First of all, I want to start off by saying that I do not have Crohn’s, but my boyfriend of five months does, and i'm sorry if I'm posting in the wrong area, this is my first time here. Well, to continue, my boyfriend was open about having Crohn's with me since the beginning, but, like a lot of people, I didn’t know what Crohn’s was, and I didn’t start seeing and understanding how serious it was until a couple months into the relationship. From what I know, he’s had it for ten years (he’s 27 now), he was taking steroids for about nine years and got off it this past year and started doing medical marijuana. His symptoms were getting bad, (a mutual friend told me he’s on the higher end of the moderate level of Crohn’s) so he started a new drug, it starts with an “I” but I don’t remember the name of it; he told me it’s a lower dose of steroids with less side effects.
A note on this, he said he hates steroids, and that he told himself he would never get back on it because of the side effects. He’s unhappy with the fact that he’s on a lower dose of steroids, but he’s hoping this helps him, or else he said he doesn’t know what to do.
Anyway, he started this new drug a week ago, and he warned me that transitioning to a new drug is difficult for him, and he never knows what’s going to happen. A few days ago, he got a C-Reactive Protein analysis test result back and said it was at 51.7 mg/L. He said he knows there’s always something wrong with him, but that seeing the result really got to him. He started to pull away from me a bit, and I told him I completely understand that he needs to focus on himself right now, and that I’m here for him whenever he needs me. He really appreciated this and apologized, and yesterday he said he needed his time/space, so we’re not talking now...
I’m here because I’ve constantly been researching Crohn’s since we started to get serious, and this forum is what I’ve found most helpful. I would just like to get a better understanding of all this, and although he’s told me if I ever have questions I can ask him, sometimes I can see it’s really hard for him to answer (for example, talking about the side effects of steroids). I’m trying hard not to take his moods or detachment personally, and reading more about Crohn’s is helping me cope through this and better understand how I can help. Does anyone know what kind of drug he might be on? (I’m really kicking myself for not remember the name of it) And if so, can anyone share what the transition could be? What he might be going through, and how long it actually takes for this early phase to settle? Any input would be really helpful... I really don't have anyone to talk to about this, and I try telling my girlfriends, but it really doesn't help =/ . Thanks
A note on this, he said he hates steroids, and that he told himself he would never get back on it because of the side effects. He’s unhappy with the fact that he’s on a lower dose of steroids, but he’s hoping this helps him, or else he said he doesn’t know what to do.
Anyway, he started this new drug a week ago, and he warned me that transitioning to a new drug is difficult for him, and he never knows what’s going to happen. A few days ago, he got a C-Reactive Protein analysis test result back and said it was at 51.7 mg/L. He said he knows there’s always something wrong with him, but that seeing the result really got to him. He started to pull away from me a bit, and I told him I completely understand that he needs to focus on himself right now, and that I’m here for him whenever he needs me. He really appreciated this and apologized, and yesterday he said he needed his time/space, so we’re not talking now...
I’m here because I’ve constantly been researching Crohn’s since we started to get serious, and this forum is what I’ve found most helpful. I would just like to get a better understanding of all this, and although he’s told me if I ever have questions I can ask him, sometimes I can see it’s really hard for him to answer (for example, talking about the side effects of steroids). I’m trying hard not to take his moods or detachment personally, and reading more about Crohn’s is helping me cope through this and better understand how I can help. Does anyone know what kind of drug he might be on? (I’m really kicking myself for not remember the name of it) And if so, can anyone share what the transition could be? What he might be going through, and how long it actually takes for this early phase to settle? Any input would be really helpful... I really don't have anyone to talk to about this, and I try telling my girlfriends, but it really doesn't help =/ . Thanks
