More bizarre symptoms of Crohns

[JennyB]

I was diagnosed with Crohns disease 5 years ago and went into remission with Aza. I then decided to take my chances without medication and...it came back in my TI. I was put back onto steroids and aza in the short term but, having had side effects with Aza I enquired about the possibility of biological drugs and have chosen Adalimumab. Unfortunately, my consultant won't let me begin this treatment until I have neurological tests to find the cause of another symptom I have. I have developed pins and needles in my hands and feet with the occasional 'shaky', tremor- like fingers.

I have an 11 week (at least) wait for an appointment with the neurologist and have to live with my flare up until then. I am currently only taking budesonide but they don't appear to be having the desired affect!

I was wondering whether anyone else suffers similar issues during a flare up or as a result of medication?

Any comments are appreciated!

Thanks

Jenny

 

[ronroush7]

There is a section in here called Extra Intestinal Manifestations. You might post over there also.

 

[ENTheory07]

Prednisone gave me the shakes. In a flare I shake from being weak and not eating. Never had the pins and needles though.

 

[my little penguin]

Prednisone has known side effects of tremors .
Neuro will probably due an MRI of the brain
Ds has more than one to rule out issues .

 

[tooks65]

Yes I also get pins and needles and altered nerve sensations, mostly in my right hand and arm, and in my face. Sometimes my fingers or parts of my face will go almost totally numb. I can also get tremors.

I haven't been on meds for over 10 years, so it can't be a medication side effect. It just started in the last 6 months.

 

[Bunty]

Hi Jenny.
I don't know if you've had your vit B12 level checked but a low level can give neurological symptoms. B12 is absorbed in the TI area so if you have gastro problems there then there's a good chance you're not absorbing it.
It's an easy blood test to measure the level, your GP can do it and at least it may give some answers before your 11 week appointment.
I too have a tremor, in my left hand, and also a slight wobbly head, known as an essential tremor. Nothing to be done about them, and more importantly not a sign of something more serious.
Bunty x
Ps. I was born in Liverpool and don't live a million miles away now

 

[JennyB]

Hi


Thanks for the reply. I have had blood tests months ago when the symptoms first started (April). I would assume that they tested for B12 but I'm going to ring tomorrow to check. I was vitamin D deficient back in December when I first thought the crohns was back and take tablets once a month now.

It drives me crazy. The pins and needles are quite intense in both my wrists and spread into my fingers. It's the fear of a neurological disease that makes it really stressful though.

I left liverpool once to try living somewhere else.. ran back home in less than a year!