My name is Joanne and im 36 yrs old, I live in Perth in Scotland and I have just been diagnosed with Crohns.
Back in Feb this year after having severe abdominal pains and after 5 days of constant pain I called the out of hours doctor to cut along story short he admitted me too hospital with what he thought was 'peritonitis'.
During my stay in hospital I had many tests which included colonoscopy tests, ultrasound, MRI & a Barium Follow Through, some tests were ok and some were not nice at all I was told that I might have 'crohns disease' the doctors also detected that I had a restriction and narrowing of the bowel from the small bowel to the large bowel and they thought that this could be corrected with steroids, after a week and further tests the restriction was still there, so the only other option was surgery.
The consultants were unsure what I had and at times threw lots of 'this might be wrong with you' which got me very confused and scared.
After 5 weeks of constant prodding and poking I had my 3rd barium meal and a grey grained section and a squashed tube was located on a part of my bowel, the surgeon made the decesion to remove the restriction on my bowel, but when I was opened up the striction had popped back to its normal way :confused2:
The consultants were still not sure if I had Crohns Disease or not :ymad:
I was in hospital for a little over 6 weeks and when I was discharged still nothing was found to be the cause of my pain :confused2::confused2:
From April to Oct I have had more tests and visits to the hospital and I have still been in some pain, some days more pain than others, my last appointment was on the 11th Nov and it was then that I was told that they are 99% sure that I have Crohns, I picked up my first lot of steroids and start them tomorrow morning, Im a little scared of these steroids as I dont want to put on any weight.
I stopped smoking while I was in hospital and have put on a stone and a half because of it, when I left the hospital I was 10 stone 3 and very happy but now my weight is creeping up towards 12 stone, im very annoyed with myself and the pressure of putting on more weight is getting me down.
I cant get my head around whats happening too me as I have never been this unwell before. I always assumed that people who suffer from Crohns are very slim, im NOT! my stomach is constantly huge and swollen, im always tired and have no energy to do anything, im always in bed early.
I have a months supply of Budesonide of which Im too take 3 tablets three times a day, my next appointment with the consultant is the 9th Dec and then the dosage will go up but the tablets I take will go down to 2 a day.
Im also waiting for another colonoscopy to come through the letterbox, again this is stressing me out as the last one I had they had too stop as the camera kept hitting adhesions and it was too painful for them too carry on, Im also waiting too have another MRI scan as well and if this does not help the last soloution is more flipping surgery!!
Im looking forward too reading all the posts on here and hopefully this forum will be able to help me get my head round, what I have too do to get through all this.
Sorry for the long post but im hoping you peeps can put me straight.
Jo
Back in Feb this year after having severe abdominal pains and after 5 days of constant pain I called the out of hours doctor to cut along story short he admitted me too hospital with what he thought was 'peritonitis'.
During my stay in hospital I had many tests which included colonoscopy tests, ultrasound, MRI & a Barium Follow Through, some tests were ok and some were not nice at all I was told that I might have 'crohns disease' the doctors also detected that I had a restriction and narrowing of the bowel from the small bowel to the large bowel and they thought that this could be corrected with steroids, after a week and further tests the restriction was still there, so the only other option was surgery.
The consultants were unsure what I had and at times threw lots of 'this might be wrong with you' which got me very confused and scared.
After 5 weeks of constant prodding and poking I had my 3rd barium meal and a grey grained section and a squashed tube was located on a part of my bowel, the surgeon made the decesion to remove the restriction on my bowel, but when I was opened up the striction had popped back to its normal way :confused2:
The consultants were still not sure if I had Crohns Disease or not :ymad:
I was in hospital for a little over 6 weeks and when I was discharged still nothing was found to be the cause of my pain :confused2::confused2:
From April to Oct I have had more tests and visits to the hospital and I have still been in some pain, some days more pain than others, my last appointment was on the 11th Nov and it was then that I was told that they are 99% sure that I have Crohns, I picked up my first lot of steroids and start them tomorrow morning, Im a little scared of these steroids as I dont want to put on any weight.
I stopped smoking while I was in hospital and have put on a stone and a half because of it, when I left the hospital I was 10 stone 3 and very happy but now my weight is creeping up towards 12 stone, im very annoyed with myself and the pressure of putting on more weight is getting me down.
I cant get my head around whats happening too me as I have never been this unwell before. I always assumed that people who suffer from Crohns are very slim, im NOT! my stomach is constantly huge and swollen, im always tired and have no energy to do anything, im always in bed early.
I have a months supply of Budesonide of which Im too take 3 tablets three times a day, my next appointment with the consultant is the 9th Dec and then the dosage will go up but the tablets I take will go down to 2 a day.
Im also waiting for another colonoscopy to come through the letterbox, again this is stressing me out as the last one I had they had too stop as the camera kept hitting adhesions and it was too painful for them too carry on, Im also waiting too have another MRI scan as well and if this does not help the last soloution is more flipping surgery!!
Im looking forward too reading all the posts on here and hopefully this forum will be able to help me get my head round, what I have too do to get through all this.
Sorry for the long post but im hoping you peeps can put me straight.
Jo
