Hi
About 6 years ago, I was having a lot of stomach pains, any time of day and usually worse around dinner time and after eating I would doubled over in pain. It got to the point where I wouldn't even eat yet, just sitting down to dinner and the pain would unbearable. My stomach and abdomen was constantly rumbling and gurgling, especially when I laid down in bed. My husband begged me to see the doc but I kept putting it off - until one night after a small binge on Skor Bites and Star Burst (I know!) I woke up in the worst pain of my life. I can equate it to natural child birth since I have been there done that. I thought I was dying. I went to the ER and after several hours was told I had a stomach flu and sent home. During this time, I felt an extreme urgency to go, however complete emptyness when I sat on the loo. But just before I left the hospital I was able to vacate and felt instantly better. When I got home, I went again, this time all that came out was mucous and blood, about a tablespoon worth.
I saw My GP the next day because I was so worried and dif not think it was the flu! He thought Crohn's so I went to a specialist, had a battery of tests over the next few months (blood work, colonoscopy, barium xray etc and tried several Crohn's drugs) While in this process I was in the ER four more times with the same sysmptoms - extreme pain and cramping. I think now these bouts were a partial blockage.
The colonoscopy showed ulcers in the ileum and I was diagnosed with Crohn's. I took 40mg of prednisone for 3 weeks and then weaned off over the next 8 weeks. Over the next 5 or so years I was pretty much in a remission and had managable symptoms, no more trips to the ER
Back to the present - in the last couple of months, my symptoms have been coming back more and more, including the gurgling belly etc and more pain in general. The big D everyday, urgency to go several times a day etc etc
Went back to the specialist and had my 2nd colonoscopy yesterday (same doc). He thought he would check things out and start trying some new meds but to his and my surprise the colonoscopy showed NOTHING
He could find no ulcers or scarring where it originally was in my Ileum. In fact he said he's never seen anything like it and that he may have misdiagnosed me with Crohn's. He wants to run more tests. waiting for CT scan appt.
All of my symptoms point to Crohn's including my joint issues and skin issues which I've had since the same time. Not to mention the ulcers were there a few years ago. Has anyone heard of ulcers going away from maybe the prednisone? Or maybe because I am not having as bad of a flare up as I did when I took the first tests?
My family thinks its great news and doesn't understand why I am upset by this. But I am because after so long in pain and then months of hell on prednisone - with side effects lasting much longer than I was taking it - I had a name for what was wrong with me. Now I am back to square one and will need to go through more tests and god knows what all to get an answer. :frown:
About 6 years ago, I was having a lot of stomach pains, any time of day and usually worse around dinner time and after eating I would doubled over in pain. It got to the point where I wouldn't even eat yet, just sitting down to dinner and the pain would unbearable. My stomach and abdomen was constantly rumbling and gurgling, especially when I laid down in bed. My husband begged me to see the doc but I kept putting it off - until one night after a small binge on Skor Bites and Star Burst (I know!) I woke up in the worst pain of my life. I can equate it to natural child birth since I have been there done that. I thought I was dying. I went to the ER and after several hours was told I had a stomach flu and sent home. During this time, I felt an extreme urgency to go, however complete emptyness when I sat on the loo. But just before I left the hospital I was able to vacate and felt instantly better. When I got home, I went again, this time all that came out was mucous and blood, about a tablespoon worth.
I saw My GP the next day because I was so worried and dif not think it was the flu! He thought Crohn's so I went to a specialist, had a battery of tests over the next few months (blood work, colonoscopy, barium xray etc and tried several Crohn's drugs) While in this process I was in the ER four more times with the same sysmptoms - extreme pain and cramping. I think now these bouts were a partial blockage.
The colonoscopy showed ulcers in the ileum and I was diagnosed with Crohn's. I took 40mg of prednisone for 3 weeks and then weaned off over the next 8 weeks. Over the next 5 or so years I was pretty much in a remission and had managable symptoms, no more trips to the ER
Back to the present - in the last couple of months, my symptoms have been coming back more and more, including the gurgling belly etc and more pain in general. The big D everyday, urgency to go several times a day etc etc
Went back to the specialist and had my 2nd colonoscopy yesterday (same doc). He thought he would check things out and start trying some new meds but to his and my surprise the colonoscopy showed NOTHING
He could find no ulcers or scarring where it originally was in my Ileum. In fact he said he's never seen anything like it and that he may have misdiagnosed me with Crohn's. He wants to run more tests. waiting for CT scan appt.
All of my symptoms point to Crohn's including my joint issues and skin issues which I've had since the same time. Not to mention the ulcers were there a few years ago. Has anyone heard of ulcers going away from maybe the prednisone? Or maybe because I am not having as bad of a flare up as I did when I took the first tests?
My family thinks its great news and doesn't understand why I am upset by this. But I am because after so long in pain and then months of hell on prednisone - with side effects lasting much longer than I was taking it - I had a name for what was wrong with me. Now I am back to square one and will need to go through more tests and god knows what all to get an answer. :frown:
