- Joined
- Jul 9, 2016
- Messages
- 3
:sign0144: So I've had IBS problems for over ten years. However, in the last year and half my IBS problems went from mild annoyance to severe everyday ruin my life problems. I also was changed from IBS to IBSD in this time as well. I get severe cramping several times a day with BM, and sometimes without. I'm often bloated and severely gassy no matter what I eat. It often feels like someone is twisting knives through my gut, and I often get severally fatigued during severe episodes. What triggered this change I don't know. I know I was laid off before this major change happened but other then that I'm at a loss for why I went from mild IBS symptoms to very overwhelmingly severe.
Some other major health issues I have have that complicate matters are that I have hyperthyroidism and almost 2 and half years ago had to have my thyroid removed because of more then 6 or 7 very large oddly shaped nodules. They were test for cancer and were benign. Because of this I now also have a sleep issue as well that is currently unknown. I sleep anywhere from 10 to 12 hours. Not kidding and worst I can't wake up. Waking up is horrible. It's like I have jet lag and everything is out of whack. I've told the doctors this. My neuro doctor told me to not stress so much and be more about the easy life. walks and such...okay.... Only I saw him because of the nerve pain and migraines but he didn't address either, lol. Waste of time, and money.
I also have very low vitamin D levels and am on a 5000 iu daily supplement.It took over three years to get my vitamin D level to rise to normal levels even with taking the supplement, and because of this they have me still taking it. I also am plagued with horrible Migraines. I'm on Topamax to control my almost daily migraines. I know this site is for digestive concerns but figured the more information I provide the better.
I recently saw an allergy specialist and I was off the charts with immunology reaction for the RAST test (skin prick test). They because of my severe digestive issues tested for food and airborne allergies. I came back overwhelmingly with airborne (not surprisingly) and the food was a hit for 8 food but only mildly so she said I'd have to do an elimination diet of those food. The foods that reacted were carrot, onion, corn, crab, peanut, sesame seed, mustard food, and celery. So far I've only manage to identify two possible real food allergies. Those being corn and onion. Onion being because when I read up online its actually a bigger family including leaks, and garlic.
I for the last 4 years have avoided all red meat thinking I was sensitive to it since I also have no gallbladder. When come to find out through this allergy testing it wasn't the red meat but the garlic my husband puts on the hamburger and steaks. :ack: As far as the corn that one I figured out from doing my best to eliminate all corn products. That's hard too. It's in everything almost. :runaway:
Anyway by avoiding that I've figured out that my stomach cramping seams less but not completely gone, but my migraines are gone... and actually didn't trigger during my cycle. Sorry if that's TMI for some.
Doing my best to continue to avoid those to items at least because I really don't eat the others much.
My symptoms can get pretty severe too so I'm hoping my allergy doctor is on the right tract because the GI doctors just keep putting on med after med. I've pretty much been on so far bentil and still on that one 4 times a day, then they added another that I can't remember, Then they tried the new Viberzi. Oh Viberzi that's a story in itself. Apparently I'm either allergic to it or because my previous GI doctor put me on the wrong dosing 100mg ( should have been 75, I have no gallbladder) caused a reaction that was severe itching and irritability of my lower rectum. I couldn't go. I started having pencil string stools and and sever lower pain, so they put me on a liquid diet. I developed a fever. The new GI doctor named Dr. Akbar ( It's a trap) nurses had me continue liquid diet at home until I got so bad they said to go to the ER. Worst experience EVER!!!
I never want to go to an ER again for GI issues. They treated me horrible, and I actually overheard the front desk nurse tell his friends that came in to be seen for something that don't worry it won't be long we just a a mentally ill lady and a lady with a cough. hmm well I could easily figure out I wasn't lady with a cough. Then 3 hours later when I was seen the ER doctor literally told me that they don't see these problems as concerns but we'll run test. They ended up sending me home with a generic prescription and feeling humiliated without answers. They didn't even know what Viberzi was? I finally got into my doctor to be seen because of a cancelation and they had me stop the Viberzi and started me on Welchol, measured me that this wouldn't last forever. Somehow I don't trust that. Then I'm pretty sure I experienced withdrawal too because for two weeks after I stopped taking it I had sever chills and would not be able to get warm for anything. I was severely irritable. I mean idk maybe it wasn't but jeez all I know is since I haven't felt that way.
Anyways pretty much every time they think they get control of my IBSD I start having major episodes again. Did I mention that I'm in school to be an art teacher. I already have my bachelors of fine arts so its just a certificate I'm attaining to teach. However, at my rate I'm worried I won't be able to work. Let alone make it through the day not having to leave a class, and that's just not acceptable. You can't talk about this health issue either to people. They just don't get it. I mean people you work with or friends. I'm sick of feeling sick. Sleeping my life away. Running to the bathroom all day. Memorizing where the restrooms are. Planning my route or day based on where the restrooms might be or won't be. Over that. :voodoo:
The most recent health try by my GI doctor in attempt to give me a better life they said was Xafaxan. Took several weeks to get it approved but approved it was. I've finished that but even though I'm not having daily diarrhea I'm still having stomach cramping and the less occasion rush to the bathroom. It boost 6 weeks to 6 months of reliefs. We'll see. I'll let you know I guess between that and the new diet how affective it is. Anyways this is it. My story.
Oh I forgot to mention. I have a good amount of stress. I know we're supposed to avoid that but for me that's just not possible. My son has autism, and we are working on everything so hopefully the stress will naturally come down as he becomes more cooperative. Anyways this not about him. He's awesome but stress is a fact of life for us ASD parents. Just thought I should mention it as it is a component to my story. A big one. Okay now that's my story. Sorry if it was rather long. :soledance:
Some other major health issues I have have that complicate matters are that I have hyperthyroidism and almost 2 and half years ago had to have my thyroid removed because of more then 6 or 7 very large oddly shaped nodules. They were test for cancer and were benign. Because of this I now also have a sleep issue as well that is currently unknown. I sleep anywhere from 10 to 12 hours. Not kidding and worst I can't wake up. Waking up is horrible. It's like I have jet lag and everything is out of whack. I've told the doctors this. My neuro doctor told me to not stress so much and be more about the easy life. walks and such...okay.... Only I saw him because of the nerve pain and migraines but he didn't address either, lol. Waste of time, and money.
I also have very low vitamin D levels and am on a 5000 iu daily supplement.It took over three years to get my vitamin D level to rise to normal levels even with taking the supplement, and because of this they have me still taking it. I also am plagued with horrible Migraines. I'm on Topamax to control my almost daily migraines. I know this site is for digestive concerns but figured the more information I provide the better.
I recently saw an allergy specialist and I was off the charts with immunology reaction for the RAST test (skin prick test). They because of my severe digestive issues tested for food and airborne allergies. I came back overwhelmingly with airborne (not surprisingly) and the food was a hit for 8 food but only mildly so she said I'd have to do an elimination diet of those food. The foods that reacted were carrot, onion, corn, crab, peanut, sesame seed, mustard food, and celery. So far I've only manage to identify two possible real food allergies. Those being corn and onion. Onion being because when I read up online its actually a bigger family including leaks, and garlic.
I for the last 4 years have avoided all red meat thinking I was sensitive to it since I also have no gallbladder. When come to find out through this allergy testing it wasn't the red meat but the garlic my husband puts on the hamburger and steaks. :ack: As far as the corn that one I figured out from doing my best to eliminate all corn products. That's hard too. It's in everything almost. :runaway:
Anyway by avoiding that I've figured out that my stomach cramping seams less but not completely gone, but my migraines are gone... and actually didn't trigger during my cycle. Sorry if that's TMI for some.
Doing my best to continue to avoid those to items at least because I really don't eat the others much. My symptoms can get pretty severe too so I'm hoping my allergy doctor is on the right tract because the GI doctors just keep putting on med after med. I've pretty much been on so far bentil and still on that one 4 times a day, then they added another that I can't remember, Then they tried the new Viberzi. Oh Viberzi that's a story in itself. Apparently I'm either allergic to it or because my previous GI doctor put me on the wrong dosing 100mg ( should have been 75, I have no gallbladder) caused a reaction that was severe itching and irritability of my lower rectum. I couldn't go. I started having pencil string stools and and sever lower pain, so they put me on a liquid diet. I developed a fever. The new GI doctor named Dr. Akbar ( It's a trap) nurses had me continue liquid diet at home until I got so bad they said to go to the ER. Worst experience EVER!!!
I never want to go to an ER again for GI issues. They treated me horrible, and I actually overheard the front desk nurse tell his friends that came in to be seen for something that don't worry it won't be long we just a a mentally ill lady and a lady with a cough. hmm well I could easily figure out I wasn't lady with a cough. Then 3 hours later when I was seen the ER doctor literally told me that they don't see these problems as concerns but we'll run test. They ended up sending me home with a generic prescription and feeling humiliated without answers. They didn't even know what Viberzi was? I finally got into my doctor to be seen because of a cancelation and they had me stop the Viberzi and started me on Welchol, measured me that this wouldn't last forever. Somehow I don't trust that. Then I'm pretty sure I experienced withdrawal too because for two weeks after I stopped taking it I had sever chills and would not be able to get warm for anything. I was severely irritable. I mean idk maybe it wasn't but jeez all I know is since I haven't felt that way.
Anyways pretty much every time they think they get control of my IBSD I start having major episodes again. Did I mention that I'm in school to be an art teacher. I already have my bachelors of fine arts so its just a certificate I'm attaining to teach. However, at my rate I'm worried I won't be able to work. Let alone make it through the day not having to leave a class, and that's just not acceptable. You can't talk about this health issue either to people. They just don't get it. I mean people you work with or friends. I'm sick of feeling sick. Sleeping my life away. Running to the bathroom all day. Memorizing where the restrooms are. Planning my route or day based on where the restrooms might be or won't be. Over that. :voodoo:
The most recent health try by my GI doctor in attempt to give me a better life they said was Xafaxan. Took several weeks to get it approved but approved it was. I've finished that but even though I'm not having daily diarrhea I'm still having stomach cramping and the less occasion rush to the bathroom. It boost 6 weeks to 6 months of reliefs. We'll see. I'll let you know I guess between that and the new diet how affective it is. Anyways this is it. My story.
Oh I forgot to mention. I have a good amount of stress. I know we're supposed to avoid that but for me that's just not possible. My son has autism, and we are working on everything so hopefully the stress will naturally come down as he becomes more cooperative. Anyways this not about him. He's awesome but stress is a fact of life for us ASD parents. Just thought I should mention it as it is a component to my story. A big one. Okay now that's my story. Sorry if it was rather long. :soledance:
