Hi Everyone,
All my life, I was misdiagnosed. I suffered from terrible intestinal problems that actually put me in hospital 2-3 time a year from the time I was 15. It was all written off to Gastritis, IBD and a few others. Then when I was 20, (I'm 50 now), I was diagnosed with Anklosing Spondylitis. I still was getting misdiagnosed for the gastric problems.
About 4 years ago I was hospitalized with a blockage in my intestines and had a resection done. At this point they realized I had Crohns...suddenly everything made sense. I am not doing well now. Between the Arthritis and the Crohns, I deal with pain on a daily basis and have to use the bathroom 6-7 times a day with diarrhea...also quite painful. I'm also 5'10" and can't seem to gain any weight...I weigh 125 on a good day. This makes life very difficult. I have a hard time keeping a job as I'm always running to the Men's...not good as I'm a cook. I have, now 3 times, applied for disability but they say basically that I'm not sick enough and because I lack a Doctors report they deny. I have very little money and really can't afford to be under a Doctors care...although I know I should. I take Aleve for the Arthritis and Immodium for the Crohns but still, I can't gain weight and still suffer greatly. I have serious bouts of depression which I know must be addressed but again, my finances prevent me from doing anything.
I feel, a lot, that all this isn't worth it and have a hard time getting out of bed in the morning, as normally, I have to unstiffen my body, (pain), just to run to the toilet for some more pain...I don't know where to turn.
Thank you for letting me vent here.
All my life, I was misdiagnosed. I suffered from terrible intestinal problems that actually put me in hospital 2-3 time a year from the time I was 15. It was all written off to Gastritis, IBD and a few others. Then when I was 20, (I'm 50 now), I was diagnosed with Anklosing Spondylitis. I still was getting misdiagnosed for the gastric problems.
About 4 years ago I was hospitalized with a blockage in my intestines and had a resection done. At this point they realized I had Crohns...suddenly everything made sense. I am not doing well now. Between the Arthritis and the Crohns, I deal with pain on a daily basis and have to use the bathroom 6-7 times a day with diarrhea...also quite painful. I'm also 5'10" and can't seem to gain any weight...I weigh 125 on a good day. This makes life very difficult. I have a hard time keeping a job as I'm always running to the Men's...not good as I'm a cook. I have, now 3 times, applied for disability but they say basically that I'm not sick enough and because I lack a Doctors report they deny. I have very little money and really can't afford to be under a Doctors care...although I know I should. I take Aleve for the Arthritis and Immodium for the Crohns but still, I can't gain weight and still suffer greatly. I have serious bouts of depression which I know must be addressed but again, my finances prevent me from doing anything.
I feel, a lot, that all this isn't worth it and have a hard time getting out of bed in the morning, as normally, I have to unstiffen my body, (pain), just to run to the toilet for some more pain...I don't know where to turn.
Thank you for letting me vent here.
