Hi all,
I am new to the site , and I just wanted to share my story in case anyone is going through the same problems. I currently do not have a definitive diagnosis, and like many others have been in this limbo land for about a year now .
It all started with upper left pain under the ribs; sharp , hard to pin point and would literally have a mind of its own . Sometimes would hurt after eating , sometimes not , etc. Drs initially said too much stomach acid . So prescribed medication for that , which didn't really do much . Long story short , got worse and more persistent, so was referred to specialist who ordered endoscopy. This came back completely normal , still more pain . Other symptoms at this point were weird; bouts of sickness and migraines , splinter hemmorages on my fingers , all very non specific.
So was sent for ct scan and colonoscopy; again all completely fine . Diagnosed with ibs and maybe inflammation of the ribs (sorry can't remember wat it's called).
At this stage case closed for me , it must had been ibs after all , still in pain but not too bad.
Out drinking on a bank holiday Sunday as you do woke up next morning ,
Pale , faint , and everytime I went for a bowel movement there was dark purple blood there. The pain in the same spot it's always been in , was intense. this went on all day so I took a trip a n e. Admitted,and diagnosed with gastratitis ( although no scans were done )and was told to come back in three weeks for an endoscopy.
Still in pain after three weeks so at this point was sure the test would show somthing ; of course absolutely fine .
Either gastratitis had healed or it wasn't that ; you can imagine how I felt about this .
This is probably the six month mark where things started going down hill really. Chronic diarrhoea; episodes of blood stools , lasting weeks at time;severe sharp pain again in the upper left area.
Dr ordered stool test(came back abnormal )and also with bloody stools etc said it more than likely IBD, n probably crohns. so referd back to specialist .
He agreed with gp and has now sent me for a capsule endoscopy as he thinks my small intestine is most likely where the trouble is .
I read a lot of posts about other people's struggles to get a diagnoses : I meen does this sound familiar , does it really take over a year to get a diagnosis?
At the moment I'm off work , currently having a bad flare up , the pains seemed to have evolved and I now have really severe mid/lower abdo pain that is quite frankly horrific and waking me up in the night.
Sorry for the long post ; any advice or just general thoughts would be appreciated as I'm at the point now I don't know whether it's crohns, small bowel crowns that's spread further down , or somthing worse.
Anyway thanks in advance .
I am new to the site , and I just wanted to share my story in case anyone is going through the same problems. I currently do not have a definitive diagnosis, and like many others have been in this limbo land for about a year now .
It all started with upper left pain under the ribs; sharp , hard to pin point and would literally have a mind of its own . Sometimes would hurt after eating , sometimes not , etc. Drs initially said too much stomach acid . So prescribed medication for that , which didn't really do much . Long story short , got worse and more persistent, so was referred to specialist who ordered endoscopy. This came back completely normal , still more pain . Other symptoms at this point were weird; bouts of sickness and migraines , splinter hemmorages on my fingers , all very non specific.
So was sent for ct scan and colonoscopy; again all completely fine . Diagnosed with ibs and maybe inflammation of the ribs (sorry can't remember wat it's called).
At this stage case closed for me , it must had been ibs after all , still in pain but not too bad.
Out drinking on a bank holiday Sunday as you do woke up next morning ,
Pale , faint , and everytime I went for a bowel movement there was dark purple blood there. The pain in the same spot it's always been in , was intense. this went on all day so I took a trip a n e. Admitted,and diagnosed with gastratitis ( although no scans were done )and was told to come back in three weeks for an endoscopy.
Still in pain after three weeks so at this point was sure the test would show somthing ; of course absolutely fine .
Either gastratitis had healed or it wasn't that ; you can imagine how I felt about this .
This is probably the six month mark where things started going down hill really. Chronic diarrhoea; episodes of blood stools , lasting weeks at time;severe sharp pain again in the upper left area.
Dr ordered stool test(came back abnormal )and also with bloody stools etc said it more than likely IBD, n probably crohns. so referd back to specialist .
He agreed with gp and has now sent me for a capsule endoscopy as he thinks my small intestine is most likely where the trouble is .
I read a lot of posts about other people's struggles to get a diagnoses : I meen does this sound familiar , does it really take over a year to get a diagnosis?
At the moment I'm off work , currently having a bad flare up , the pains seemed to have evolved and I now have really severe mid/lower abdo pain that is quite frankly horrific and waking me up in the night.
Sorry for the long post ; any advice or just general thoughts would be appreciated as I'm at the point now I don't know whether it's crohns, small bowel crowns that's spread further down , or somthing worse.
Anyway thanks in advance .
