My 1st flare up since being diagnosed

[wi_girl]

Hi everyone,
I just got to experience my 1st flare up since being diagnosed.I thought I had the flu because I couldnt keep anything down.I went to the hospital on 9/13 they gave me IV fluids and sent me away.On 9/15 I still couldnt keep food down and had a temp of 104 so went back to the hospital.Iwas given more fluids and sent away because they didnt know what was wrong.The next day was my 21st.What a birthday.I had dropped 10 pounds already and was just getting worse.I could barely walk.The next night my temp was 104.8 and all I could do was vomit.My boyfriend called an ambulance because I had no other way to the hospital.I was poked a million times because they couldnt get my veins because I was so dehydrated(now my vein is scarred and somehow moved over my wrist bone,it hurts with even the lightest touch so theyre suggesting surgery).I spent 3 days in the hospital and still they didnt know what to tell me.I had 4 x-rays,tons of fluids,ended up getting fluid in my lungs,my potassium and iron were extremely low.My only diagnosis was anemia.They released me and told me to see my gastroentrologist(sorry if spelling is off).He told me it was a flare up and added more medication to all the other pills the hospital had me on(I was taking 17 pills a day for about 2 weeks,that alone filled me up)and got me set up for remicade(sorry if spellings off again)right away because of how bad I was getting.(I had dropped 15 pounds by then and had no color or strength).The remicade worked and I can eat again.YAY!I've gained all the weight back but at least I can walk,eat and just be healthy.Does anyone else love remicade?I think I wouldve been lost without it.

 

[skeet]

Sounds like you've been through a living nightmare that is, unfortunately, well known to many here. I'm so glad the remicade is working for you & you're feeling better. Here's to your health! :beerchug:

 

[ruthymg]

Nice to hear your good news. Its also nice to hear positive comments about remicade, a rare thing. Seems its good at putting you in remission but relapses are almost always inevitable. I'm supposed to be having it, not sure if I want it though.

Ruth

 

[GNC Crohn's Man]

Remicade is a great drug just remember to get your antioxidents and have regular testing for lymphoma/tuberculsis/an other cancer's that may be caused by your crohn's meds...

 

[stephrena]

how come you have not had remicade?? scared?? i am scared....i just feel like my doc is just tossing around remicade for his benefit....

 

[Hamp]

Nice to hear your good news. Its also nice to hear positive comments about remicade, a rare thing. Seems its good at putting you in remission but relapses are almost always inevitable. I'm supposed to be having it, not sure if I want it though.

Ruth

Like so many others I was also not positive towards having remicade. With all side effects and so on. But wow! It truly is a miracle drug for some, including me. I recieved my first infusion late september -05 and have lived a perfectly normal and healthy life 95% of the time since then, so I take my chances with it. I recommend you try it.

Good luck!

/Hampus

 

[ruthymg]

Like so many others I was also not positive towards having remicade. With all side effects and so on. But wow! It truly is a miracle drug for some, including me. I recieved my first infusion late september -05 and have lived a perfectly normal and healthy life 95% of the time since then, so I take my chances with it. I recommend you try it.

Good luck!

/Hampus

Thanks for your response, I am to see my surgeon and my gastroenterologist in 2 seperate apps in 2 weeks so I will be discussing the option of Remicade again with them. I have already been told by my GI that he thinks my crohns is severe enough to warrant it. Cost is an issue over here in the UK as the Remicade is extremely expensive, doctors have quidelines they have to adhere to and if your crohns isn't that bad, I know my GI for sure, would refuse to give you the treatment.
The reason why I haven't started it yet is, cos I was waiting for the results of an MRI scan before I start the tranfusions, those results will be given to me on my next appointment.

Ruth