Need help

[Kendra2276]

Hello.

The clinic that I was seeing could only see Medicaid on Thursday. They are so booked that you have to make an appointment 3 months out. This clinic is awful at responding to emails. Essentially they leave you high and dry.

I am seeing a new doctor however, I have to wait until April 2.

I have had two capsule endoscopies that showed multiple ulcers throughout the terminal ileum.

I am in constant pain (right side) and eating amplifies the pain. I have coffee grounds (black specks) in the stool and on the toilet paper (stools are loose/diarrhea). I am losing weight. Essentially I have been in pain since September its just now getting out of control.

Option a). try and get ahold of primary care. I do not know how they can help me because the medication that they gave me to treat Crohn's caused an allergic reaction.

Option b). Go to the urgent care that is attached to the hospital. This will be hard because I have not received the official diagnosis that its Crohns. However, after two capsule endoscopies that showed multiple ulcers.....

Option c). be in pain for the next two weeks.

I dont know. Is there anything else that I can do? I tried to call the new gi clinic and they couldn't schedule a sooner appointment. I just am at a loss and tired of being in pain. Any thoughts of wisdom would be greatly appreciated.

 

[ronroush7]

Ask if the clinic has any cancellations if they could not write you in. Hope you get relief soon.

 

[crohns35]

Hello.

The clinic that I was seeing could only see Medicaid on Thursday. They are so booked that you have to make an appointment 3 months out. This clinic is awful at responding to emails. Essentially they leave you high and dry.

I am seeing a new doctor however, I have to wait until April 2.

I have had two capsule endoscopies that showed multiple ulcers throughout the terminal ileum.

I am in constant pain (right side) and eating amplifies the pain. I have coffee grounds (black specks) in the stool and on the toilet paper (stools are loose/diarrhea). I am losing weight. Essentially I have been in pain since September its just now getting out of control.

Option a). try and get ahold of primary care. I do not know how they can help me because the medication that they gave me to treat Crohn's caused an allergic reaction.

Option b). Go to the urgent care that is attached to the hospital. This will be hard because I have not received the official diagnosis that its Crohns. However, after two capsule endoscopies that showed multiple ulcers.....

Option c). be in pain for the next two weeks.

I dont know. Is there anything else that I can do? I tried to call the new gi clinic and they couldn't schedule a sooner appointment. I just am at a loss and tired of being in pain. Any thoughts of wisdom would be greatly appreciated.

What state are you in

 

[Scipio]

Option a). try and get ahold of primary care. I do not know how they can help me because the medication that they gave me to treat Crohn's caused an allergic reaction.

What medicine did they give you that triggered an allergic reaction? If it's not a corticosteroid like prednisone or budesonide, perhaps you can get primary care to prescribe you enough prednisone to hold you until you can get to the GI in two weeks.

If they work for you, corticosteroids can often provide significant relief in just a few days.

 

[Kendra2276]

What state are you in

I am in Colorado

 

[Kendra2276]

What medicine did they give you that triggered an allergic reaction? If it's not a corticosteroid like prednisone or budesonide, perhaps you can get primary care to prescribe you enough prednisone to hold you until you can get to the GI in two weeks.

If they work for you, corticosteroids can often provide significant relief in just a few days.

I reacted to budesonide which puts me into even more of a jam.

 

[crohns35]

I reacted to budesonide which puts me into even more of a jam.

Side effects of budesonide that are different from prednisone includeupper respiratory tract infection,diarrhea,abdominal pain,back pain,dizziness,fatigue,indigestion,flatulence(gas),joint pain,constipation,bloating,urinary tract infections(UTIs), viral infections, andfatigue.

if indeed it is crohns and it may not be because it sounds like you haven't been officially diagnosed Prednisone should work until you can get into a plan to treat it long term.

Budesonide is a different type of steroid than Prednisone I copied in the side effects of budesonide that don't normally come with Prednisone.

I have had Crohns for 40 years and Prednisone always works in a pinch but is very bad for you long term. A couple of months is no big deal if you can tolerate it.

What is the clinic called is it a digestive disorder clinic? If not you need to get to one asap

I hope this helps some

 

[Kendra2276]

that helps to know that there is a difference between the prednisone and the budesonide. The budesonide involved an epi pen, Benadryl, and prednisone (given at the urgent care clinic) followed by an ambulance ride to the er. That's when a migraine kicked in.

The old clinic that I was going to is called UC health. it is the teaching hospital. the new clinic should be substantially better. I went to that clinic when I dislocated my knee and had to do pt.

I think that I will try to get a same-day appointment with primary care and see about trying prednisone.

I have also had a ct scan that showed inflammation and then I have had a ct scan that was negative.

 

[crohns35]

that helps to know that there is a difference between the prednisone and the budesonide. The budesonide involved an epi pen, Benadryl, and prednisone (given at the urgent care clinic) followed by an ambulance ride to the er. That's when a migraine kicked in.

The old clinic that I was going to is called UC health. it is the teaching hospital. the new clinic should be substantially better. I went to that clinic when I dislocated my knee and had to do pt.

I think that I will try to get a same-day appointment with primary care and see about trying prednisone.

I have also had a ct scan that showed inflammation and then I have had a ct scan that was negative.

University of Colorado Crohn’s and Colitis Center

I copied and pasted the above in
I did a little research and if I were you I would try these people if you can get there. Are you close by any chance?