New here and in so much pain

[lilroadrunner42]

Hello Im christina, I believe Im suffering from crohns. I have lost 50 pounds in the last few months without effert. The last 2 1/2 months every time I eat my gut and digestive system goes into a major fit. I mean major pain, doesnt matter what I eat. Even doing my daily chores causes me pain. Some days are better than others.Im always tired and have to push myself to get out of bed in the morning. My stools are pretty normal due to meds that I take for IBS. I have a ct scan this friday. I cant take any more of this. I already have enuff health issues, this is about to push me over the edge. Is there a point where I can eat what I want and not be in any pain? If not I dont think I can live with this disease.

 

[movienut10]

If you do have Crohns, you will have to really change your diet. Eating without pain is not easy, but it can be done. I hope you don't have it, but if you do, you have come to a great place for support.

 

[michaelearnest]

Hello Cristina - I can help you alot. Have you had a colonoscopy? Do you have a GI doctor and primary care physician? I didn't have a choice but I have lived a great life for 25 years now with Crohns.

 

[lilroadrunner42]

Yes I do have both docs. I have a ct scan this friday. GI doc went straight for ct scat, didnt want to put me thru more than he had to.

 

[lilroadrunner42]

Thank you movienut, I just want my life back.

 

[movienut10]

We all do lilroadrunner. I am sick of feeling this way and all that goes with it. I look forward to hearing how things turn out for you. You have my support and feel free to message me if you need a caring shoulder.

 

[my buns are burnin]

I feel your pain totally!! I am new to this too.. and in pain all the time... I had a colonoscopy last week and i am waiting on the biopsy results.. they put me on sulfasalazine and it caused me to have kidney spasms Sunday so I had to stop taking it.. I just want to feel better too!!

 

[sickinlk]

Hi Christina,
Can you describe the pain you get after eating. has Gi mentioned all the usual suspects too like h-pyroli, stomach ulcers, gallstones and pancreatitis?
Ju

 

[lilroadrunner42]

Thx all for the support. no the gi didnt explain anything but that he was gonna send me for ct scan instead of colonoscopy and that this could be just muscle pain or nothing at all. Some days the pain is a simple as a bad upset stomache, some days its like when we were kids and when ud run and ud get that left sided pain, thats what it feels like but alot worse but it dont always feel that way.Its hard to explain.my symptoms seem to have started about 1 1/2 years ago with the left sided pain right after I ate something and would only last a couple hours, it only happened accasionally but has gotten progressively worse since december of 2011.It doent seem to matter what I eat or how little I eat.I have had some vomitting over the past months and times where I felt like I needed to thru up.Now I'm experiencing backaches along with everything else. My husband feels helpless as I sit here almost in tears cuz I cant take the pain. Been to ER since june and was given a script for vics which I hate, the vics did nothing for the pain.I'm at a loss here.I'm probably jumping the gun here right? thinking it's crohns

 

[lilroadrunner42]

I would like to add that I have been going thru night sweats also and they r happening during the day too not just at night. I have had a hysterectomy and am taking hormone replacement meds for it.

 

[sickinlk]

im sure the cat scan will bring up the problem.. in the mean time look up gallstones and chronic pancreatitis. they have symptoms very similar to yours esp with the back pain and pain after eating. h-pyroli pain gets better after eating so it doesnt sound like that. Have you ever had any blood or mucous in your stools?

ju

 

[lilroadrunner42]

I will look those up and no I havent had any blood or mucus in stool.

 

[sickinlk]

well, that doesnt mean much but it could rule out UC and IBS with no mucous. chronies produce alot of mucous too but i think it depends on the area thats affected. hope you get some answers soon to your pain.
Ju

 

[lilroadrunner42]

I dond know that this means anything but I spoke with my mother last night and she told me she had UC when I was a kid and it went into remission after my parents divorced. Does this mean anything for me?

 

[michaelearnest]

I had the night sweats and day sweats, I know what you are going through, its tough, hang in there

 

[sickinlk]

I dond know that this means anything but I spoke with my mother last night and she told me she had UC when I was a kid and it went into remission after my parents divorced. Does this mean anything for me?

lucky her to have such a long remission and long may it last.
It means that your chances of having inflammatory bowel disease has risen by another 6% or something. It can run in families im afraid so you might be on the right track. however your main symptom is pain. has there been any change to your bowel movements? Blood is a big indicator of UC.
Have you had a stool test done.
If the ct show nothing conclusive i would insist on a colonoscopy.

Ju

 

[lilroadrunner42]

The only tests that have been done so far are blood and urine.. Unfortunitly I already have IBS and take meds for it which are helping my BM stay pretty normal ( thank god ).

 

[sickinlk]

good luck with the ct. keep us posted

ju

 

[lilroadrunner42]

I will do that and thank you guys for all the advice and support. Its good to know theres people out here who care.

 

[David]

Welcome to the community!

I'm really glad your doctor is doing a CT scan. I think that's a good call. I'm wondering if they're going to find any abscesses as your symptoms certainly fit.

Please keep us updated and best of luck to you!

 

[lilroadrunner42]

Thank you David, Im waiting for them to take me back for for the ct scan right now, so should know something really soon I hope.

 

[lilroadrunner42]

Well my ct scan results are back, gi doc says everything looks normal but did find 2 small 1cm kidney stones, but says they shouldnt b cuasing me any troulbe. So gi doc says theres nothing else he can do for me and to go back to my primary doc for follow up. ( WTH ) Whats my primary gonna do for me ( really ) Im so angry I just want to rip this gi doc apart. I dont know what to do or who to go see. Im so upset and depressed.

 

[David]

If you don't feel comfortable with what your GI is telling you, ask your primary for a referral to a new GI for a second opinion.

 

[lilroadrunner42]

Thank you David for your advice, I guess thats my only option at this point.