New Here

[parache81]

Hello,

I was diagnosed with Chrons Disease last week, after a ct scan of abdomen and pelvis. I must say I was relieved to know what was happening to me, but not thrilled to have this. My doctor started me on pred. I'mnot to happy about as I have been reading all the side effects. I am 27 years old, mother, wife and have a full time job. Not sure how I will deal with all of this.

 

[D Bergy]

Welcome to the club where no one wants to be a member and yet we are glad to be a member. Sounds like an oxymoron, but both statements are true.

I think we all have similar reactions. I was relieved to know what I had and not so thrilled when I found out how difficult it can be to treat.

On the other hands it is virtually impossible to treat an unknown disease, so I guess over all it is better to know.

Just take it one day at a time and learn all you can about the disease. Feel free to post here for any reason you may have. Many here have a lifetime of experience. It is not the end of the world, but it is an adjustment.

Best Regards

Dan

 

[jed]

hiyo parache!

welcome to the forums. its certainly not the best thing to be diagnosed with, but its also not the end of the world.

one of the more annoying traits of Crohns is that everyone seems to get it, and react to it, a little differently from everyone else.

there is a ton of knowledge all around these forums waiting for you, but if you dont feel like searching then just ask away.

and ask anything, this is a forum of people that have spent a lot of time in the toilet, nothing is taboo here. if you dont feel comforatble asking in public, then PM your question to a member and they should be able to help you.

great little community we have here.

Jed.

 

[parache81]

I would like to know what to eat. I am basically just eating crackers, cheese, soup and mashed potatoes.

Are fruits out of the ??? Please give me some ideas on what to eat.

 

[jed]

high fibres are a big no no for many members. so are extremely spicey things
as are fizzy drinks and to much alcohol.

but again, everyone can tolerate things differently.

i get all my vitamins from sports drinks, health shakes and the like. vege's are pretty much gone for me.

I'm fine with all meats except roast lamb.

fish is also great with my belly.


keep a food/poop journel, that may help give you a better idea (and memory) on what you can eat in the future.

 

[parache81]

I had fish and mashed potatoes for dinner and I've been pretty good. I was craving some ice cream and had some and no pain so far.

I see my Doctor tomorrow, hopefully we can discuss the disease and try to find a treatment for me so I can go on with my regular life and back to work,

 

[jed]

ice cream should be fine so will a lot of things you already enjoy.

but at times, you may neeed to goto a really bland liquid diet to give your tummy a rest.

and whilst doctors are good, personally i dont think they're as good as some of the people here that live with the disease every day when it come to diet info.

not saying they're wrong, just that you may not get all the info you need.

think we have a few NY people here, maybe you share the same docs

 

[monroe]

hi parache, like you i was diagnosed last week. this is a great place to come to make new friends, get advice, and get things off your chest. i started writing down all the foods that worsen my symptoms, so that way i know i should usually avoid those foods. i tryed eating foods that are easily digested and they are a lot softer on my tummy i also try to stay away from fried foods, but you might not have that problem! good luck and welcome

 

[jed]

i also try to stay away from fried foods,

ha, i am not giving up my schnitzels!
(but it is a good point monroe makes)

 

[CookieCat]

Hi Parache,

Welcome from another newbie. Know totally how you feel about not feeling glad you have got crohns but glad to have a diagnosis!

Need to go rest for now, but wanted to say hello to you first.

Cookie

P.S. I am having a constant battle with my Mom trying to get her to understand that I really don't need fried foods and lots of oil, even though I need to put on weight... she just doesn't get it!

 

[GoJohnnyGo]

As others have suggested, jotting down a daily food diary is something you might consider.

I've found it helps in diet planning. You start to see patterns develop after a while. You can also track your poop consistency.

I have an iPhone with a little app called MyDiary, which I then email myself the entries. Of course, notepad and pen works just as well.

 

[kromom1]

Welcome to the forum, Parache! I understand your feelings as I am also a mother, wife, and employed full-time (there are many of us here!). It can be quite overwhelming trying to cope with all of that and a new, scary diagnosis. Like everyone else has said, arm yourself with as much information as possible, and this is a great place to get it first-hand. While the side effects of prednisone can be scary, I consider it a miracle drug. Every time I have been on it, it has settled my symptoms almost immediately. It's not a good long-term solution because of the side effects, however, so you will definitely want to explore all the options with your doctor. Good luck to you and hang in there!

 

[Nancy Lee]

Welcome Parache

Hello Parache and welcome to the Forum.

I'm sure you will be given a host of variables on what to eat
and what not to eat here....but, I would ask your doctor to give you a food chart,
if he has one. Also, when I was diagnosed I saw a nutritionist who was
quite helpful. Basically it's trial and error. What one person can eat
the next is unable to.
So, best to check it out with a health care professional.

In the meantime, nutrition drinks such as Ensure do help.

It is good to finally put a name to the symptoms you have been having.
I know I felt better being able to know what was making me so sick and
then saying..'okay, I have Crohn's, let's deal with it'.

You will find friendly people here to support you
so please come back, read, ask questions, or just vent if you want.

Again.....Welcome,
Healing Hugs, Nancy

 

[parache81]

Just got back from the doctor's office. It looks like I have been improving with the prednisone. I have been taking 40 mg a day, he will wean me off of them after a month.

I've been able to eat today and have not gotten lots of pain. I have to go for blood work tomorrow morning.

Thanks for all you comforting words and advise.

 

[kromom1]

That's great Parache. Hope you continue to improve! Let us know how you are getting along.

Lisa

 

[catfud]

Hello and welcome.

I have just been put on another course of pred. myself and the side effects can be a very bumpy ride! There are lots of people here to give you great support in enduring these side effects

 

[parache81]

I've been on pred. for a week now. I was sleeping very well up until last night. It is a horrible feeling. Everyone sleeping but me. I can't take it and I have been on a horrible mood today.

The pain still comes and goes but it more manageble now.

 

[MINI Cooper]

Hello!
I am also on Prednisone. Been on it for 2 weeks now with no real side effects yet.
But then again, my big problem is absorption. I also researched the side effects
and scared myself. But sometimes you have to weigh out the benefits to the risks.
Hope you start feeling better soon!

 

[teeny5]

Welcome to the forum Parache!

I felt relieved at first when I got my diagnosis...finally some answers as to why I felt so awful.

Then, I began learning more and more about the disease and realized it was incurable. That is when I went through an emotional time with it.....just kinda asking "why me" Since then I have come to grips with the whole thing. Still new to the disease, but getting a handle on things (atleast the best you can I guess). The meds don't bother me as long as they make me feel better.

Glad to hear you are feeling better. Keep us updated.

 

[catfud]

I've been on pred. for a week now. I was sleeping very well up until last night. It is a horrible feeling. Everyone sleeping but me. I can't take it and I have been on a horrible mood today.

My pred currently keeps me up till 2 am where I finally fall asleep to wake me up at 5am every morning without fail. By the time I start to drift off to sleep again my alarm goes off and it is time for work. It is very frustrating and when you are feeling emotionally and physically delicate the last thing you need is to not be able to sleep! Hang on in there.

 

[mikeinmaine]

I have such a love/hate relationship with the prednisone. It works so well on the inflammation but the insomnia kills me. There have been a few nights where I simply did not sleep and then had to go into work in a total fog. I just started tapering the dose and I'm keeping my fingers crossed I can get off it ASAP.