whats "haha this" ???????????????????????????
I quoted Dexky saying happy birthday to Patrick's immune system, then essentially said "Ditto!" because I thought it was nice and well said.
whats "haha this" ???????????????????????????
How exciting!! I just stumbled on your blog today, and read it start to finish as quickly as I could! I'm so excited for you and selfishly so intrigued for myself... how did you get started in all of this? Did your home GI refer you or did you find the trial on your own?
Thank you so much for blogging your journey!
Thank you! Dr. Burt wasn't concerned in the slightest about a cold or anything. Things like that seem to be somewhat normal and they're completely on top of everything if it changed. My job is to tell them anything different I notice, and they check it out to see if it requires further attention or if it's nothing to worry about.
Day +12. Should be home within a week.
http://mypsct.blogspot.com/2011/09/day-12.html
Ziggy,
Things still going great for you? Still crohn's free? Still no meds?
Please keep us all posted. All of us with young children are closely watching all this stem cell stuff. Our kiddos can't participate, but they will benefit someday from all your bravery!!! You're in my prayers.
Thanks Patrick! Do you have any diet restrictions?
Patrick,
So glad to hear that you're doing well. Its so fantastic!
I had a question for you about Dr Burt, (this has probably been mentioned somewhere), but does this stem cell transplant only help crohn's patients or is it being done for Ulcerative Colitis too? My son's aunt has UC and her GI is proposing a removal of her large intestine.
Thanks for the update! Good to hear that you are feeling ok considering what happened last week! Would you mind sharing what the "chimerism" blood test is? How often do they check your white blood count? Thanks.
Ashley
What's the reasoning behind no rare beef?No restrictions. It's mostly a common sense and comfort thing. I'll be choosing to avoid salad bars and cooking beef to medium, a bit more than I used to.
It didn't dawn on me until you mentioned this that they're creating a chimera immune system. AMAZING!The chimerism testing will show what percentage of my immune system I got from the cord blood graft that took by comparing it to chimerism testing they did pre-transplant. They do the same thorough set of labs each time so weekly for a bit, then every other week, then monthly.
For steak, I guess it isn't necessary to cook too much as the bacteria should only be on the outside, but I'd rather be safe than sorry. Ground beef needs to be cooked until there's no pink since you can't be sure what has picked up bacteria.What's the reasoning behind no rare beef?
That is just some of what I read. My only question is - why do they implant 2 different (cord blood) immune systems in Efdee's transplant. Why not only use one? Wouldnt the one reject the other - why do they implant 2 different immune systems back into you?
Ashley
Effdee, does the chemo have any lasting side effects on you?