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Did my weekly blood test today.
ESR was through the roof again. But I've felt worse...
The thing is I've had a cold for a week.
So can a cold make my ESR (inflammation) high?

FYI It was 62. Normal is 0-22. Last week is was high twenties.
 
Doc called me tonight.
I start tapering Pred tomorrow FINALLY.
May also increase one of my other drugs, and if that doesn't
get my high inflammation down, then we will have no choice but
to do Remicade.

UGH. Stupid Pred. I feel like I've suffered with these side effects for nothing.
:voodoo:
 
Hope the taper goes well Cassie and that you get something sorted to help you more effectively soon!!

((hugs))
 
::Sigh:: I'm feeling depressed. Weird things have been happening lately.
I'm stressing out. And my Crohn's doesn't appreciate the stress. Just needed to
vent somewhere.

roar.

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Well, my sorry butt is going to Florida the second week of February.
I didn't want to go because I haven't been able to leave the toilet for more
than a few minutes at a time of late, but the husband already got plane tickets.

He's having a work convention and wants to use the few days beforehand as
a vacation. I'm stressing out about this. I feel like it might be the honeymoon
disaster all over again. I'm probably going to have to load up on drugs before
hand and just be constipated the whole time. Better that than needing to
run to the toilet if I'm stuck on a plane or something.

I will also be tapering my Prednisone down to 20 that week. I'm hoping I
don't flare up, otherwise things could get ugly. :ymad:
 
Wish you the best of luck with the trip to Florida, you have been thru so much already with everything kiddo. You deserve to get away with the hubby and not have to worry about getting sick.
Just watched your TPN video, wow, I really dont know what to say except that you are a very strong and determined woman and it hurt me to see such a young woman have to go thru that. It must of been hell at times. You must have a very loving and caring husband to go thru this all with you, my hats off to the man, good job.
Have you tried medical marijuana thru any of this? If so did it work for you at all?
Just curious, some people consider it an "ILLEGAL DRUG" still, but if you ask me its a medical breakthrough in some cases or instances. It has worked for me so far.

Sincerely and Respectfully, Gary
 
aww thanks :)

Everyone who lives with this dumb disease is a strong person in my book!

Well, tickets bought, reservations made.
I will be loading up on Immodium. :ylol2:

I will be learning how to wrangle a gator! Oh yes, there WILL be photos :ycool:

Havent tried the marijuana route, though these days there isn't much
that I havent yet tried, save the worms up the butt thing. lol:eek:
 
Hope you have a great time Mini and the guts behave having listened to the stern lecture you are going to give them!!

Looking forward to seeing the photos!
 
come down to aus and take on a salt water croc, then i'll be proud of you mini;)


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that is one BIG croc!!!!!
and yes, I do plan on visiting Australian crocs, but had to settle for the
gators and american crocs for the time being :)

I just got back, and have 500..yes 500 photos to weed through and post,
so it will be a while, but I thought I'd post a few from Gatorland where I
got to wrestle the gator :)

normal_gatorland2_web.jpg


normal_gatorland1_web.jpg



This guy is just as big as my Turk!
normal_gatorland3_web.jpg


I also have video if the airboat ride where we ran into wild gators and will have to post
that when I get around to editing it.

I will be busy with photos and video for the next year. :eek: :yrolleyes: :)

My tummy didn't complain tooo much, but I was on Immodium the whole time
to prevent any accidents. I didn't think the gator would have appreciated an
accident :ylol2: Pretty exhausting, but so very glad Jesse made me go :)
 
Glad you had fun and didn't run into any difficulties!
OMG - 2nd pic? One good lunge and you look like lunch!
 
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