Hi Clash,
Yes, this is exactly how I would describe the managed medicare. It is really for someone who is healthy. They have lures like help with transportation and the fact that you don't have to go out and buy a part D plan, but they are more difficult to work with. Because of the restrictions in the formulary, and all the prior authorizations required. They can work for some people, say, you find Humira is covered under a managed medicare plan. It may be worth it to go with it, it is a bit of a gamble but you know your drug will be covered. Just watch to find out what copays will be. Know that you will have to have a lot (more) contact with your doctor's office. If your doctor is part of an academic practice (hospital based) with a medical social worker who can help you, it can work. It is just a lot more work. And if you can afford the regular Medicare with the part B and D supplements, it may be easier.
If someone tells you a drug is not covered look for it someplace else in the plan. Is it covered under part B, can you get a prior authorization or appeal. I write letters of appeal for patient all the time. I am a nurse too so I can speak the language of these people who are telling patients, "no." Also, the doctor I work with is wonderful and he will sign most anything that I put in front of him. I do not work in the IBD field though. I work in a different medical specialty.
If your daughter is eligible for insurance through her workplace she is not eligible for the ACA. Many teachers have good insurance through their unions. Maybe contact the CCFA chapter in your area and ask if they know of any teachers who can provide information (who would be willing). I'm not sure if you can keep her on your plan and have her get insurance though her place of work. She would have a primary insurance and a secondary one. But I am not sure about this. Ask your HR. With 2 insurances you would likely have some pretty good coverage for a few years. She would have the time to find out about what districts offer the best benefits and get some experience. She could possibly transfer to a better district for health insurance. Or find out that her insurance really isn't bad at all. Or get married to someone who has awesome insurance (like it sounds yours is).
Teachers (good ones) rock!!!