Hi all, My name is Ron and I have had Crohn's for about 20 years now.
It all started while I was staying with my Dad and one night I was in such pain I could not move. was rush to the Hospital and then to the operation room ( lol ). Woke up the next morning and was told I had Crohn's, ( OK ) what's that ? I asked. I was told and was also informed that part of my small intestine was removed. OK , again ( why ) The Doctor told me all about Crohn's ( Doctor was a specialist ). Was put on Pentasa and work until 2010. I came home from work on a Friday and by Saturday morning ( 12 Hours later ) I was once again in the Hospital for 10 days to get the inflammation down, and then another operation and some more of the small intestine taken out, ( now 3 ft. ) and a little of the large. I have been on Humira , Remicade , and other sorts of Meds that I can't spell ( sorry ). I now have been on Entyvio for 2 years ( infusion every 8 weeks ) I started having real bad cramps and the normal discomfort with Crohn's early this year. Had a colonoscopy 3 weeks ago to see what's was going. Went to my Doctor on 5/25/2016 and was told that from the 2 operations the scar tissue has built up to where the small intestine is closing off, ( should be 1" around and mine is the size of the eraser on a pencil ) , Cool I said to myself , now what ?
Doctor up my Entyvio to every 4 weeks to get the Inflammation down, I forgot to mention that I was told it did not look good in there... Once the Inflammation is down , then I go in for the operation of the small intestine,
And with that said I was told that there is not enough left to put back together........... Now that's my story in a nut shell....
It all started while I was staying with my Dad and one night I was in such pain I could not move. was rush to the Hospital and then to the operation room ( lol ). Woke up the next morning and was told I had Crohn's, ( OK ) what's that ? I asked. I was told and was also informed that part of my small intestine was removed. OK , again ( why ) The Doctor told me all about Crohn's ( Doctor was a specialist ). Was put on Pentasa and work until 2010. I came home from work on a Friday and by Saturday morning ( 12 Hours later ) I was once again in the Hospital for 10 days to get the inflammation down, and then another operation and some more of the small intestine taken out, ( now 3 ft. ) and a little of the large. I have been on Humira , Remicade , and other sorts of Meds that I can't spell ( sorry ). I now have been on Entyvio for 2 years ( infusion every 8 weeks ) I started having real bad cramps and the normal discomfort with Crohn's early this year. Had a colonoscopy 3 weeks ago to see what's was going. Went to my Doctor on 5/25/2016 and was told that from the 2 operations the scar tissue has built up to where the small intestine is closing off, ( should be 1" around and mine is the size of the eraser on a pencil ) , Cool I said to myself , now what ?
Doctor up my Entyvio to every 4 weeks to get the Inflammation down, I forgot to mention that I was told it did not look good in there... Once the Inflammation is down , then I go in for the operation of the small intestine,
And with that said I was told that there is not enough left to put back together........... Now that's my story in a nut shell....
