- Joined
- Nov 7, 2008
- Messages
- 166
Hi, I am new here and feeling very lost.
I am in my 30s and was diagnosed with Crohn's in my small bowel in January this year after years and years of problems which were put down to psychological reasons, Irritable bowel, and eating disorders. I do have problems with eating, but the docs now recognize it has a lot to do with food intolerance issues which became a coping mechanism later on.
Anyway, reason I am feeling desperate enough to post today is that I saw my gastroentrologist this morning and she was so concerned about the weight I have lost over the past year and my poor nutrition that she wants to admit me to hospital to start me on TPN feeding. Once a Pic line (I think this is right?) is put in, and I am on a routine, they will send me back home to continue...
Apparently it gives the bowel a chance to rest and recover, as well as being the easiest way to absorb food. Although I was told this about elemental drinks, but my vitamin levels are still really low - especially D, E, and B Vits, along with potassium from all the vomiting and diahorrea.
If they can organize a bed for me, I'm getting admitted on Tuesday. I am feeling terrified to say the least! Also, I know it is stupid but I am worried about the weight gain. I know I need to put on a bit of weight, but I am kinda used to being thin and don't want the weight too go on too fast. I really wanted to say no to the doc's suggestion, but she said that if I needed surgery for my Crohns (which was a definite possibility with the ways things are going) I needed to be in better shape otherwise there was a good chance I might not survive. Kind of sobering....
I suppose what I am asking is if anyone has been on TPN feeding, if they can tell me a bit about it? I am so nervous and feel so lost in all of this and trying hard to keep up a brave face for everyone else but all I really want to do is to curl up in a corner and cry right now. I would really appreciate any advice or shared experiences or support.
Thanks heaps.
CookieCat
I am in my 30s and was diagnosed with Crohn's in my small bowel in January this year after years and years of problems which were put down to psychological reasons, Irritable bowel, and eating disorders. I do have problems with eating, but the docs now recognize it has a lot to do with food intolerance issues which became a coping mechanism later on.
Anyway, reason I am feeling desperate enough to post today is that I saw my gastroentrologist this morning and she was so concerned about the weight I have lost over the past year and my poor nutrition that she wants to admit me to hospital to start me on TPN feeding. Once a Pic line (I think this is right?) is put in, and I am on a routine, they will send me back home to continue...
Apparently it gives the bowel a chance to rest and recover, as well as being the easiest way to absorb food. Although I was told this about elemental drinks, but my vitamin levels are still really low - especially D, E, and B Vits, along with potassium from all the vomiting and diahorrea.
If they can organize a bed for me, I'm getting admitted on Tuesday. I am feeling terrified to say the least! Also, I know it is stupid but I am worried about the weight gain. I know I need to put on a bit of weight, but I am kinda used to being thin and don't want the weight too go on too fast. I really wanted to say no to the doc's suggestion, but she said that if I needed surgery for my Crohns (which was a definite possibility with the ways things are going) I needed to be in better shape otherwise there was a good chance I might not survive. Kind of sobering....
I suppose what I am asking is if anyone has been on TPN feeding, if they can tell me a bit about it? I am so nervous and feel so lost in all of this and trying hard to keep up a brave face for everyone else but all I really want to do is to curl up in a corner and cry right now. I would really appreciate any advice or shared experiences or support.
Thanks heaps.
CookieCat