Nervous

[chanaelynn]

So I was just diagnosed on December 14th of 2011 with Crohn's of the small bowl.

It has been a long road, lots of emergency room visits and medications. Im relieved that I finally have an answer, but nervous for the next step. Today my doctor told me that on Wednesday we will be going over the biologic agents that they want to start me on. my options are

Remicade
Cinzia
Humira

:sign0085:

I have done a lot of research, and was really scared about injections. But after the information I have found I feel confident that I can get through this. I had no idea that so many people suffer from this conditions. The pain that I have been through has been terrible and I cannot wait to get better and not have to go through this like I have any more.

I cannot wait for Wednesday, just means another step closer to controling the crohns.

Does anyone have any imput about how to get through the next few months? nevousness and anxiety, and pain?

 

[David]

Greetings and I'm sorry it's taken a bit to get you a reply here It's understandable you're nervous and *hugs* to you for all the pain.

If you haven't found them already, you may want to check out each support areas for those treatments. Cimzia Club, Remicade Support, and Humira support. Relating to what others go through with them may help put your mind at ease.

I think empowering yourself through continuing education and taking charge of your condition can help a lot. Learn about proper supplementation, diet, and all the treatment options so you can be involved in the decision making process will help as well. And as always, we're here for you

 

[Crohn's 35]

:welcome: to the forum! So sorry you have Crohn's but knowledge of the disease help ease anxiety. Just from experience I would say the Remicade is the best choice, and then Humira, the Cimzia I have no knowledge about. Gi's are saying now to hit it hard and blast that sucker out of there, then go to a lower dose to maintain it.

I know you are worried but they are studies and they have to report all side effects so you can rest assured you wont get all , or any. Some dont even have crohns who take the study. I hope you have relief soon, I have been there being so ill and in & out of the hospital, lets try and keep you out of there!

Let us know what you decide, hang in there, keep us posted.

 

[suschex]

I was diagnosed on Oct. 10, 2011 and really understand how you are feeling! This forum has been an amazing help and I am glad you found it! I started on Humira 4 weeks ago but prior to deciding which biologic to go on I found the information at the link below to be very helpful. It is a webcast that you can watch or you can download and read the transcript. It is on the CCFA website.

http://programs.rmei.com/CCFA139VL/

Hang in there...it gets better!!!

 

[chanaelynn]

Thank you for all of your replies!!! I start on Humira soon, Just need to do a TB test and im done, which they only do on certin days of course..... the ones im not there haha. But Thats it and then I will be on my way. Had a Barium Enema this morning that was just fabously embarrasing! but I got it done and over with and they still didnt find the fistule that they were looking for. Although they did find the camera i swollowed for my capsule endoscopy (2 weeks ago) still jammed in there, they are not sure why! haha, But after the intial dr appointment and my decision i feel very confident and very excited to get started, so hopefully right after the 1st!! Thanks again you guys!