A quick background on me...
I had what I thought to be a stomach flu back in Feb of this year and went to my local clinic. They sent me to the ER because of bleeding. I was told that I was anemic and they thought it was just some sort of infection but I was admitted to the hospital for a few days. Met with a GI on the last day who wanted a follow up.
My symptoms continued and I followed up with my GI who diagnosed me with moderate to severe Crohn's in March. I was put on Lialda and Omeprazole but did not improve. I had weighed over 140lbs prior to this disease and now I only weigh about 105. My feet and ankles also swell up with fluid in the evenings which my GI attributed to a protein deficiency or just plain malnutrition due to all my my trips to the bathroom.
He prescribed me Lomotil to take 3 times a day and told me to double my Liada dose but still I had some days where I was going to the bathroom between 8-15 times (sometimes they were just what I call "extensions" of the previous trip...) but surprisingly the number started to drastically reduce just days before my 3rd Remicade infusion.
I had my 3rd infusion on May 15th and I'm not going to the bathroom as often. I also had control issues which are a lot better now.
The thing that worries me is... I'm not running to the bathroom anymore. Sometimes I feel gas moving around inside me for hours but nothing happens. I also notice I can get pretty bloated looking and that makes me worried even though I have no pain.
Why does feeling better worry me? I'm afraid it's just false hope... I'm turning 24 on June 27th and I just want to feel normal for my birthday.
Anyway, I don't know what I'm looking for by posting here but I just wanted to share with people who understand what I'm going through and can maybe offer some opinion. Thanks.
I had what I thought to be a stomach flu back in Feb of this year and went to my local clinic. They sent me to the ER because of bleeding. I was told that I was anemic and they thought it was just some sort of infection but I was admitted to the hospital for a few days. Met with a GI on the last day who wanted a follow up.
My symptoms continued and I followed up with my GI who diagnosed me with moderate to severe Crohn's in March. I was put on Lialda and Omeprazole but did not improve. I had weighed over 140lbs prior to this disease and now I only weigh about 105. My feet and ankles also swell up with fluid in the evenings which my GI attributed to a protein deficiency or just plain malnutrition due to all my my trips to the bathroom.
He prescribed me Lomotil to take 3 times a day and told me to double my Liada dose but still I had some days where I was going to the bathroom between 8-15 times (sometimes they were just what I call "extensions" of the previous trip...) but surprisingly the number started to drastically reduce just days before my 3rd Remicade infusion.
I had my 3rd infusion on May 15th and I'm not going to the bathroom as often. I also had control issues which are a lot better now.
The thing that worries me is... I'm not running to the bathroom anymore. Sometimes I feel gas moving around inside me for hours but nothing happens. I also notice I can get pretty bloated looking and that makes me worried even though I have no pain.
Why does feeling better worry me? I'm afraid it's just false hope... I'm turning 24 on June 27th and I just want to feel normal for my birthday.
Anyway, I don't know what I'm looking for by posting here but I just wanted to share with people who understand what I'm going through and can maybe offer some opinion. Thanks.
