- Joined
- Jan 3, 2010
- Messages
- 27
Firstly, i would like to wish everyone a merry xmas and a happy new year!
My name is Adrian and i am 36 years old, even though this is my first post i have been a Chrohn's suffer for almost 20 years and my heart goes out to all suffers. I was 16 when i was first diagnosed with colitus and over the years it had developed in to Chrohn's. I have been on most medications and thankfully i have not undergone any surgery.
I have been informed that i have tried most medications to put the chrohns in rem
mission, i am currently on 'Infliximab' and would like to know anyone who is also trying this drug and there experiences. It has been working well but i have been suffering quite severly with some of the side effects such as: hair loss (all most completly), itchy rashes all over my body and blisters over my hands.
My consultant has informed me that if this medication does not work then there is no other alternative than surgery. Therefore, i would really appreciate anyone with information with regards to there experiences pre op and post op.
What limitations are invloved? Can i still take my 4 year old son swimming? How much time would i have to have off from work? Has anyone had part of there intenstine removed and stitched back together and then not had anymore problems?
I thank you in advance for all your information.
Adrian
My name is Adrian and i am 36 years old, even though this is my first post i have been a Chrohn's suffer for almost 20 years and my heart goes out to all suffers. I was 16 when i was first diagnosed with colitus and over the years it had developed in to Chrohn's. I have been on most medications and thankfully i have not undergone any surgery.
I have been informed that i have tried most medications to put the chrohns in rem
mission, i am currently on 'Infliximab' and would like to know anyone who is also trying this drug and there experiences. It has been working well but i have been suffering quite severly with some of the side effects such as: hair loss (all most completly), itchy rashes all over my body and blisters over my hands.
My consultant has informed me that if this medication does not work then there is no other alternative than surgery. Therefore, i would really appreciate anyone with information with regards to there experiences pre op and post op.
What limitations are invloved? Can i still take my 4 year old son swimming? How much time would i have to have off from work? Has anyone had part of there intenstine removed and stitched back together and then not had anymore problems?
I thank you in advance for all your information.
Adrian