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Crohn's Disease Forum

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Joined
Jul 7, 2012
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Hello to everyone in here and am glad that i came uppon this site/forum. i have been reading alot of post in here and i can related to alot of things to what people comment here.

well my name is benjamin,23years old and i have currently been living in denmark for the last 8 years, before moving here i was born, raised and lived in spain. am not actually spanish but british. i was working as a cook until this disease hit me.

i have been diagnosed with Chron's now for nearly 3 years, but i have had it for about 4 years where my doctor couldnt figure out what was rong with me, until the day where i lost my eye sight in my left eye due to a ''iris inflammation'' and thats where i took it to a specialist in the hospital that thought it was weird i had this eye infection and asked me if i felt bad in any way and told him about the stomach pains and toilet abuse. that was the day my worse nightmare became reality and had my 1st experience with a endoscope, and then got told i had chrons.
since then i had been on many types of medications and with no success with a total of 4 times in hospital of 2week-3weeks a time over a period of nearly 2 years and almost daily blood tests wich drived me insane.
i was really down and was really unsocial in the process of it i lost alot of people around me, cause i dint know how to deal with it at the time and people dint understand what i was going through.

the last time i got put into hospital with the worse of all the outbreaks i was put again on ''prednisolone'' to bring the inflamation to a calm and was told if they couldnt keep it down this time they would have to do a ''colostomi'' and i was put on ''Remicade'' to see if that would work for me, wich did and has done wonders for me, but after 6 months with no problems i have had to move to the other side of denmark to finish my school and ofcourse the way the medical world works over here is so slow and they have not transfered me in time to another hospital to continue the Remicade treatment so my sickness is now been getting more and more active for the last week.
now here on monday i will be taken in on a emergency check-up and see what they are going to do from there.

well that is all that i have to really say here to let u know alittle bit about your new member.
and all do i have this disease i have learn now with time that i should keep positive, i have been treated with success once and got hope now that it will be ok again ^^
oh and sorry if there alot of spelling mistakes all do i am british i have been in denmark for abit too long :)
 
Welcome to the forum Benji. Pretty bad that it took you so long to get diagnosed, and that once you found something that helped its been stopped.

Good luck on your emergency appointment. Have you tried our food area for help? Most people find that some types of food/drink can cause them flares, so may be worth trying this route to help witht he pain.

Btw its spelt Crohns :p
 
Hello Benji and welcome to the forum :) I am glad the Remi was keeping things settled for you, I will keep fingers crossed that the docs can start getting the infusions arranged again when you have your appt. I agree that it is worth looking into the food side of things, perhaps a low residue diet as this may at least help with your symptoms.

Pls keep us updated on how you get on.

AB
xx
 
hey again and thanks for the warm welcomes. so nice to see people that can understand me ^^.
i just got out of hospital since i was rushed in on monday with severe pains.
they told me ofcourse that my Crohns as returned and that they will try and skip the prednisolon and start me up on Remicade again next week. so i just been tested again for all the sickness like tuberculosis, aids etc... i have to go in tomorrow and get a endoscope just to see if my crohns is still sitting on the left side of my intestine and hasent spread further. they wont check the other area i had the break out cuss its where the thick and thin intestine joins and i can not take them going so far unless am asleep.
so lets just hope for the best and i can just go back on the remicade :)
 
Thanks for the update hun, I'm sorry you have had to have a trip to hospital :( I hope the scope goes well tomorrow and am glad you will now be getting your infusion next week.
 
I'm glad you're getting back on Remicade and hope it does even better for you this time around!

Welcome to the community by the way :)
 
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