Medical marvel or freak of nature?

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Joined
Apr 22, 2011
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medical marvel or freak of nature?

No I'm kidding, on a serious note I havent posted on here in a while because I've been enjoying not feeling like a sick person but I can't really deny it anymore, especially since my last appointment.

I have now been under the care of a consultant GI dr, a registra CRS, and two consultant CRSs - and still no one knows what the hells wrong with me!! Love it.

I'm having BUPA treatment by two great consultants, one GI and one CRS - the GI thinks I probably have Crohns and the CRS thinks I probably dont and wants to do ANOTHER examination and biopsy under general aneasthetic (being knocked out and fiddled with in the rear by a strange man whilst I'm unconscious is obviously my favourite way to pass the time...)

My new CRS said in 33 years of practising medicine he has never seen anything like my problem.... at that point I burst into tears! He was very nice though I'll give him credit for that but unless someone has a magic wand I still have a butt hole that is pretty much ripped to shreds.

I'm thinking now that I'm probably going to go down one of two routes:

a) I have crohns and I'm going to get infliximab and I'm going to heal
b) I have the worst anal fissures anyone has ever had in the entire world ever, and I am going to have an operation that sews everything up, LIS surgery, skin grafts, flap advancement surgery or probably all of the above, with a temporary colostomy to let my butt hole heal

I have emotionally prepared myself for both these scenarious. I just want my doctor to CALL ME and tell me when I can come into the hospital and get this sorted out for good.

I swear to God, I wish they'd just sew it the hell up I'll just never eat again.
 
Oh wow how terrible. I had no idea it was so bad. :( Look at the bright side though, if possible, both your A and B options are meant to help you feel better in the long run and you wont be left this way or in worse shape. I do wish they could slap on a diagnosis and just start treating you with meds etc. till they find something that works but sometimes that just isn't possible. Keep us posted on what the doctors want to do.
 
Yep, it's pretty bad :( I'm trying to forget about it but every trip to the doctors just ends up a complete nightmare - I emailed my doctor last night and he informed me that him and my surgeon have been talking a lot about me, but I sortve felt like, a little less conversation a little more action, please? Lol

I don't know if I'll ever get a diagnosis seeing as apparently I'm the only person in the world who has my specific problem, BUT, I just want them to sew it all up and let it heal :(

I'm keeping my fingers crossed the drs will contact me soon...
 

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