my story / how to stay healthy when i have a new baby
hi everyone, i'm new to the forum so here's my story/current sitch...
i was diagnosed with crohn's disease during my freshman year of college after spending all of junior high and high school as the pale, skinny kid, but never knowing what was wrong. i'm 32 now and for the most part i've been alright. i've done asacol, entocort, prednisone, 6mp, and megace, with 6mp being my current medication/poison of choice. i had bowel resection surgery in 2007 which helped immensely, but alas, seems to have been a temporary fix.
thankfully my work has been almost exclusively in an office environment so i've been able to save myself from some of the physical exertion that comes with a retail, or manual labor job. but i do love to play sports and work in my yard so that gets frustrating sometimes when i have to limit those activities.
so that's my history in a nutshell, but the reason i joined the forum is to hopefully get some advice.
you see, my wife and i just had our first child less than 2 weeks ago, and it's great, i love her to death, and i'm so happy to be a first time dad. but, and there's always a but, as most new parents know, sleeping through the night is pretty much out of the question. the most uninterrupted sleep i've had since she was born was about 4.5 hours, which i'm told is great for a newborn, but not for someone with crohn's.
my energy level is extremely low, i'm losing weight because i'm so tired that i don't feel like making a decent meal, and now my insides are starting to revolt as well, draining me even more!
basically, i don't know what to do. i want to help my wife as much as i can to take care of our baby, but i feel like i'm slowly killing myself when i sacrifice sleep.
i'm hoping someone here can relate to my situation and offer some advise as to how to manage my disease as well as my responsibility as a new dad.
thanks!
hi everyone, i'm new to the forum so here's my story/current sitch...
i was diagnosed with crohn's disease during my freshman year of college after spending all of junior high and high school as the pale, skinny kid, but never knowing what was wrong. i'm 32 now and for the most part i've been alright. i've done asacol, entocort, prednisone, 6mp, and megace, with 6mp being my current medication/poison of choice. i had bowel resection surgery in 2007 which helped immensely, but alas, seems to have been a temporary fix.
thankfully my work has been almost exclusively in an office environment so i've been able to save myself from some of the physical exertion that comes with a retail, or manual labor job. but i do love to play sports and work in my yard so that gets frustrating sometimes when i have to limit those activities.
so that's my history in a nutshell, but the reason i joined the forum is to hopefully get some advice.
you see, my wife and i just had our first child less than 2 weeks ago, and it's great, i love her to death, and i'm so happy to be a first time dad. but, and there's always a but, as most new parents know, sleeping through the night is pretty much out of the question. the most uninterrupted sleep i've had since she was born was about 4.5 hours, which i'm told is great for a newborn, but not for someone with crohn's.
my energy level is extremely low, i'm losing weight because i'm so tired that i don't feel like making a decent meal, and now my insides are starting to revolt as well, draining me even more!
basically, i don't know what to do. i want to help my wife as much as i can to take care of our baby, but i feel like i'm slowly killing myself when i sacrifice sleep.
i'm hoping someone here can relate to my situation and offer some advise as to how to manage my disease as well as my responsibility as a new dad.
thanks!