Medication lists. Pros and Cons.

Crohn's Disease Forum

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Jan 20, 2014
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I'm a Crohnie for 7 years. New to medication though.

Give me a list of what you are on, side effects, and for how long. I'd like to do some research.

=)

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It's more just like a poll. I'm not going to start asking my doctor for everything everyone is on. This is for my own research.
 
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side effects vary in each person. What works for one person, may not work for another or may cause an allergic reaction. your best bet would be to talk to your pharmacist about any meds your doctor puts you on.
 
LDN, Probiotics, Medical Marijuana, and Prilosec are all I take. Don't really seem to have any side effects besides the LDN makes me feel a bit weak and tired, but I take it bf bed so I don't notice. Honestly not sure if the LDN is doing anything, but I know that the MMJ and probiotics are...was on entocort and had headaches, acne, and severe mood swings when coming off of it.
 
oh yea I guess the MMJ has side effects, it makes me hungry, happier, helps me to sleep, and makes arthritis pain less noticeable
 
oh yea I guess the MMJ has side effects, it makes me hungry, happier, helps me to sleep, and makes arthritis pain less noticeable

What terrible side effects! :p

RE: The original post, though:

I was put on Remicade and only lasted a few months on it - I had reactions to it immediately, varying from rashes, hives and eczema. By the time I had my last infusion they had to give me Benadryl and a steroid to avoid getting a reaction, and by then it had no effect on me anyway.

I switched GIs during those months, and a quick test revealed I had a really strong resistance/allergy to it, so no wonder I was getting such strong reactions!

After that, I was put on 40mg of Humira once a week. You can either get it in a pre-loaded pen (press button, it injects for you) or a syringe, but I'm a big baby and went with the pre-loaded pen. I still find it hurts, but the syringe hurts more, and honestly that's my only complaint about it. Otherwise I haven't had any reactions other than a minor skin reaction once or twice, and that's just from the injection itself rather than the medication I'm pretty sure.

I'm also on Imuran at 100mg, and when it was higher I felt like it was causing me to lose my hair and I'm too afraid to up my dosage again to confirm this... A lot of people complain during the first week they're on it that they get pretty brainfoggy, but that goes away after. No side-effects since that I've noticed, but I'm also a little skeptical if it's working or not.

I was also on cipro/flagyl for a little while, but I'm pretty sure anyone on this forum can tell you that they're terrible antibiotics. I was on them for eight months. Most people get awful side effects from them, although I actually seemed pretty okay except for being infection-prone from them.
 
Severe Crohn's - after trying every other med, my current and hopefully long term crohn's regimen is Remicade every 6 weeks, 1 ml methotrexate weekly, b-12 injections weekly/monthly, and levbid 3 times per day. I've been on remicade for almost 5 years - now have a port because it scarred my veins. Typically feel kind of flu like the day of and after but no other side effects from that. The oral methotrexate didn't give me side effects, but now on injectable Methotrexate and it causes me pretty bad joint pain the day of. No side effects with b-12 or levbid
 

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