My story with Crohn's

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Mar 24, 2011
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My story,

Ok, I've had problems for many years in gastrointestinal region, and went to my doctor about it many times who just put it off as hemorroids or something and to not be worried about it, then I went to see some specialists about the "polyps" they had found and that didn't really go anywhere either. Doctors also said I had salmonella and prescribed me with tons of antibiotics, the exact opposite of what I needed as it was taking away any good bacteria I actually had left in my colon. After a lot of frustration and pain, I changed family doctors who finally had me going to see more of the appropriate specialists where I had a "colonoscopy" finally and they found all kinds of problems down there. At the same time as seing specialists, I was also seeing different naturopaths and was put on some strong probiotics, which were helping with the pain a little. I was finally diagnosed with Crohn's and was put on 2000mg of Pentasa twice daily. At first, I had found that the results were great especially with my upcoming wedding coming up and was finally having solid stools and was strong enough to start to get healthy (P.S. I am a full-time teacher in now my 6th year of teaching, although with the amount I am sick, I don't know if I actually am full-time, I currently teach my third year of phys ed and health to grade 7 and 8's which is ironic considering my "healthy" state). Ok, so the pentasa worked really well for a bit, then I became really nautious on it so i was prescribed pantoprazole, which I don't think ever really helped. I was also put on prednisone, but hated the effects and stopped taking them. When I don't feel well, my doctor and specialist just told me to up the amount of pentasa I was taking and I was also prescribed with a pentasa suppository which helps but not as well as I think it should. I had food allergy testing at a naturopath and stay away from gluten, dairy (I eat some goat yogurt and cheeses, maybe shouldn't??) meat (I eat some seafood), and corn products as well as inflammatory vegetables like tomatoes, cauliflower, cabbage, onions, garlic, peppers, however I don't know how well that all does since I am still in pain quite often. I am pretty good about how strict I am on my diet but think that I could possibly be missing something. I was recently prescribed with an anti-anxiety medication which I asked for because I thought since I am a high energy high-anxiety person, I thought, maybe this would help lessen how often I feel crappy, don't know if this was a good idea or not. I have taken accupuncture also for my crohn's and although I don't think it helped with that, it definitely helped with my sleeping patterns. What else? I find Vega is a great natural supplement for my smoothies in teh morning as it has all my nutritional needs. I also take liquid B complex from my nauturopath, an essential fatty acid liquid, vitamin a and d drops as well as an iron supplement called "spatone" which is good on the stomach. I have not been great lately about taking my iron as it tastes like crap. So that's my story. I still don't feel great. I would like eventually to try to go natural and get off medication but I still seem to be sick so often (showing how little my meds are doing I guess). My stools are slowly returning to where they were a few years ago without the pentasa and I have missed so much work it stresses me out because, well, I don't get paid, but my health is most important. This is a crazy condition that is very aggravating to try and control. Thanks for listening.
 
Hi April! It is pretty difficult to figure out which foods are bothering you sometimes. I really wish there was just a definite “good foods” and “bad foods” list that worked for all of us Crohnies, but unfortunately it doesn’t work that way. If you are flaring pretty badly, sometimes it helps to go on a liquid diet (incorporating Ensure into it if you can tolerate that) for about three days, just to let the bowels rest. It is torture, but it is sort of my Dr’s go-to thing.

I don’t know how you Crohnie teachers do it! There are a few of you in this forum. My sister is a teacher, and she rarely has time for a pee break, let alone a full-on bathroom break.

Welcome to the forum! Hopefully others will come on with advice for you.
 
Thanks so much. I know a liquid diet is awful as I LOVE food. But you are right, I will definitely start my liquid diet now. I use Vega in a smoothie with almond milk, banana and blueberry as I think Ensure has dairy??? Maybe not, I've actually never tried it
 
Hi April and welcome! I am sorry you aren't feeling well. Have you had any recent tests to see if the Pentasa has helped the inflammation? Because, if it isn't doing the trick, perhaps it is time to try something else.

And, like Nicole, I give you LOTS of credit for being a Crohnie Teacher! I also used to teach 7th grade (English). I took some time off after getting married to try the business world, but I had all intentions of returning to the field one day. But now I am not so sure. Like Nicole said, I never had a free moment, so I don't know how I'd get through a day now! I give you credit, girl!

I really hope you find something that works for you soon, so you can start feeling better! I look forward to seeing you around the forum!
 
Thank you for your replies. I have also thought about getting out of teaching and going into the business world. I don't know if I have these thoughts of leaving teaching because I feel crappy all the time or the fact that I just want to try something new.
 
Hi April,
Like Jill, I'm wondering why your doc is not moving to something stronger? Humira seems to be pretty popular when the next step is needed.

But, from your story, it sounds like you have a really good handle on your diet, vitamins, and supplements.

It's easy to get frustrated and want to go off the meds, but that may not be the best idea. Things can be getting worse without causing pain. That was always my story.

Good luck in finding what will work for you!
 
Thank you for your replies. I have also thought about getting out of teaching and going into the business world. I don't know if I have these thoughts of leaving teaching because I feel crappy all the time or the fact that I just want to try something new.

Well, teaching is a very demanding job even when you are healthy. I left the field before I was diagnosed because it was just taking a toll on me - at school before 7am to prep, stay until 6pm to meet with students and do more prep, and stay up until 10pm to grade. It was too much. I put a lot of the pressure on myself (I am an over the top type A personality), and knew I needed to step away for a bit. I have been working in an office for over 3 years and love it. So much more flexibility and much less stress. And it certainly works out better now with my Crohn's - I can go to the bathroom whenever I need to! And if I have to take off because I am sick, I don't have to worry about sub plans! But I do miss the kids, benefits, and summers off.

You should write out a pro and con list to see if it perhaps is time to try a new career. It can be stressful trying something new, but it might be worth it!
 
HI April and welcome!

Hope you start to find some relief soon. There's lots of options out there in both pharmaceutical treatments and complimentary medicine to try.

Lots of good info on both here on the forum and people who have been thru it all!

- Amy
 

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