- Joined
- Jul 22, 2012
- Messages
- 21
So, I guess I'll tell y'all about my life with Crohn's/vent/whine. lol. I just feel like typing.
Ever since I was born I had stomach problems. I couldn't stomach breast milk or the formula, so I was basically living off of pet milk (evaporated milk.) Yeah, I don't know. lol. Anyways, I was always a nervous child as I grew up. Almost everyday my stomach would hurt all the time, especially before school and sometimes I would cry before school. I was just lactose intolerant at the time. By the time I was 14 I've been noticing a change in my bowel movement. It would always be soft stool/diarrhea and it would always sound like I was exploding. (TMI, sorry.) lol. I just ignored it. About the time I turned 17 I noticed my symptoms have been getting worse. This was also around the time my parents were separated and about to get a divorce. I started have severe abdominal pain, blood in the stool, always tired. I finally decided to man up and go see a gastroenterologist. I told him all of my symptoms (I was embarrassed at the time) and he scheduled a colonoscopy. I was TERRIFIED! But honestly, the worst part of that was the day before with no eating and drinking that horrid drink! BLECK!!! I remember the day of my colonoscopy. Shaky, scared, nervous. As soon as I was lying on that hospital bed after I received my IV and waiting in a dim room alone for the exam room to be ready, tears were shedding. They had to get my Gastroenterologist to come and calm me down. I was worried for nothing. I was asleep the whole time and don't remember anything. Waited a week or so for the results. I get a call from my mom, since I wasn't old enough to receive a call from the nurse myself to get the results, the first thing I heard was "Welcome to the club, you have Crohn's Disease." (My mother and her father have it as well, so it's hereditary.) I didn't know what to say..More tears started and I was so scared thinking, why me? I was basically a lab rat after then. I was prescribed to Entocort and Lialda. Switched my doses every doctor visit because my stool switched from soft to hard. The good news was, they caught it early. Although, they caught it early, doesn't mean it wasn't going to get worse. Which it did. I'm 19 now, for about a year I've been struggling with "hemorrhoid" problems, so I thought. I was then prescribed on anucort. The suppositories worked for a little while. I've complained enough about these hemorrhoids, I guess my dr. got tired of it, and my family. My family was like, oh it's supposed to hurt like that. Hemorrhoids are literally a pain in the butt. I didn't think hemorrhoids would hurt this bad. There was a lot of blood in the toilet, and also my underwear. This couldn't be normal, nothing worked. I also came to the point where I would cry and cry about it. So, April 2012, I was scheduled a sigmoidoscopy. Let me tell you.. Enemas are NOT my best friend. I couldn't do it. It probably took me about an hour and a half to finally do BOTH! After the procedure and everything, I find out that my crohn's had spread to my anal cavity and the excruciating pain was anal ulcers. My doctor told me that when he went to put the sigmoidoscope in, I jumped. If I felt that when I was sedated, then it was REEEALLY BAD. So, that's how I was introduced to Humira. Stopped all of my other drugs that I had to take 4 pills everyday to a shot that I'm SO afraid of just once every other week. Which does work. Me and the Humira is getting better. Maybe. lol. And of course like every other Crohn's patient I'm always feeling sick. I also have Migraines to top off all of this Crohn's mumbo jumbo. I'm always nauseated, my stomach hurts every now and then, and so does my head. :/ There's never a day where something is not wrong with me. I think that's everything. Sorry for the TMI and this loong novel you had to read. If you did read it all, thanks for your time. I also love reading other people's experience. One disease and so many different stories. My heart goes out to the ones who have this disease severely and who's sickness is much worse than mine. I was so embarrassed to even talk about all of this stuff and when I realized that they have websites and groups like this on Facebook and stuff, I was so interested. It's kind of almost like a young teenage girl obsessing over the hot new boy band. lol. Just want to let y'all know that I admire each and every one of you. Crohn's disease is serious and we fight this each and every day. Hugs to all! Just felt the need to share my story. I'm new to this site and I think I will use it more often and explore it more than I already did.
Thanks. :ghug:
Ever since I was born I had stomach problems. I couldn't stomach breast milk or the formula, so I was basically living off of pet milk (evaporated milk.) Yeah, I don't know. lol. Anyways, I was always a nervous child as I grew up. Almost everyday my stomach would hurt all the time, especially before school and sometimes I would cry before school. I was just lactose intolerant at the time. By the time I was 14 I've been noticing a change in my bowel movement. It would always be soft stool/diarrhea and it would always sound like I was exploding. (TMI, sorry.) lol. I just ignored it. About the time I turned 17 I noticed my symptoms have been getting worse. This was also around the time my parents were separated and about to get a divorce. I started have severe abdominal pain, blood in the stool, always tired. I finally decided to man up and go see a gastroenterologist. I told him all of my symptoms (I was embarrassed at the time) and he scheduled a colonoscopy. I was TERRIFIED! But honestly, the worst part of that was the day before with no eating and drinking that horrid drink! BLECK!!! I remember the day of my colonoscopy. Shaky, scared, nervous. As soon as I was lying on that hospital bed after I received my IV and waiting in a dim room alone for the exam room to be ready, tears were shedding. They had to get my Gastroenterologist to come and calm me down. I was worried for nothing. I was asleep the whole time and don't remember anything. Waited a week or so for the results. I get a call from my mom, since I wasn't old enough to receive a call from the nurse myself to get the results, the first thing I heard was "Welcome to the club, you have Crohn's Disease." (My mother and her father have it as well, so it's hereditary.) I didn't know what to say..More tears started and I was so scared thinking, why me? I was basically a lab rat after then. I was prescribed to Entocort and Lialda. Switched my doses every doctor visit because my stool switched from soft to hard. The good news was, they caught it early. Although, they caught it early, doesn't mean it wasn't going to get worse. Which it did. I'm 19 now, for about a year I've been struggling with "hemorrhoid" problems, so I thought. I was then prescribed on anucort. The suppositories worked for a little while. I've complained enough about these hemorrhoids, I guess my dr. got tired of it, and my family. My family was like, oh it's supposed to hurt like that. Hemorrhoids are literally a pain in the butt. I didn't think hemorrhoids would hurt this bad. There was a lot of blood in the toilet, and also my underwear. This couldn't be normal, nothing worked. I also came to the point where I would cry and cry about it. So, April 2012, I was scheduled a sigmoidoscopy. Let me tell you.. Enemas are NOT my best friend. I couldn't do it. It probably took me about an hour and a half to finally do BOTH! After the procedure and everything, I find out that my crohn's had spread to my anal cavity and the excruciating pain was anal ulcers. My doctor told me that when he went to put the sigmoidoscope in, I jumped. If I felt that when I was sedated, then it was REEEALLY BAD. So, that's how I was introduced to Humira. Stopped all of my other drugs that I had to take 4 pills everyday to a shot that I'm SO afraid of just once every other week. Which does work. Me and the Humira is getting better. Maybe. lol. And of course like every other Crohn's patient I'm always feeling sick. I also have Migraines to top off all of this Crohn's mumbo jumbo. I'm always nauseated, my stomach hurts every now and then, and so does my head. :/ There's never a day where something is not wrong with me. I think that's everything. Sorry for the TMI and this loong novel you had to read. If you did read it all, thanks for your time. I also love reading other people's experience. One disease and so many different stories. My heart goes out to the ones who have this disease severely and who's sickness is much worse than mine. I was so embarrassed to even talk about all of this stuff and when I realized that they have websites and groups like this on Facebook and stuff, I was so interested. It's kind of almost like a young teenage girl obsessing over the hot new boy band. lol. Just want to let y'all know that I admire each and every one of you. Crohn's disease is serious and we fight this each and every day. Hugs to all! Just felt the need to share my story. I'm new to this site and I think I will use it more often and explore it more than I already did.
Thanks. :ghug:
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