Meds back and forth

[Ozboz]

Can anyone please tell me a question about med's/
I was on humira and then had a massive flare and ended up in the hospital they did a ct scan and found lot's of problem's and they found internal stuff.
Before the flare I was on humira and entocort and seemed like it started to work then I took one too many laxatives and it sent me into a massive flare.
I was put on pred and remicade but now I kind of regret not telling them that the other meds for just a few days and they put me on there stuff.

Now I'm back with my original GI and he said we needed to give the entocort more time. as I was only on it for a few days but felt a difference now I regret not standing up for myself at the hospital I was so tired and out of it that I just let them do whatever Now apparentlt I have a transverse colostomy I didn't need oh well I should of stood up for myself more.

What I wanna know is will the humira get back to work after the remicade I only had 3 infusions.

 

[my little penguin]

Why would you stop remicade ?
If you stop you will build up antibodies and it can't be used in the future .

 

[Lisa]

I agree - if you are on Remicade and it is working - as long as you have coverage for it I would stay on it as long as possible.

 

[ronroush7]

Agree

 

[DougUte]

You really do not want to be on any biologic for just a short period of time. If you stop the med, anti-bodies will build up, making it so the biologic will not work so well in the future. Same for Humira as for Remicade. If Remicade is working for you, I would stay on it.

 

[Ozboz]

Thats the point the the remicade isn't doing anything I've been on humira a few times on and off, and it seemed to work.

 

[my little penguin]

You only had three loading doses of remicade correct ??
That's not long enough to know if it's working yet
And you had surgery which also takes a while to heal and let your GI system to settle
Ds took every hit of 8 weeks from starting date or remicade (3 loading doses plus a few weeks ) and then he had to up the dose to 7.5 mg/kg and increase the frequency to every 6 weeks
Then It worked like a charm

 

[Ozboz]

see in Australia we have private and public medical systems I've been with a private doc and he was good but I had a massive flare in october and was so out of it I didn't stand up for myself.
I had a surgery that now apparently I didn't need and they said the humira wasn't working but I started taking entocort and it worked now I'm off it cause at the hospital which is public they said it didn't work so now I'm screwed I ended up with a transverse colostomy which is horrible and I'm hoping to get reversed praying for it to work and also they say my symptoms aren't settling on the remi. I went back to my GI to get back on the humira but now I think it's too late I feel like and idiot for not standing up for myself at the hoispital and saying I didn't want surgery.

 

[Jabee]

When we are really sick it is extremely difficult to stand up for ourselves. You've suffered enough without blaming yourself. I am usually very forthright and confident, but when I'm really ill all that goes out the window. It happens to everyone. Moreover, the doctors are supposed to be helping us, right? What does your private GI want you to take? Aside from the antibodies to biologics. You can use some of the drugs together. Are there additional drugs that you haven't tried? I can imagine that this is a terrible time for you; please try not to look backward and criticize yourself. It's never productive. I should know! I'm an expert. All you can ask yourself is to do the best you can at the time.

 

[Ozboz]

When we are really sick it is extremely difficult to stand up for ourselves. You've suffered enough without blaming yourself. I am usually very forthright and confident, but when I'm really ill all that goes out the window. It happens to everyone. Moreover, the doctors are supposed to be helping us, right? What does your private GI want you to take? Aside from the antibodies to biologics. You can use some of the drugs together. Are there additional drugs that you haven't tried? I can imagine that this is a terrible time for you; please try not to look backward and criticize yourself. It's never productive. I should know! I'm an expert. All you can ask yourself is to do the best you can at the time.

You are an angel thank you so much it helps a lot I never wanted the bag but this time I dunno what happened and now I'm not coping with it.

 

[Jabee]

I think we come to terms with chronic illness in a manner similar to the way in which we deal with grief. Depending on who you read, there are five or seven, or more, stages of grief. We move through them in different ways, too, and not in the order they are customarily written about.

The seven stages are: shock or disbelief, denial, bargaining, guilt, anger, depression, and acceptance/hope.

Elisabeth Kübler-Ross proposed five stages in her 1969 book "On Death and Dying".