My tale

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Joined
Apr 15, 2012
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I started getting sick in 1993, my first husband had died in a car wreck so they blamed it on nerves. I continued to get worse, so I went to a specialist in 1997 after passing out in my sisters bathroom. He told me I was depressed and to get over it. So in 2001 I went for a hysterectomy , I got so sick they thought it was cancer, went to another specialist. He said it was CDIFF, treated me and told me to stay on immodium. I did as he said. In 2010 I was up to 9 immodium aday. I went to another specialist who told me it was nothing but surface colitis deal with it 9 immodium is nothing. Over the course I have lost and gained weight, lost blood in my stool. have low vit d, Have the diaherra every day, unless I dont eat, and I have lost bowel control more than I care to admit. And the pain sometimes is real bad. So I got mad and went to one more specialist, I walked in said if you are going to tell me im depressed I am leaving, I am happily remarried and I am not depressed. If you are going to do a colonoscopy I am leaving. LOL. Since I went to this dr he did a ton of tests, one being a capsule endoscopy. and a test for chrons, the scope showed ulcer, and the blood work positive. Now I can heal, I hope.:)
 
Wow, sounds like a long hard road to getting properly diagnosed. I am new to Crohn's myself, and I hope you will find this site and the folks on it as wonderful and helpful as I have. Welcome!

Lisa
 
Hello and welcome to the forum. Sorry to see that like many here you got fobbed of by idiot doctors before finally getting a diagnosis - good for you for taking this in hand and getting it sorted :) How are you doing now symptom wise? What meds are you on?

Glad you have decided to join, there is a lot of really helpful advicd and info here.

AB
xx
 
Greetings and welcome :) I'm so sorry to hear that your road to diagnosis has been a difficult one :( But thank goodness they finally got things figured out.

Do you have a treatment regimen yet? If so, would you care to share it?

All my best to you!
 
my tale

I am on endocort, I have little pain and yestersay I had another colonscopy. My imflamation is almost gone but still have diaherra. I stay away from caffiene, no tomatoe based products or tomatoes, pork of any kind sets me off. and I dont drink mik. Margarine and oils are bad. Basically soups and bolonga sandwich on wheat, lactose free milk. Simple. But I havent found control yet and my desire to eat is dwindling. I use to eat even though I knew the end result. But I guess after all the year I am just tired.I have lost weight and I get so bloated. if there is a meal plan please share and any new stuff I get ill post I promise, thanks so much feel better having someone to talk to.
 

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