- Joined
- Sep 26, 2008
- Messages
- 41
Hi all
My names Josh, i'm 16 years old and i've been recently been diagnosed with crohns disease.
About a year ago I noticed I had developed a lump in my rectum, this alarmed me but it didn't hurt. I put this down to piles and just got on with my life, but It was always on my mind.
Well it gradually got worse i developed multiple lumps that popped out when i emptied my bowels, and the pain when I went was unbearable and the blood loss was something else.
After months and months of dealing with this I plucked up the courage to go to the doctor, his diagnosis was warts or maybe haemorrhoids. I got reffered to the hospital and soon I had an appointment. I went to the hospital and got examined, they said it could be skin tags or polyps, eventually i got booked in to have an operation. The operation went well, they discovered I had polyps and they had been succesfully removed. Great, I was really happy, it was all over.
The first time going to the toilet after the operation was very scary and very painfull, but obviously it was bound to hurt I'd just had major surgery. I expected the next time to be better but it wasn't it was just as bad. The next time I noticed the lumps had come back and the pain was worse than before.
To cut along story short I was back up and down the hospital and I was constantly told "oh now that's fine you're just healing" even my own mom wouldn't believe me. Well eventually the results of the examination for the tags/polyps that had been removed had been sent to the hospital, and I had another appointment.
The guy at the hospital told me that the tests had revealed I had inflimation in my rectum and I think in the bowel? i'm not quite sure abotu the bowel. And he finally realised that I wasn't healing and something was going on, he decided I needed to have a biopsy and some tests done.
So I had this done, I wake up have my coffee and cheese sandwich as normal:smile: and when it's time to go some random worker told me I had chrons disease. Well as you can imagine I was shocked, and that was all the information I received.
Well a couple of weeks ago I had an appointment with the chrons specialist, she was really helpfull, she told me the crohns effects my rectum only and she put me on some Azathioprine. Because this can affect you I have to have blood tests every 2 weeks. Well I had my first blood test last week and it revealed that my white blood cell count had dropped, so I've been took off the medication.
So to sum it all up after about a year, 2 operations and countless examinations i'm still hear terrified to go to the toilet, losing loads of blood and putting up with extreme pain. And I have no medication. I get really depressed about all this and I can never see it getting better, I just see it getting worse and worse until my body can't physically take it anymore. When I go to the toilet I can't move I just have to lie down, lucky I have my parents to look after my every need:tongue:
Oh and i'll just say, most people with crohn's around this area get diarrhoea but I constipated.
I'm sorry about the wall of text and the fact that it probably dosen't make sense but it feels good to let it all out. I hope other people out there have the same problem as me as it would be a great relief to talk to someone else who can relate.
ika: :allright:
My names Josh, i'm 16 years old and i've been recently been diagnosed with crohns disease.
About a year ago I noticed I had developed a lump in my rectum, this alarmed me but it didn't hurt. I put this down to piles and just got on with my life, but It was always on my mind.
Well it gradually got worse i developed multiple lumps that popped out when i emptied my bowels, and the pain when I went was unbearable and the blood loss was something else.
After months and months of dealing with this I plucked up the courage to go to the doctor, his diagnosis was warts or maybe haemorrhoids. I got reffered to the hospital and soon I had an appointment. I went to the hospital and got examined, they said it could be skin tags or polyps, eventually i got booked in to have an operation. The operation went well, they discovered I had polyps and they had been succesfully removed. Great, I was really happy, it was all over.
The first time going to the toilet after the operation was very scary and very painfull, but obviously it was bound to hurt I'd just had major surgery. I expected the next time to be better but it wasn't it was just as bad. The next time I noticed the lumps had come back and the pain was worse than before.
To cut along story short I was back up and down the hospital and I was constantly told "oh now that's fine you're just healing" even my own mom wouldn't believe me. Well eventually the results of the examination for the tags/polyps that had been removed had been sent to the hospital, and I had another appointment.
The guy at the hospital told me that the tests had revealed I had inflimation in my rectum and I think in the bowel? i'm not quite sure abotu the bowel. And he finally realised that I wasn't healing and something was going on, he decided I needed to have a biopsy and some tests done.
So I had this done, I wake up have my coffee and cheese sandwich as normal:smile: and when it's time to go some random worker told me I had chrons disease. Well as you can imagine I was shocked, and that was all the information I received.
Well a couple of weeks ago I had an appointment with the chrons specialist, she was really helpfull, she told me the crohns effects my rectum only and she put me on some Azathioprine. Because this can affect you I have to have blood tests every 2 weeks. Well I had my first blood test last week and it revealed that my white blood cell count had dropped, so I've been took off the medication.
So to sum it all up after about a year, 2 operations and countless examinations i'm still hear terrified to go to the toilet, losing loads of blood and putting up with extreme pain. And I have no medication. I get really depressed about all this and I can never see it getting better, I just see it getting worse and worse until my body can't physically take it anymore. When I go to the toilet I can't move I just have to lie down, lucky I have my parents to look after my every need:tongue:
Oh and i'll just say, most people with crohn's around this area get diarrhoea but I constipated.
I'm sorry about the wall of text and the fact that it probably dosen't make sense but it feels good to let it all out. I hope other people out there have the same problem as me as it would be a great relief to talk to someone else who can relate.
ika: :allright:
