the dose. If you can deal with the psychoactive effects at first (and they are quite intense at 1st) the high doses seem to really get the job done. I also feel that you reach a saturation level of THC/ other cannabinoids in the blood stream and once you get there is when you see the steady feeling of remission. I would love to have my blood/THC levels tested, it would be interesting I have a feeling docs would be quite surprised to see the numbers.
 
"chronic users can have mean blood plasma levels of THC-COOH of 45 ng/mL, 12 hours after use..."--haha "chronic" users, I wish they sold a home test that showed levels so I could keep mine as high as possible ALL THE TIME
 
Oh as far as the cooking the buds and then freezing them before making oil or butter, I personally have had better luck making non decarbed oil and then decarbing it afterwards. Its easier to control the temp of a little puddle than a pile of flowers...and the freezing doesn't mess with the chemical structure or anything it just makes the trichromes separate from the plant material more easily. I'd say freezing the bud before doing the extraction is smart, but for me personally I'd rather decarb oil than plant material. Also, if you do freeze some buds handle them carefully afterward, the trichromes literally just fall off.
 
I decarbed my kief, and put it in some coconut oil and cooked it for about 5 hours. I just took a little bit, and woah! Hit me like a truck, but the pain is very low. Will try some in my morning tea, hope it can replace the T4's I have to take in the AM
 
Kero said:
I decarbed my kief, and put it in some coconut oil and cooked it for about 5 hours. I just took a little bit, and woah! Hit me like a truck, but the pain is very low. Will try some in my morning tea, hope it can replace the T4's I have to take in the AM
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hey Kero! yea its a totally different animal once decarbed, but just to let you know 30 minutes at 230-250 deg f will decarb, 5 hours is a long time and after a certain point you go from decarbing the THC to causing it to degrade to CBN which undoubtedly has medicinal properties, but you just may not want to overdo it as it could actually make your edibles less effective. You could do a much lower temp for that long, but from what I've read you don't achieve efficient decarboxylating unless you break 200 deg f....
 
I decarbed in the oven at 220 F for 10 mins. wrapped in a nice little foil package so the fumes didn't escape. I then mixed with the coconut oil and let it simmer for the 5 hours, with shaking it up to mix through the oil every 1.5 hours or so. It was based on a recipe that uses flowers that I found on another forum, someone had asked if kief could be used and someone explained how to decarb the kief :) if this is how I will feel when I use it, then I will take it
 
oh ok I see you actually decarbed for 10 mins at 220 and then finished the decarb process slowly in the coconut oil, I just didn't see your whole process...just for the sake of time tho you could prob get a similar if not stronger effect in far less time. Just sayin lol I do believe I've read the very thread you speak of on this other forum and might well have commented on it:)
 
Woke up this morning, hurting :( Put about 1/4 tsp of my new oil in to my tea, and almost instant relief! Wow!
 
ah, okay...i now know what a trichrome is! thank you. that makes sense about decarbing the oil and not the bud. i assume i can do the same thing with a canna-oil? i'm still in total shock about how much ingesting mmj is helping me. i have _no doubt_ that i'd be on steroids again if it weren't for ingesting the RSO...

ce1210, how long did you wait after starting to ingest marijuana to start tapering off entocort and how did it go?

isabelle
 
I am a huge advocate of using this for crohns. I have dealt with this disease for 13 years and this has been one of the few things that helps me with appetite, pain and sleep management. I don't smoke it constantly, but when I flare up it makes far more tolerable. If only it didn't give me such dry mouth.....:)
 
Soooo I've mentioned it here before, but I get MMJ through my brother while I'm waiting to find a doctor who will actually let me get a prescription/get access to a compassion centre. The problem is: my brother doesn't have a clue about THC/CBD/CBN, and he just admitted the strain he's been getting for me? Is actually just kush-mix/shake. My vape is amazing and I still find it incredibly effective, but it's lame to find out he's just been getting the worst stuff for me all this time.

I'm just using it for my sleep problems currently, but. Bleh. Definitely can't wait to find a doctor who will actually help me get access on my own.
 
I have a catch-22 with this one. In the Spring, primarily, my Episcleritis (inflammation of the eyes) flares up bad. consuming MM only exasperates it. :(
 
I know one builds tolerance over time for getting 'high'; but is this also similar for pain senses? Building tolerance over time for pain releive? Does it happen?
 
Exactly Mish. I choose MJ for my pain because I would prefer to keep my liver for awhile, and the amount of painkillers I need to take to keep the pain at bay would kill it. I also don't smoke to the point where I'm really feeling anything, I just use enough to kill my pain
 
BasedJawline said:
my friends that smoke every day and do limited other drugs have become so fried. so yes i think regular use would lead to memory loss. here in australia we dont have access to medical marijuana though so wouldnt know what a difference in quality can do.
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I smoke so much I should be dead or retarded but sadly neither is the case. Sure cannabis has side effects. The noticeable side effects are maybe half that of alcohol.

Cannabis didn't turn Carl Sagan into a retard either. Or Steve Jobs, or President Obama, or Richard Branson..
 
JohnnyO said:
I smoke so much I should be dead or retarded but sadly neither is the case. Sure cannabis has side effects. The noticeable side effects are maybe half that of alcohol.

Cannabis didn't turn Carl Sagan into a retard either. Or Steve Jobs, or President Obama, or Richard Branson..
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Yea I would say that cannabis effects short term memory while you are actually high, but as to it causing any kind of long-term brain damage or memory issues I'd say that it doesn't...I vaporize .5-2 grams of hash oil a day, which I'm pretty sure would have the average person drooling on themselves, eating and drinking everything in their house and passing out for 12 hours, and I run a business and go to school. I have no problem remembering...and recent studies actually show that cannabinoids have neuroprotective properties that may help prevent/treat alzheimers, parkinsons, etc.
 
isabelle said:
ah, okay...i now know what a trichrome is! thank you. that makes sense about decarbing the oil and not the bud. i assume i can do the same thing with a canna-oil? i'm still in total shock about how much ingesting mmj is helping me. i have _no doubt_ that i'd be on steroids again if it weren't for ingesting the RSO...

ce1210, how long did you wait after starting to ingest marijuana to start tapering off entocort and how did it go?

isabelle
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hey I started tapering off entocort while taking LDN and smoking like 2 grams a day and taking massive amounts of probiotics...I backed down my probiotic dose bc that stuff is so expensive and weened myself off the LDN about 2 weeks after I made my first batch oil, then I found a source 4 medical grade oil and got a titanium nail 2 vape with about the time the homemade oil ran out. But I had been smoking a lot everyday for about 6 months probably before I got off entocort so I was using cannabis heavily for prob 7 months total bf I dropped all my crohn's drugs. And I feel so much better...

and if I make canna oil I just mix hash oil with coconut oil and decarb them together in a glass container at a steady temp in the oven like 225-240 for 20-30 minutes...if I use bud to make canna oil I boil water with the coconut oil, smash up buds and put in and simmer 3-4 hours, strain, put in the fridge so oil separates from water, once the oil is hard it'll come out as one chunk (goes faster if u freeze it lol)
 
mish2575 said:
I imagine it is no different than other pain meds that fuddle your brain. . .
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I'd have to say that this is completely wrong and that this idea that any pharmaceuticals are anywhere near as safe as cannabis is a crazy fiction that has been perpetuated by those in power for coming up on 100 years now. Look up the effects of oxycontin or any other opiate based pain killer on the brain, both short and long term...I don't know if you have ever known any junkies (down and out opiate addicts) but I know for a fact from first hand experience that anything cannabis based is better for you on all fronts than anything opiate based.

Not to say some people don't need opiates or they don't have their place or whatever...
 
Crohn2357 said:
I know one builds tolerance over time for getting 'high'; but is this also similar for pain senses? Building tolerance over time for pain releive? Does it happen?
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yes building a tolerance for the psychoactive effects can in my experience lead to a lessening of the pain relieving effects as well, but I have found that with cannabis concentrates it is always possible to overwhelm tolerance...also I have found that being a daily smoker for years now that if I stop for 24-48 hours every week to 2 weeks it keeps my cannabinoid receptors on their toes lol
 
So true. I was a junkie zombie on oxys. Even a Vicodin nowadays renders me useless and sick for hours. Vicodin whacks my head way more than cannabis. Also, after 20 years of daily use, my mind is sharper than ever!
 
Well I can only speak for myself. Sometimes cannabis makes me completely wrecked. But at least it's fun, & when it wears off I may be a little cranky but I'm not suffering cold chills & temporary psychosis.
 
yea opiates are bad news, the last time I was hospitalized they screwed me up very badly. I was being given IV Dilaudid and Promethazine every 4 hours for 4 days then they released me with 30 10mg percocets...by the time that bottle was gone (ab 2.5 weeks) I was in the worst shape of my life skinniest I have ever been, constipated, no appetite, slept constantly, just generally felt depressed, and felt addicted (it took a month for me to feel normal again mentally)...I want nothing to do with that stuff
 
when I came home from the hospital from my resection I used dilauded at night to sleep.Otherwise I used cannabis during the day and a dilauded only when I needed it.Dilauded really wacked me.
 
yea dilaudid is no joke that stuff had me in a really bad way in a very short time...I was having bad withdrawals after only a 4 days on the stuff and had enough of a tolerance for opiates to be able to take 2 10mg percocets at a time and function normally and bf I was checked in to the hospital 5mg of any kind of opiate prob would have messed me up...
 
ce1210 said:
I'd have to say that this is completely wrong and that this idea that any pharmaceuticals are anywhere near as safe as cannabis is a crazy fiction that has been perpetuated by those in power for coming up on 100 years now. Look up the effects of oxycontin or any other opiate based pain killer on the brain, both short and long term...I don't know if you have ever known any junkies (down and out opiate addicts) but I know for a fact from first hand experience that anything cannabis based is better for you on all fronts than anything opiate based.

Not to say some people don't need opiates or they don't have their place or whatever...
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You misunderstood my post. I was solely talking about memory loss.

I agree with you 100%, I'm a ginormous (my favorite made up word) MM advocate. My father was an alcoholic, I have lots of friends and some family that were/are junkies.

I want to SPIT every time I see an article about how Marijuana is a "gateway drug".
 
Dilaudid is some crazy stuff. it is the only "legal" pain killer that works for me (my body is resistant to Percocet and Vicodan). I took it after my C-section and for my hidradenitis while breastfeeding because all the studies I read about Marijuana and breast milk were not good. apparently the dilaudid does not pass into the breast milk but MM does.

I almost dropped the baby a number of times, I had to always make sure I was not alone while holding the baby. it was horrible.
 
mish2575 said:
You misunderstood my post. I was solely talking about memory loss.

I agree with you 100%, I'm a ginormous (my favorite made up word) MM advocate. My father was an alcoholic, I have lots of friends and some family that were/are junkies.

I want to SPIT every time I see an article about how Marijuana is a "gateway drug".
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I gotcha, I still don't think it effects memory at all in any permanent way, just short term and while you are actually high or coming down...
 
And as far as the marijuana getting in the breast milk I'd say its good for the baby actually, especially the baby of a crohny lol
 
I know my mom was 3 months pregnant bf she realized and smoked weed heavily for those 3 months and periodically the rest of her pregnancy and I'm glad she did and I would encourage my future children's mother to use cannabis for pain and nausea while pregnant...
 
I think I would've had about 8mg or more a day of dilaudid in hospital and was fine, didn't even have any withdrawal symptoms... I eventually got to the point during my stay where it stopped having any effect. I never seem to have problems with "addictive" medication though. Which I guess is a good thing, considering what we sometimes need with IBD.
 
ce1210 said:
And as far as the marijuana getting in the breast milk I'd say its good for the baby actually, especially the baby of a crohny lol
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LOL. I would have thought so too but the few articles I read seem to believe that it is too much, mentally, for them to handle.

The world is sensory overload to an infant, I don't want the poor bugger to have sensory overload on top of sensory overload, if you know what I mean.
 
theOcean said:
I think I would've had about 8mg or more a day of dilaudid in hospital and was fine, didn't even have any withdrawal symptoms... I eventually got to the point during my stay where it stopped having any effect. I never seem to have problems with "addictive" medication though. Which I guess is a good thing, considering what we sometimes need with IBD.
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I was on it for a week, twice. I don't recall withdrawals. Although I believe it. Maybe I was withdrawing but chaulked it up to my physical/post partum issues.
 
I'm flying abroad in a week for 12 days and can't bring my MM with me across international borders :(
I'm bummed because I count on smoking everyday to be able to eat since my appetite is so poor. I'm not even worried about the pain since it's not that bad right now, I just hate the thought of missing out on good food since it's a big part of why I love traveling.

Any suggestions on how to work up an appetite?
(obviously I'm bringing food supplements with me to help out)

Does any one else have issues with not being able to travel with their MM?
 
I don't know, cookies are relatively discreet but I'm paranoid about them being sniffed out at the airport and causing a major international scene...
 
Navsu said:
I'm flying abroad in a week for 12 days and can't bring my MM with me across international borders :(
I'm bummed because I count on smoking everyday to be able to eat since my appetite is so poor. I'm not even worried about the pain since it's not that bad right now, I just hate the thought of missing out on good food since it's a big part of why I love traveling.

Any suggestions on how to work up an appetite?
(obviously I'm bringing food supplements with me to help out)

Does any one else have issues with not being able to travel with their MM?
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One of my friends flew recently with some THC lollipops and was totally fine.
 
hmmmm, I doubt that my dispensary has lollipops, but maybe hash oil? I don't have any experience with that though.... can anybody tell me how hash oil compares to vaporizing? If you use too much oil is that like overdosing on cookies? because that happened to me once and was NOT very fun (made me swear off of pot butter).
 
I'd rather get busted with some cookies or some cannabis treats than hash oil. Some countries might consider that like opium.
 
Yay! I got a bunch of cookies at the dispensary today. I was told they are rather strong and heavy on the THC, can't wait to see what they are like. I'm hoping they give me some crazy munchies without making me too tired. Happy day :):):)
 
Sore throat from cannabis people? From both smoking and eating edibles. Especially, eating cannabis cookies constantly creates very bad dry mouth. Maybe continual dry mouth is the reason for sore throat? Or local immune suppression from cannabis? Or coincindence.
 
I would think the smoking would contribute. I would suggest vaporizing instead if you can, since that won't be as harsh. I haven't had that experience from edibles myself. It may be the recipe?

From what I've read (if I remember right) cannabis should function as an immunomodulator but not to the same point as something like Imuran/6mp/Methotrexate would. I think it's supposed to just modulate to the point where our immune system would act the same as a "normal" person's.
 
Crohn2357 said:
Sore throat from cannabis people? From both smoking and eating edibles. Especially, eating cannabis cookies constantly creates very bad dry mouth. Maybe continual dry mouth is the reason for sore throat? Or local immune suppression from cannabis? Or coincindence.
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Smoking could irritate your throat.I have not experienced any discomfort from edibles,except delayed munchies from time to time.I recently started vaping.It took a little getting use to but I would recommend it.No harsh combustibles.I was pleased to discover how different and tastier strains of cannabis are through vaping versus smoking.I have quite the jar of post-vaping cannabis accumulating for a batch of edibles.
 
Crohn2357 said:
Sore throat from cannabis people? From both smoking and eating edibles. Especially, eating cannabis cookies constantly creates very bad dry mouth. Maybe continual dry mouth is the reason for sore throat? Or local immune suppression from cannabis? Or coincindence.
Click to expand...
One of the best side effects of cannabis is dry mouth! As UC/Crohn's people, we need to drink way more water than others. And cannabis is the first thing to make me drink lots of plain water :)

So drink water constantly with your medicine -- always have bottles of water around -- and see if that takes care of it. If not, getting a sore throat from edibles would be something I've never heard of.
 
i've looked into and tried medicinal marijuana. i've read from various sources that it's encouraged regularly (two joints a day?) as both preventative of flares and as a treatment during a flare for pain relief / sleep inducer. i was week two of relative health when i started smoking, and after day two - no introduction of other food variables - ended the day with severe gut pains. i can't be sure that the smoking was the culprit of this flare (as i know they simply don't have to have a 'cause' and can strike wheneverthefuck they want), but i've stayed away from MJ since. i'm interested to know anyone else's knowledge and experience of its effects: the why's and how's and personal testimony regarding if it could, in fact, induce a flare.
 
antbobsgrashoper said:
i've looked into and tried medicinal marijuana. i've read from various sources that it's encouraged regularly (two joints a day?) as both preventative of flares and as a treatment during a flare for pain relief / sleep inducer. i was week two of relative health when i started smoking, and after day two - no introduction of other food variables - ended the day with severe gut pains. i can't be sure that the smoking was the culprit of this flare (as i know they simply don't have to have a 'cause' and can strike wheneverthefuck they want), but i've stayed away from MJ since. i'm interested to know anyone else's knowledge and experience of its effects: the why's and how's and personal testimony regarding if it could, in fact, induce a flare.
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For me personally it has only ever helped my symptoms. I will say though that if you were smoking joints, perhaps they were rolled with tobacco/rice/other carcinogen that could have messed you up? I really think joints are not ideal for medicating, at least not for crohn's imo. I believe you are in a medical state correct? Perhaps if you were interested you could look into CBD oils, I've never heard of anybody having anything but positive effects from that...I use MMJ all day everyday, I cant tell you that last time I "smoked pot" though and method of ingestion is key I feel like.
 
thanks for the feedback, ce. i know smoking is the least preferable method - carcinogens and burning the thc at too high a temp - but i haven't decided if i want to invest in a vaporizer yet: still looking for enough positive reasoning. i wouldn't do edibles as my first choice, either, due to the unreliability of me being able to eat solid foods - especially during a flare, which is when i would want it most. that being said: has anyone ever tried, or knows the results of, putting MJ in a coffee grinder and adding it to a liquid as a fine grind or powder? kind of like a tea? is there pot tea? is that a thing? if so: does heat affect the drug? what's the difference between adding it to a cold glass of coconut milk and a hot glass of coconut milk?
 
antbobsgrashoper said:
thanks for the feedback, ce. i know smoking is the least preferable method - carcinogens and burning the thc at too high a temp - but i haven't decided if i want to invest in a vaporizer yet: still looking for enough positive reasoning. i wouldn't do edibles as my first choice, either, due to the unreliability of me being able to eat solid foods - especially during a flare, which is when i would want it most. that being said: has anyone ever tried, or knows the results of, putting MJ in a coffee grinder and adding it to a liquid as a fine grind or powder? kind of like a tea? is there pot tea? is that a thing? if so: does heat affect the drug? what's the difference between adding it to a cold glass of coconut milk and a hot glass of coconut milk?
Click to expand...

Oh gosh there is a lot going on here haha...the cannabinoids in marijuana are activated by a certain level of heat. They are also destroyed with too much heat. Ok there are various ways to make tea with marijuana but I haven't found this to be all that easy or worth while. Another thing about making cannabis tea is that the taste is quite abhorrent .If you use cannabis to create hash oil and then cook the hash oil down with some other kind of oil (coconut, olive, etc) you have liquid that you can take. If you cook hash oil with coconut oil you can put globs into capsules and just take it like a pill. There are ways to make a cannabis simple syrup that would be active for cold drinks (as putting oil in a hot drink works fine, but oil in something ice cold doesn't work too well). You could make an active tincture and put that into drinks, but alcohol doesn't sit well with my stomach even in small amounts so I stay away from that.

For more info on what heat does to cannabinoids look up cannabis decarboxylation on google...also you could look into juicing raw cannabis
 
Hello all!! just wanted to drop a note about Coltyn.... He's STILL doing FANTASTIC!!!! his mmj is amazing! No pains, gained 7lbs since march 25, eating like a horse, regular stools! Still a little tired but hes on a high CBD so we get that, when its time to up the THC were hoping the tired will go away. But from a wheel chair in January to hiking up mountains in April, Medical cannabis has saved my 14 year old sons life!! Thank you Holistic Joe!! ---- I wish I knew how to post a picture.. Hes changed so much, my husband took a pic of him with his mmj pills in his hand and a rainbow going right to it. The caption was that Coltyn found his "pot" of gold at the end of the rainbow!!!
 
Coltyn'sfamily said:
Hello all!! just wanted to drop a note about Coltyn.... He's STILL doing FANTASTIC!!!! his mmj is amazing! No pains, gained 7lbs since march 25, eating like a horse, regular stools! Still a little tired but hes on a high CBD so we get that, when its time to up the THC were hoping the tired will go away. But from a wheel chair in January to hiking up mountains in April, Medical cannabis has saved my 14 year old sons life!! Thank you Holistic Joe!! ---- I wish I knew how to post a picture.. Hes changed so much, my husband took a pic of him with his mmj pills in his hand and a rainbow going right to it. The caption was that Coltyn found his "pot" of gold at the end of the rainbow!!!
Click to expand...

Awesome!!

I love to see things like this. Spread the word!! I'm tired of my doctors rolling their eyes whenever I mention medical cannabis. It has improved my quality of life tenfold and I can see that it's working for your son too!

I'd rather get busted with some cookies or some cannabis treats than hash oil. Some countries might consider that like opium.
Click to expand...

I just read an article about a young man in Texas that is looking at 5 year to life in prison for cannabis brownies made with hash oil...the cops are obviously trying to make some sort of demented point by charging him with the total weight of the brownies as hash oil.
 
I dont know how to post it!!! It ROCKS tho!!! I've kept an eye on the case your talking about. Texas is ridiculous. Police are muscling pot hard! Its still federally illegal but you cant get busted for legitimate mmj cards if you are a user, granted they will still bust you, put you thru hell then let you go. there are still too many loopholes in the laws. They could come to my Husbands house in CO and take Coltyn away from us. hes only protected by CO state law. Not fed laws. Working on changing that. :)
 
Coltyn'sfamily said:
Hello all!! just wanted to drop a note about Coltyn.... He's STILL doing FANTASTIC!!!! his mmj is amazing! No pains, gained 7lbs since march 25, eating like a horse, regular stools! Still a little tired but hes on a high CBD so we get that, when its time to up the THC were hoping the tired will go away. But from a wheel chair in January to hiking up mountains in April, Medical cannabis has saved my 14 year old sons life!! Thank you Holistic Joe!! ---- I wish I knew how to post a picture.. Hes changed so much, my husband took a pic of him with his mmj pills in his hand and a rainbow going right to it. The caption was that Coltyn found his "pot" of gold at the end of the rainbow!!!
Click to expand...


This is so wonderful to hear, oh my goodness!! I'm so happy for Coltyn, and I'm so happy for you as his family. You must be so relieved. :hug:
 
FullM3lt said:
Awesome!!

I love to see things like this. Spread the word!! I'm tired of my doctors rolling their eyes whenever I mention medical cannabis. It has improved my quality of life tenfold and I can see that it's working for your son too!



I just read an article about a young man in Texas that is looking at 5 year to life in prison for cannabis brownies made with hash oil...the cops are obviously trying to make some sort of demented point by charging him with the total weight of the brownies as hash oil.
Click to expand...

You know, my doctor is giving me a hard time too. She isn't necessarily opposed to it but I think they should be giving this out before pain killers. I have a BM (every 36-48 hours) . . . 1/2 way through the BM the pain starts in my lower colon (?) and rectum/anus. it is a throbbing, cramping, ache. It lasts from 2 to 4 hours before it dissipates. it actually stops hurting from the top down. I know when JUST the anus is hurting that the pain is almost done. She gave me some anti spasm meds but they don't touch it.

its crazy that a doctor would prescribe a pain pill that lasts at least 6 hours and makes you high but they wont prescribe MM which lasts only a couple hours and you can get some that doesn't really make you high.

I cannot wait until MM is commonplace. I know it will happen eventually but I'm hurting now.
 
I live in the Netherlands where marijuana is some what legal. The selling and using of it is legal but import and mass growing is not. You may have 5 plants or risk jail. I am only 18 years old and have been smoking different kinds of marijuana and even when it's not labeled as medical, it still helps a bunch. After a few days of not smoking it I already feel pain and have a lot of toilet trips. I haven't talked to my doctor about the medical use of it, neither does he know that I do use it yet. I am on Remicade for a little bit over a year now and went from 8 weeks to 6 weeks to a higher dose. It gradually stops working...

I do believe MM is a great and easy way to relieve the symptoms of Crohn's and seeing as it is cheaper than medicine, they should really just add it to there list of treatments instead of a last resort.

Price of Remicade in the Netherlands: 3600 euros.
Price of 1 gram of marijuana (average): 10 euros.
1 gram should be enough for 2/3 days depending if you smoke a joint or vaporize it. And if you smoke it then it depends on how much you smoke and how much you put in a joint. This can vary a lot.
Taking 1 gram a day would cost you 560 euros every 8 weeks. Remicade is usually given once in 8 weeks so it would be, yes that's correct, over 3000 euros cheaper PER PERSON.

Given that there are about 30.000 people in the Netherlands with crohn's. It would save 91.200.000 euros on medicine cost. But they won't because the government (although it's practically legal) disapproves.

Well played government...
 
Coltyn'sfamily said:
I changed his avatar
Click to expand...

A fitting picture for a great story.It is so great on a personal level for you and your family and so hopeful for others.If the Feds would care about making people healthy instead of profiting on sickness,we could get somewhere.

I won't go on a cynical health care system rant now,I know you can't ignore the elephant in the middle of the room,but...I'd rather focus on the positives right now.
 
Hi to all, I have been so busy the last few months it has been somewhat overwhelming. Coltyns family I am glad you have had results as awesome as mine! It is great to hear that something is actually working which will not lead to horrific long term side effects. I hope everyone is doing well. I am currently doing my internship for law school and don't have much time to do anything else but read and write legal stuff. I will update all of you with my current condition which isn't bad just a basic update is all. Again I hope everyone is doing as well as they can be. Coltyn's family keep up the good fight and keep proving that it in fact really works.
 
I am starting to meet more and more people that need cannabis based meds that I am sure would change their lives. I am beginning to feel an obligation based on the bit of knowledge that I have gained by extensive reading and trial and error that I have to help these people. The more I use it and test my results, not just on myself now, but on others, I think cannabis concentrates have the potential to CURE crohn's disease. And I would venture to say that of all the ailments that cannabis is good for, crohn's may show the most positive response to treatment.
 
From my experiences and reading over the past several months it has become apparent to me that, Cannabis not only effective treats if not "Cures" crohns disease it also is highly effective for any disease where a protein transcription goes awry. I think the reason why this happens is as I have stated before the Cannabinoids bind to the receptor cells found through out the body and modify the immune system/body to be normal or as normal as possible. In essence I believe that cannabis halts or greatly reduces the production of the mutated proteins which lead to these diseases and cancers. Also I have been handing out RSO here in NY to friends of mine that I thought could benefit from it and not a single person has come back to me with negative results. Every person I have helped has seen results that no pharmaceutical could ever give them.

In terms of myself and my continuing personal experiment on Cannabis effectiveness I have found that around the 6 month marker, a plateau effect occurs where the Cannabinoids lose partial effectiveness, I had a return of cramping with some slight blood with otherwise normal, regular bowl movements, I adjusted up my daily intake by only 25 milligrams in the form of segments of CBD Chocolate bars and I am back to normal. This being said prior to me hitting said plateau I was eating whatever I wanted including daily intakes of popcorn and peanuts for about a month without any real reaction. I would think that had I not gone to back to eating like that I may not have had a plateau effect. I do have to say that besides that I have been great otherwise and since the adjustment I have been 100 percent.
Btw I may have said this already but HELLO AGAIN TO ALL MY FELLOW FORUM USERS AND FRIENDS, HOPE YOU ARE ALL DOING AS WELL AS YOU CAN BE!!!!
 
I attend college in Colorado where Cannabis is legal and I definitely notice a positive difference. I especially see a difference with drinking alcohol. If I drink and smoke the same night, I don't experience GI distress the next day from the alcohol.
 

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