So, i thought i would start this post today, after many , many months of sleepless nights, worry, tears, anger and frustration. My son was diagnosed in Feb 2013 with Crohns. He was put on 40mg of Prednisone and then 6MP.
J was having severe constipation and bleeding from such, we were told to use miralax as needed. When i asked both the Doctor and the Dietician about foods that would or could cause problems, i was very abruptly told that food is not an issue and would not cause or help a flare. When i presented a food diary i was again told that food is not an issue.
Now, i realize that i am not a Dr., but i do know that telling a 14 year old kid that he can eat whatever he wants and that i , as his mom, should take him to Mcdonalds often if that is what he wants is not good nutritional advice. It is a diet, but then again, so are rocks and sticks.
There seemed to be a huge dis-connect between me and thet Dr. My son felt that whenever he brought up the fact that his stomach felt "tight" when he ate, or that he fears going to the bathroom because he knows it will hurt, that the Dr. shrugged it off as being part of the disease and not helping or offering solutions. When he asked if we could find a different Dr., i had to ask myself if i had projected my own feelings to influence his request. My feelings are irrelavent if he is comfortable with his dr. and his is physically in a good place. After all, this is a condition he will be dealing with. He needs to learn to understand and be able express his symptoms and problems to his physician when they present, and not wait until they are into emergency status.
So, i found a new DR. We talked about what he needed and wanted in physician.
We found a new Doc.
This Doc has GI problems of his own. He seemed to be able to ask the kind of questions that maybe seemed unimportant to the other DR. He also is very focused on diet and nutritional supplementation based on diagnostic blood work.
We had experimented with Gluten Free. The typical gluten free that allowed rice, and corn and other replacement grains. Really did not see much difference. We decided to try a more Paleo diet. Basically, no grains. We eat meat, fruit veggies, some nut, very little dairy.
His movements are normal and regular
Ill say that again...his movements are normal and regular.
He said to me the other day, " i never thought this would work, mom, but i really do feel good."
The fact that he said he felt good and not just better was such a relief.
Anyway, I am writing this in a good frame of spirit.
Listen to your child. Listen to your gut.
For us, this seems to be working well.
Supplements:
Triple fish Oil
B complex
Multi Mineral - Bone-up
2400 Vit D3
J was having severe constipation and bleeding from such, we were told to use miralax as needed. When i asked both the Doctor and the Dietician about foods that would or could cause problems, i was very abruptly told that food is not an issue and would not cause or help a flare. When i presented a food diary i was again told that food is not an issue.
Now, i realize that i am not a Dr., but i do know that telling a 14 year old kid that he can eat whatever he wants and that i , as his mom, should take him to Mcdonalds often if that is what he wants is not good nutritional advice. It is a diet, but then again, so are rocks and sticks.
There seemed to be a huge dis-connect between me and thet Dr. My son felt that whenever he brought up the fact that his stomach felt "tight" when he ate, or that he fears going to the bathroom because he knows it will hurt, that the Dr. shrugged it off as being part of the disease and not helping or offering solutions. When he asked if we could find a different Dr., i had to ask myself if i had projected my own feelings to influence his request. My feelings are irrelavent if he is comfortable with his dr. and his is physically in a good place. After all, this is a condition he will be dealing with. He needs to learn to understand and be able express his symptoms and problems to his physician when they present, and not wait until they are into emergency status.
So, i found a new DR. We talked about what he needed and wanted in physician.
We found a new Doc.
This Doc has GI problems of his own. He seemed to be able to ask the kind of questions that maybe seemed unimportant to the other DR. He also is very focused on diet and nutritional supplementation based on diagnostic blood work.
We had experimented with Gluten Free. The typical gluten free that allowed rice, and corn and other replacement grains. Really did not see much difference. We decided to try a more Paleo diet. Basically, no grains. We eat meat, fruit veggies, some nut, very little dairy.
His movements are normal and regular
Ill say that again...his movements are normal and regular.
He said to me the other day, " i never thought this would work, mom, but i really do feel good."
The fact that he said he felt good and not just better was such a relief.
Anyway, I am writing this in a good frame of spirit.
Listen to your child. Listen to your gut. For us, this seems to be working well.
Supplements:
Triple fish Oil
B complex
Multi Mineral - Bone-up
2400 Vit D3
