I am required to tell my story before I can vent so here I go. Sorry if this is quickly written as at the moment I'm not feeling too chatty. I dropped out of highschool freshman year due to increasing pain. I had been misdiagnosed all throughout middle school being told that it was a flu or a bug and that the stomach aches would pass. They didn't and I ended up staying home a lot being unable to get the credit I needed to pass freshman year. I then started drinking a lot once I dropped out and it did not help the stomach pain at all. Short after I was diagnosed with Crohn's Disease. Sadly to say I was no supprised because I had done a lot of research and it all made sense. I was crushed though. After the diasnoses my symptoms started to worsen. I stopped drinking, stopped smoking cigarettes etc. I have been hospitalized too many times to count in the past few years. Or to even remember. I have had flare after flare and a result have lost all my friends basically except my boyfriend whom I live with and have been with for 2 years. I have been experiencing a lot of serious joint pain in the past year or so but my doctors tell me it's something that can be expected with crohn's and that the Remicade may help. I am constantly tired, have completely lost my sex drive and have developed a short temper/anxiety. I was depressed a lot growing up and was on various adhd medications. I have been on Remicade for a few years now and they have had to up my dose 3 times. I'm currently on 800 mg. I had tried imuran but I had a severe reaction to it where I my knees where in so much pain I could not walk and had a scary high fever among other side effects. I have a spot in my lower ileum that cannot shake the inflamtion. I am now doing 25mg methotrexate injections once a week (I JUST did mine so I'm not in the brightest of moods) and it has been very stressfull. There is much more to my story and I would love to talk about it (hence me joining the forum). I've never really reached out for support from strangers however things have been rough lately and keeping any sort of real friendships lately has been VERY hard. I have been vegan for a year now and continue to stay that way because it helps alleviate some of the stomach pain. Anyway, I think i'll end my story here even though there are many many more details I left out. Thanks for listening/reading this.
"My Story"
- Thread starter tishbite
- Start date
Help Support Crohn's Disease Forum:
- Joined
- Aug 17, 2009
- Messages
- 2,091
Hello Tish
Sorry to hear you are enduring so much pain and discomfort, hope the new medication will help.
This is a great forum and very supportive. Look around and you will no doubt find similar Crohnies and coping strategies.
It is such an unpredictable illness and everyone varies in symptoms and treatments.
Prayers and Good wishes to you
Trysha
Sorry to hear you are enduring so much pain and discomfort, hope the new medication will help.
This is a great forum and very supportive. Look around and you will no doubt find similar Crohnies and coping strategies.
It is such an unpredictable illness and everyone varies in symptoms and treatments.
Prayers and Good wishes to you
Trysha
David
Co-Founder
Hi Tish and welcome 
Ugh, I'm sorry you've had to go through so much, you poor thing. Any plans to go back to school? That's great that a vegan diet has helped a bit!
I know it can be weird to talk to strangers, but we're here for you anytime and we know all too well what you're going through. I hope to see you around the forum
*hugs*
Ugh, I'm sorry you've had to go through so much, you poor thing. Any plans to go back to school? That's great that a vegan diet has helped a bit!
I know it can be weird to talk to strangers, but we're here for you anytime and we know all too well what you're going through. I hope to see you around the forum
*hugs*
xJillx
Your Story Forum Monitor
- Joined
- Jan 7, 2011
- Messages
- 2,391
Hi Tish and welcome! I am glad you joined the forum. I think you'll quickly feel at home and not feel as though you are speaking with strangers. We are all in the same boat here, and it is great to share our experiences and knowledge with each other.
So, are you taking Remicade plus weekly methotrexate injections? That is a lot to manage. Know wonder you are experiencing anxiety. Do you take anything to help manage the stress? I am not a pill pusher, but there was a time in my life I was so stressed out, and I probably would have had a break down if it wasn't for paxil. It really helped me manage and take the edge off.
So, are you taking Remicade plus weekly methotrexate injections? That is a lot to manage. Know wonder you are experiencing anxiety. Do you take anything to help manage the stress? I am not a pill pusher, but there was a time in my life I was so stressed out, and I probably would have had a break down if it wasn't for paxil. It really helped me manage and take the edge off.
Yes, I am taking both remicade & weekly methotrexate injections. I currently see a therapist but I feel I am mentally hitting dead ends all the times in trying to manage my stress. It just keeps piling itself on. One thing after another be it insurance problems, financial problems, new symptoms, pain, you name it. I talked to my therapist about medications but she thinks it wold be best to try and learn to manage my stress on my won before jumping to a medication. I half agree.
