My life

[Lorieross]

Hi everyone, my name is Lorie. I was originally diagnosed with Ulcerative Colitis 17 years ago. After 10 years of trying every type of medicine you can think of I had to have my colon removed, ending up with a j-pouch. This was in 2005. I really thought that all my problems would be gone, but for the next couple years I kept getting what I thought was pouchitis. Then 2 years ago I was having severe pains. After months of tests I found out that I have crohn's disease. And I may have been mis-diagnosed in the beginning. It has been 20 months that I have had a continuous flare, everything from fistulas to abcesses. I was on remicade for 6 months but it didn't help in getting me into remission. I am now waiting on the insurance so that I can start humira. "hopefully this week". My joints and muscles are killing me. After lots of research I am now trying natural healing remedies. (aloe Vera, fish oil, omega 3, 6, 9, flaxseed oil, slippery elm). I am hoping to see some difference soon. My body hurts!

 

[Jessi]

Welcome to the forum Lorie. I'm so sorry that your troubles continued! I honestly have that same fear lingering in the back of my mind ~ that I may have been misdiagnosed. Fingers crossed.

That's too bad that the Remicade isn't working for you. I hope that the Humira will do the trick. Hang in there. You're not alone. :hug:

 

[Lorieross]

Thank you Jessica, I am crossing my fingers that the humira works...

 

[Jessi]

Me too! I live right down the road from you, by the way! I'm up on the North East bench of Ogden, near Ben Lomond High. I graduated from Roy High in 1994.

 

[pain in the butt 2]

Welcome Sorry to here what your going through! Sure hope insurance will let you know right away. I can never really find the right words. But I'm hopeing the pain will let up for you. Hang in there and keep us posted.

 

[Lorieross]

Well Jessi, it is nice to meet you. I work in Ogden at DaVinci Academy. Boy it's a small world.
I am hoping to hear from my insurance within a couple days. I hope the humira works better for me than the remicade.

 

[Emily]

Gosh that's crazy that it could have been a misdiagnosis this whole time. Sorry your feeling so awful now, but I do really hope the Humira works for you!! Good luck and let us know what happens! :hug:

 

[shahad]

I am really sorry about that and I hope humira will work with you.

 

[blessedwithfour]

Hi Lorie, sorry to hear of all the new issues that have happened im just recently diagnosed myself with Crohns i tried the slippery elm and it made me so sick! at first i thought it was just me, but i tried it 3 times. how are yiu finding it? welcome

 

[Jessi]

Lorie, it really is a small world. I just resigned for medical reasons from Ogden Preparatory Academy, your next door neighbor. I love charter schools!!! All my kids still attend OPA.

 

[Lorieross]

Me again..

Thanks everyone for your support. I had my first set of shots a week ago. Still haven't seen a difference, but I know it takes time. I need to listen to my body and relax more. I tend to overdo it. And Jessi, it really s a small world. A lot of our students come from OPA, it is a really good school. I have had moments when I was ready to resign because of medical issues but the school has been so good to me. I just go home if I am having a bad day. It is good to ave a understanding employer.

 

[Jessi]

I'm so happy you have a good system at your school. They were really good to me at OPA, but I just felt so guilty having to leave the kids unattended every time I had to run to the loo.

Are you joining our Utah support group on December 10th? Hope so!!!