Hello everyone. OK My story maybe a bit long but I'll try to shorten it as much as possible. Basically I am now 17 and I am a male. Back in 2015 I had diarrehea and blood in my stool. I go to the doctor and they say it's just an infection and gives me metranidazole. I take it and immidiately I become better. No more blood or diarrehea. Fast forwar to December of 2015 I begin to feel sick again same symptoms and I go to the dr and he gets me to do a colonoscopy. I drank the liquid and didn't eat anything etc..... the report comes back and the doctor says that I have crohn's however on the report it said that the bowl was not fully visible due to my bowl not being fully empty. They discharge me and give me steroids and I begin to feel OK again.
Then in 2016 I developed an abcsess. I went to for an operation and I got a colostomy bag attached to my left hand side of the abdomen so the infection drains. I had this done in September of 2016. I kept getting regular check ups with my gp who said it takes time for it to drain and once it does the colostomy would close on it's own.
Fast forward to November 2017 I begin to have a fever and pain in my stomach feeling as if there is a small ball on my lower left abdomen. I go to the hospital and they done the usual CT Scan and stuff and said that I need to have a surgery to close the abscess and the fistula that has developed. I had another colonoscopy done again but this time it's different to 2015 as the doctor says I only have a tiny bit of inflammation at the bottom of my colon whereas in 2015 I was told I have patches of inflammation everywhere. So I don't know tbh. Now they are saying I have something similar to Crohn's and I said what is it and the dr says it's something similar. I said is it UC? She says no the biopsy shows something similar. Then the next day she comes in and says you have crohn completely changing her words.
I'm due for surgery on Tuesday and the dr says that they are going to close the left hand colostomy and remove it and have it put on my right hand side and have me put on Immunosupressonts. I asked how long should I have the Colostomy and she says lifetime. My question is why would I need to have the colostomy on for a lifetime if all there is is a tiny bit of inflammation as they say?
What is going on? I am completely lost and the dr doesn't explain stuff clearly. Can someone who has had experience in this guide me? Why would I need a permanent colostomy?
Thank you.
Then in 2016 I developed an abcsess. I went to for an operation and I got a colostomy bag attached to my left hand side of the abdomen so the infection drains. I had this done in September of 2016. I kept getting regular check ups with my gp who said it takes time for it to drain and once it does the colostomy would close on it's own.
Fast forward to November 2017 I begin to have a fever and pain in my stomach feeling as if there is a small ball on my lower left abdomen. I go to the hospital and they done the usual CT Scan and stuff and said that I need to have a surgery to close the abscess and the fistula that has developed. I had another colonoscopy done again but this time it's different to 2015 as the doctor says I only have a tiny bit of inflammation at the bottom of my colon whereas in 2015 I was told I have patches of inflammation everywhere. So I don't know tbh. Now they are saying I have something similar to Crohn's and I said what is it and the dr says it's something similar. I said is it UC? She says no the biopsy shows something similar. Then the next day she comes in and says you have crohn completely changing her words.
I'm due for surgery on Tuesday and the dr says that they are going to close the left hand colostomy and remove it and have it put on my right hand side and have me put on Immunosupressonts. I asked how long should I have the Colostomy and she says lifetime. My question is why would I need to have the colostomy on for a lifetime if all there is is a tiny bit of inflammation as they say?
What is going on? I am completely lost and the dr doesn't explain stuff clearly. Can someone who has had experience in this guide me? Why would I need a permanent colostomy?
Thank you.
