- Joined
- Dec 17, 2011
- Messages
- 4
I have been battling what has been over a year of hell! It wasn't until just 2 weeks ago after I had the camera/capsule pill test that it was confirmed that I have a mild case of Crohn's with ulcerations throughout the bowel and intestine. I have a very unique story.
I also have had chronic migraines (12/month at least) due to 8 herniated discs damage throughout my back/neck for the past 21 years. For 19 years I was on amitriptiline which was supposed to help with nerve pain for my back/neck. I decided to come off of it last sept. and that's when EVERYTHING hit the fan! I first began having a 3 month bout of horrific coughing. This was followed by an inability to swallow any liquid but water (irritation feeling in my throat that they thought was acid reflux but it wasn't). This was then followed by horrific stomach pains, vomiting, diarhea, bathroom urgency, OB-gyn issues, etc. I was put on 10 anti biotics in a 3 month span as Dr.'s didn't know what type of an "infection" I had. I was seen by so many GI dr.'s, ran my course of all of the major procedures-some that ruled out crohn's (which my dad has). I lost over 20 lbs in a couple of mos. Then slowly I started beginning to figure things out on my own.
Apparently amitriptiline (which I was on for 19yrs for back reasons) can also be used to higher one's tolerance to pain especially in GI issues. So it was likely that all the years I was on it, my GI issues were being masked. Then I come off of it and everyhing goes haywire. Then on top of that the 10 anti biotics and steroids in 3 mos. didn't help I'm sure. So now I've been back on amitriptiline. Causes weight gain so gained all lost weight back. But my pain issues are still there. Literally everything I eat kills my stomach. I've been on all sorts of diets and nothing helps.
Finally I was just diagnosed with Crohn's recently. I see 3 GI Dr.'s-1 of whom is holistic. I was advised to finish up my regimen of pro/pre biotics in next few wks then begin anti inflammatories to treat the crohn's?
Ive been trying to digest this all- also while trying to wedding plan for my 10/7/12 wedding. I've been miserable, in pain all of the time. I also have a stressful job as a mental health therapist so that adds to my stress. I have at least 4 dr. appts per week and have spent THOUSANDS on meds, treatments, procedures, food, etc. even with insurance. I am hoping that this forum will be a good support for me being with others who can relate.
I also have had chronic migraines (12/month at least) due to 8 herniated discs damage throughout my back/neck for the past 21 years. For 19 years I was on amitriptiline which was supposed to help with nerve pain for my back/neck. I decided to come off of it last sept. and that's when EVERYTHING hit the fan! I first began having a 3 month bout of horrific coughing. This was followed by an inability to swallow any liquid but water (irritation feeling in my throat that they thought was acid reflux but it wasn't). This was then followed by horrific stomach pains, vomiting, diarhea, bathroom urgency, OB-gyn issues, etc. I was put on 10 anti biotics in a 3 month span as Dr.'s didn't know what type of an "infection" I had. I was seen by so many GI dr.'s, ran my course of all of the major procedures-some that ruled out crohn's (which my dad has). I lost over 20 lbs in a couple of mos. Then slowly I started beginning to figure things out on my own.
Apparently amitriptiline (which I was on for 19yrs for back reasons) can also be used to higher one's tolerance to pain especially in GI issues. So it was likely that all the years I was on it, my GI issues were being masked. Then I come off of it and everyhing goes haywire. Then on top of that the 10 anti biotics and steroids in 3 mos. didn't help I'm sure. So now I've been back on amitriptiline. Causes weight gain so gained all lost weight back. But my pain issues are still there. Literally everything I eat kills my stomach. I've been on all sorts of diets and nothing helps.
Finally I was just diagnosed with Crohn's recently. I see 3 GI Dr.'s-1 of whom is holistic. I was advised to finish up my regimen of pro/pre biotics in next few wks then begin anti inflammatories to treat the crohn's?
Ive been trying to digest this all- also while trying to wedding plan for my 10/7/12 wedding. I've been miserable, in pain all of the time. I also have a stressful job as a mental health therapist so that adds to my stress. I have at least 4 dr. appts per week and have spent THOUSANDS on meds, treatments, procedures, food, etc. even with insurance. I am hoping that this forum will be a good support for me being with others who can relate.