My story

[melwitch]

hi i have suffered with Crohn's for the past four years and now am at my wits end, i have tried every drug going am now on Methotrexate to see if that will help, ive had imfliximab and humira and these made no differnce to my situation, my liver didnt like azathiaprin, my Crohn's is to active to have the operation and has spread to far. i feel as though i have no life im 37 and spend my life laying on the sofa as im so tired and sick and i just dont want to leave the house incase i need to go to the loo, the feeling of total uselessness bugs me i try to do jobs round the house but just end up making myself feel worse, i try not to feel sorry for myself but most of the time im asking myself why, im sure im not the only one who feels like this it would be nice to talk to people who feel the same as me because at the moment i feel as though i am so alone

 

[Kinsey]

Melwitch, you seem to wrap up the fate of some many of IBD patients, my son fights the depression that comes with the fatigue too and all the crap that goes along with. Dealing with the depression is has big if not bigger a challeng and a must as dealing with the disease. Hang in there and remember that working on the depression is part of working on the disease, it's not separate. Good Luck. If I can figure out how to use the befriend thingy I will. Brenda Kinsey:soledance:

 

[Astra]

Hiya melwitch
and welcome

We're glad you found your way here, you're no longer alone!
Why is your Crohn's too active for surgery? Where is it located?
Have you had your blood work done lately to check for Vitamin B12 deficiencies? Anaemia?
Sorry for the questions but it helps us.
Hope the new meds work for you.
Keep in touch and good luck
Joan xxx

 

[Kinsey]

Hi,
Because of the C-Diff, the next colonoscopy and upper GI have been pushed back. I take my son next Monday to get tested to see if it's gone, honestly I'm not feeling optimistic. But it helps to know about the Abbott products and hopefully getting an appeal with the insurance company to cover some of the liquid nutritional products for his metabolic disorders.

I will keep you posted, we just started with a new doctor in West Va., and the C-Diff really complicates his treatment. Kinsey

I do really appreciate anything, anything I can learn to help my son. So thank you.