I wanted to come here and tell my story and get the opinion of those that know.
I am a 43 years old woman. Twenty year history of low Ferritin level of 2-6, that doesn't resolve with supplements. About 10 years ago I began to get chronic ear infections that were so painful they went into my jaw. Doctors gave me antibiotics for three years. Never helped, would just return when through. So I quit taking them. I may of had symptoms like a noisey stomach before this, really can't remember. I did suffer from high hair shedding since a teenager.
From this point forward, it seemed to be one thing or another. teeth began to shift/wear, slurring words, forget where I was going, heart paltations, back aches, a fluttering feeling under left rib cage became a raw colon area, great hair loss every six months for six months, very dry skin/eczema, hands and feet broke out in water blisters, red itchy hives rotating around body, brain fog and the list goes on and on. Doctors would throw out all different diagnoses. I knew this was all connected because it all began at the same time and just grew.
I became so fed up at doctors telling me basically all blood tests are normal, take some iron. I started my own research and did a couple tests on my own. Comphensive Stool Test through Metamatrics revealed low good bacteria, nothing parasites or anything, low enzymes but also a Gliadin intolerance, sky high.
I also did food allergy testing that revealed all diary, and eggs off the chart.
I had already removed all grains at this point and noticed great improvement. Then went a head and removed dairy. still improved. My problem is I cave about every three weeks, just when symptoms fade and I feel great. Then they return, I notice I get brain fog immediately after eat Gluten. Four days after exsposure, symptoms peak. I get a pulse/whooshing sound in my head, back hurts to much to even lay in bed, bone noises in lower legs, stomach looks pregnant, dizzy, forgetful, electric feeling near small intestine, my gums feel like they go limp and detach from my teeth.The ribbed area right behind front top teeth is no longer ribbed but flat and smooth. All this resolves after three weeks of diet modification.
I had a Celiac test last years that came back negative. Dad went his entire life bleeding from his colon, didn't like doctors and dealt with it. As an infant, he suffered chronic ear problems as well. Actually had a bone behind his ear removed. When my symptoms began he was finally diagnosed with advanced Colitis, had his colon removed and died because he didn't gain weight. I wonder now if he was really a Celica because I remember him mentions different symptoms to my mother.
I finally spoke with a GI doctor last week and he said the high likely would be Celiac or Crohns since Colitis usually involves bleeding, I do not have bleeding. He recommended a DNA test to see if I have the genes for Celiac and Colonoscopy/EGD. But I know you have to eat grains for sometime before this, in order for a Colonoscopy to be accurate. I would be in great pain everywhere if I did that.
I would like anyones opinion on my symptoms. If I had to choose between the two I would rather it be Celiac.
But do any of you noticed brain effects with Crohns? This is what makes me wonder. I have read many Celiac stories, it can effect any part of the body.
Sorry, for miss spelled words.....
I am a 43 years old woman. Twenty year history of low Ferritin level of 2-6, that doesn't resolve with supplements. About 10 years ago I began to get chronic ear infections that were so painful they went into my jaw. Doctors gave me antibiotics for three years. Never helped, would just return when through. So I quit taking them. I may of had symptoms like a noisey stomach before this, really can't remember. I did suffer from high hair shedding since a teenager.
From this point forward, it seemed to be one thing or another. teeth began to shift/wear, slurring words, forget where I was going, heart paltations, back aches, a fluttering feeling under left rib cage became a raw colon area, great hair loss every six months for six months, very dry skin/eczema, hands and feet broke out in water blisters, red itchy hives rotating around body, brain fog and the list goes on and on. Doctors would throw out all different diagnoses. I knew this was all connected because it all began at the same time and just grew.
I became so fed up at doctors telling me basically all blood tests are normal, take some iron. I started my own research and did a couple tests on my own. Comphensive Stool Test through Metamatrics revealed low good bacteria, nothing parasites or anything, low enzymes but also a Gliadin intolerance, sky high.
I also did food allergy testing that revealed all diary, and eggs off the chart.
I had already removed all grains at this point and noticed great improvement. Then went a head and removed dairy. still improved. My problem is I cave about every three weeks, just when symptoms fade and I feel great. Then they return, I notice I get brain fog immediately after eat Gluten. Four days after exsposure, symptoms peak. I get a pulse/whooshing sound in my head, back hurts to much to even lay in bed, bone noises in lower legs, stomach looks pregnant, dizzy, forgetful, electric feeling near small intestine, my gums feel like they go limp and detach from my teeth.The ribbed area right behind front top teeth is no longer ribbed but flat and smooth. All this resolves after three weeks of diet modification.
I had a Celiac test last years that came back negative. Dad went his entire life bleeding from his colon, didn't like doctors and dealt with it. As an infant, he suffered chronic ear problems as well. Actually had a bone behind his ear removed. When my symptoms began he was finally diagnosed with advanced Colitis, had his colon removed and died because he didn't gain weight. I wonder now if he was really a Celica because I remember him mentions different symptoms to my mother.
I finally spoke with a GI doctor last week and he said the high likely would be Celiac or Crohns since Colitis usually involves bleeding, I do not have bleeding. He recommended a DNA test to see if I have the genes for Celiac and Colonoscopy/EGD. But I know you have to eat grains for sometime before this, in order for a Colonoscopy to be accurate. I would be in great pain everywhere if I did that.
I would like anyones opinion on my symptoms. If I had to choose between the two I would rather it be Celiac.
But do any of you noticed brain effects with Crohns? This is what makes me wonder. I have read many Celiac stories, it can effect any part of the body.
Sorry, for miss spelled words.....
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