- Joined
- Jan 19, 2012
- Messages
- 55
Hi, I thought I would introduce myself and tell you my story so far.
Approx 4 years ago I began getting pains that felt like my period was going to start. I mentioned it to the nurse when having a routine smear, and she said that shouldn't be happening, and she advised me to see my GP. My GP sent me for an ultrasound scan, which came back clear. He then referred me to a gynecologist. By the time I got my appointment through the pain had become more severe. Anyway to try and keep this brief, after a few appointments and a couple of tests they decided they suspected endometriosis, and treated me for it for 6 months which didn't work. They eventually did a laparoscopy which showed my womb was fine!!
I was then referred to gastro. By this time I was taking huge doses of Tramadol for the pain, didn't touch the pain just left me severley constipated. First consultant didn't seem remotely interested, I asked to test me for H-Pylori as my sister had this bug. He did this rather reluctantly, but it came back negative. He then discharged me and said I had IBS and if I lost weight I should feel better!
So I went away and for the next few months tried all sorts of different antispasmodic drugs, but nothing worked and the pain was unbelievable. At this point my bowels worked quite normally most of the time, once I stopped taking Tramadol. I eventually went back to my GP and begged him to refer me back to gastro. He replied that I'd had all the tests and been discharged. I told him I had only one test so he re-referred me.
Next consultant seemed a bit put out that I had been re-referred but he sent me for a gastroscopy, which showed a hiatus hernia. When I went back for a follow up appointment I saw yet another consultant! But he was so nice, he actually listened to what I had to say. He did say though that the way I was describing the pain and where it was, that it must be something other than the hernia! So I had CT scan, then MRI and then a colonoscopy and they finally diagnosed crohns!! By this point I had lost 5 stone and could only eat very small amounts. Actual diagnosis was August 2010. I had a CT scan in November 2011 and I've been informed that I have a fibrostenotic section and was advised that I will probably need surgery. I was asked to try the Humira injections first because the rest of the crohns needs getting under control, becuase the Azathioprine and Pentasa wasn't working.
Approx 4 years ago I began getting pains that felt like my period was going to start. I mentioned it to the nurse when having a routine smear, and she said that shouldn't be happening, and she advised me to see my GP. My GP sent me for an ultrasound scan, which came back clear. He then referred me to a gynecologist. By the time I got my appointment through the pain had become more severe. Anyway to try and keep this brief, after a few appointments and a couple of tests they decided they suspected endometriosis, and treated me for it for 6 months which didn't work. They eventually did a laparoscopy which showed my womb was fine!!
I was then referred to gastro. By this time I was taking huge doses of Tramadol for the pain, didn't touch the pain just left me severley constipated. First consultant didn't seem remotely interested, I asked to test me for H-Pylori as my sister had this bug. He did this rather reluctantly, but it came back negative. He then discharged me and said I had IBS and if I lost weight I should feel better!
So I went away and for the next few months tried all sorts of different antispasmodic drugs, but nothing worked and the pain was unbelievable. At this point my bowels worked quite normally most of the time, once I stopped taking Tramadol. I eventually went back to my GP and begged him to refer me back to gastro. He replied that I'd had all the tests and been discharged. I told him I had only one test so he re-referred me.
Next consultant seemed a bit put out that I had been re-referred but he sent me for a gastroscopy, which showed a hiatus hernia. When I went back for a follow up appointment I saw yet another consultant! But he was so nice, he actually listened to what I had to say. He did say though that the way I was describing the pain and where it was, that it must be something other than the hernia! So I had CT scan, then MRI and then a colonoscopy and they finally diagnosed crohns!! By this point I had lost 5 stone and could only eat very small amounts. Actual diagnosis was August 2010. I had a CT scan in November 2011 and I've been informed that I have a fibrostenotic section and was advised that I will probably need surgery. I was asked to try the Humira injections first because the rest of the crohns needs getting under control, becuase the Azathioprine and Pentasa wasn't working.
