So, I never thought I'd ever join a crohns forum, but times change right? Anyways, I'd like to share my story and ask for some help as well. Thank you.
I was diagnosed with Crohn's disease when I was 6 years old. After that I have a successful journey with humira, but when I neared my 13 birthday, it stoped working. In fact, I spent my 13 birthday in the hospital. From then I switched meds to entivio, which also didn't work for me. I have been through a lot this last year.
I when through pain and struggles finding medications that work for a year and still to this day. I've have reactions to remacade. I've been poked with every needle in the book. I've had 2 surgeries for ostomys, 1 of which was on the Fourth of July. I've have so many hospital stays I can't even count how many I've had in the last year. I become dehydrated very easily so when I get my blood drawn, I get poked at least 6 times. I had to drink ensure drinks for 12 weeks. Nothing else. No food. Just 8 bottles of ensure a day. I had giant ulcers in my large intestine, I had to have 12cm if colon removed. All this made my mind think about a way to end everything.
I've convinced myself that I'm never getting better. I will never be in remission. I will never be okay. I will always feel pain. I even thought about suicide and called myself names because I know I'd never have the courage to kill myself. But sometimes I think about suicide a little more and think it'll put me out of my pain.
I also have a rough time in school. I have major trust issues due to having friends and then turning their backs to me. I learned that I can't trust anyone. Which is another reason I think about suicide.
Right now, I am in pain, wondering if there is any other solution to the problems I have. I know so much people have much more severe cases than I do and I apologize to them. I am 14 years old and I just want some help. Many of you guys are older than I am and I just want some advice to help me push through this. Thank you.
I was diagnosed with Crohn's disease when I was 6 years old. After that I have a successful journey with humira, but when I neared my 13 birthday, it stoped working. In fact, I spent my 13 birthday in the hospital. From then I switched meds to entivio, which also didn't work for me. I have been through a lot this last year.
I when through pain and struggles finding medications that work for a year and still to this day. I've have reactions to remacade. I've been poked with every needle in the book. I've had 2 surgeries for ostomys, 1 of which was on the Fourth of July. I've have so many hospital stays I can't even count how many I've had in the last year. I become dehydrated very easily so when I get my blood drawn, I get poked at least 6 times. I had to drink ensure drinks for 12 weeks. Nothing else. No food. Just 8 bottles of ensure a day. I had giant ulcers in my large intestine, I had to have 12cm if colon removed. All this made my mind think about a way to end everything.
I've convinced myself that I'm never getting better. I will never be in remission. I will never be okay. I will always feel pain. I even thought about suicide and called myself names because I know I'd never have the courage to kill myself. But sometimes I think about suicide a little more and think it'll put me out of my pain.
I also have a rough time in school. I have major trust issues due to having friends and then turning their backs to me. I learned that I can't trust anyone. Which is another reason I think about suicide.
Right now, I am in pain, wondering if there is any other solution to the problems I have. I know so much people have much more severe cases than I do and I apologize to them. I am 14 years old and I just want some help. Many of you guys are older than I am and I just want some advice to help me push through this. Thank you.
. Multiple feeding tubes because she became so severely malnourished - she even had to go to school (high school) with an NJ tube for 3 months. She was on 85% formula, 15% food. Now she has a G and a J tube, which have made life much easier. 
