MRI scan and sickness

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Hi

My daughter had her second MRI scan on Thursday to see if the inflammation has gone down at all. It took so long, because the Mannitol wouldn't go down to where it should be, it was sitting in her stomach. I'm guessing this is because of narrowing in the bowel? Also for the last few days she has been vomiting, it seems like the food can't get through :frown:. I phoned the paediatrician for advice and was told to put her back on Modulen and nothing else. This morning she has been sick again (just after taking her first Modulen of the day) and it was bright green! I'm hoping that someone can shed some light on this? The paediatrician said they are having a meeting about her on Monday, and she will phone me after that. So we'll hopefully know more tomorrow once they've seen the scan results. Thanks everyone :ysmile:
 
Bile could be backing up.
This didn't happen to Grace but to me.
I went to ER and they found my gallbladder was "bad" I guess you say.
The bile wasn't able to get though and backed up (vomit) and came out green.
Call your a medical professional (Doc or nurse) and ask.
How is her stool?
Changes in stool habits I was told could or will happen with bile back up.
Keep us posted.
 
Second call the doc ASAP and if they won't answer then take her to the ER(AE I think in the uk).
Vomiting up bile can be very serious .
 
Hey catfan...:hug:

Are your daughter's bowels working?

Does she have any abdominal pain?

If the vomiting continues I would be contacting the doctor today or taking her to A&E.

It would be hard not to think, given her symptoms, that there is some degree of narrowing present.

Let us know how you are getting on!

Dusty. xxx
 
Thank you everyone for the advice. My daughter is now back on Modulen exclusively, on the advice of the paediatrician and her pains have improved a lot (and no more sickness yet!) The results of the MRI showed what we thought, that there is a narrowing. The paediatrician says she will require surgery and to be honest I'm not surprised given her symptoms. So now we are waiting to hear from the hospital. Frustratingly, we have an excellent hospital 5 minutes' away, but they don't do that kind of surgery there so we are being referred to another one which is about an hour's drive. I have quite a few questions, if anyone can help please? How long would she have to stay in hospital for, and what sort of recovery period should there be before she can resume normal activities - she plays football (soccer). How are the sections of bowel joined together? Will she still have to take all her medication after surgery, and what are the chances of more surgery in the future? And the most important one - she is booked on a ski trip with the school in February; do you think she'll be able to go, will she have healed sufficiently by then?
Thanks in advance xx
 
Just wanted to wish her luck with the surgery!! Never had that type of surgery on my kids, but I know someone who had his appendix out and they were told 6 weeks before being able to go back to sports. I would imagine the skiing trip should be fine if it's in February. That's great that she can drink the Modulen - I would have liked Andrew to go back onto it for a few weeks but he needed the tube so really, really doesn't want to. Which hospital will you be going to?
 
Hey catfan2,

If they are speaking of an ileocaecal resection then both of my childen have had one. I will lift some information I have in another thread...

Sarah:
had a right hemicolectomy 6 years ago and has been in remission since that time. Her surgery was an emergency, she was undiagnosed, and so was performed as an open procedure. This is an outline of her post op recovery...

Surgery day - She was in theatre for approx 4 hours. When she returned to recovery she had oxygen, two IV's, two drains, an NG tube and an IDC (urinary catheter). She was in ICU overnight. She asked to go back to the ward the next morning. I think the surgeon wanted her to stay another day but she couldn't get out fast enough! Oxygen therapy ceased.

Day 1 post op - Moved to the ward and spent the day on bedrest. IDC removed. NG tube on free drainage and morphine IV remained on PCA (patient controlled analgesia).

Day 2 post op - No change with drains and tubes. Physiotherapy commenced. Up out of bed and gentle ambulation commenced twice a day. Although Roo refused to use a pan so started walking to the toilet that day.
Started eating ice chips.

Day 3 post op - One IV removed and condensed IV morphine and fluids into one. NG tube removed. Increasing mobilisation. Ice chips.

Day 4 - Bowels open. Commenced on clear fluids. Mobilising.

Day 5 - Tolerated fluids from previous day and throughout this day so commenced on light diet at tea time. Both drains removed and IV removed. Oral analgesia and antibiotics commenced.

Day 6 - Discharged home.

I don't know if being paediatric made a difference but each day she was visted by the surgical team twice, the physiotherapist twice, the pain management team once and the dietician once.

Sarah was in very poor condition prior to surgery so I felt that she didn't truly recover for a number of months. I would say she was running on about 80% for the first few months and reached full recovery after about 6 months. She returned to school 3 weeks after the operation and has now been in remission for 6 years.

Matt:
had a right hemicolectomy in April 2011. It was planned surgery that was required due to an existing fistula and abscess. He had a pigtail drain in for 3 months prior to surgery.

Surgery day - He was in theatre for about 4 hours and recovery for 2 hours. When he arrived back on the ward he had one IV that consisted of the PCA (patient controlled analgaesia) and other IV fluids for hydration and IV medication. He also had one wound drain, a urinary catheter and oxygen.

Day 1 post op - No change with IV's or tubes and drains. Started mobilising and about an hour sitting in the chair.

Day 2 post op - Still no change with the tubes and lines. Commenced on clear fluids and continued with gentle mobilisation.

Day 3 post op - Urinary catheter removed, still on clear fluids, mobilising well.

Day 4 post op - PCA removed and started on oral analgaesia, remains on clear fluids, started farting, only one IV now left.

Day 5 post op - Last IV removed, commenced on free fluids, bowels open.

Day 6 post op - Commenced of light diet.

Day 7 post op - Commenced on full diet, drain out.

Day 8 post op - Discharged!

Matt had no issues post op and I feel that the start of week 4 post op was the real turn around in his recovery. It was at this point that he really started to move freely and shades of his old self started to appear. His recovery has been much quicker than Sarah's. He returned to school 3 weeks after surgery, was allowed to drive short distances after 3 weeks and long distances after 6 weeks but he was driving longer distances at 5 weeks. Started soccer training at about 5 weeks as well. He is also in remission.

The life savers in hospital for them were...TV, mobile phone, iPod, laptop with DVD's, ear plugs, comfortable loose fitting pyjamas/clothes, footwear that is easy to slip on an off, like slippers, magazines/books and short visits from friends when they were up to it.

They have both been on maintenance meds (Imuran) following surgery.

Both of my kids required open surgery but if there is narrowing with no other complication present then they may well be able to do laparoscopic surgery, in which case her recovery will be quicker.

I have a copy of Matt's surgery report and his anastomosis (join) was stapled and then oversewn.

I think the trip in February will be dependent on when surgery is scheduled. Do you know when it will be?

Dusty. xxx
 
Hi! My daughter had an ileocecal resection at age 13. The procedure was done by laproscopic assist...she has a small scar on the lower right quadrant of her abdomen. Liv had to be transported to another facility for this surgery because the surgeon at the hospital she was admitted to was never trained in lap-assist procedures. Apparently healing is quicker and post-op hospital stays are shorter with this type of surgery. Liv was discharged home after only 5 days and was given permission by the surgeon to go to a water park 6 weeks post-op...she did great. Good Luck to you and your daughter,hopefully the surgery will get her feeling better soon! Kim
 
Hi again

I can't tell you how much I appreciate all the advice, thank you! And Dusty, I'm very grateful to you for giving me an idea of what to expect surgery wise. You are a fountain of knowledge! We went to see the consultant yesterday. They are looking at the 12th November to do the surgery, but said she would have to go in to hospital a few days before th op. This is the embarrassing part - he told me why and I nodded and listened but it's all a bit of a blur now! Something about her not eating or drinking for a few days before (she's only on Modulen anyway); she would have a drip in her arm to give her all the nutrition she needs, and he also mentioned a tube up her nose. Does any of this sound familiar? I'm sure that when the official letter comes it will all become clear, but for the moment I am flummoxed! I seem to be constantly collecting prescriptions from the pharmacy as well, I also have a teenage son with spots so he has cream and tablets into the bargain! We have gone from being a relatively healthy family to one that is always at the doctor/hospital!! Thank God for the NHS!
 
Catfan2,
Caitlyn also had a resection and her course pretty much followed Dustys kids. One thing I would recommend asking about is if they give epidurals for the surgery and pain management afterwards. Caitlyn had an epidural ( yes just like the ones for childbirth) and it was fantastic she had almost no pain until they removed it on day 4 and by then the pain was greatly decreased anyway.
 
Hey caftan,

They would be talking about TPN and this can be done for various reasons either alone or in combination. The main reasons though are to rest the bowel, settle inflammation and provide physical condition prior to surgery. This was one of the plans for Matt but he went down a different path.

Do you mind if I ask what tablets your son is taking?

Dusty. xxx
 
Thank you Dusty :thumleft:. My daughter is taking 60mg of mercaptopurine (I got it wrong on another thread I think and said it was 60mg twice a day when in fact it's only once :blush:) 1.2g Mesazaline twice daily and has just started on Ferrous sulphate 200mg twice daily. My poor baby popping all those pills!
 
Hey caftan,

I know it seems strange, sorry :redface:, but I was curious as to the tablets your son was taking for his spots.

Dusty. xxx
 
Sorry Dusty, crossed wires there :ylol2:. My son takes Lymecycline (tetracycline) tablets for his spots, one tablet a day. He also uses Benzoyl Peroxide gel, which bleaches everything it touches! Don't get me started on his towels and bedding :eek2:.
 
Good lord! I hate to think what the towels and bedding are like! :voodoo:

I was curious because there has been some suggestion of a link between antibiotics for acne treatments and the development of Crohn's. Roaccutane seems to be the main culprit far as I am aware. I don't mean to alarm you but just wanted you to know in case that was what he was taking.

Dusty. xxx
 
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