Well Hello,
I have been lurking here long enough that I thought I should finally join. Of all the forums I have looked at, this seems to be he most active and current.
I suspect I have had Crohn's for a long time. I remember having lower right quadrant pain since highschool. I went many years suffering from pain so bad I though I was having appendicitis. I had my gallbladder out in 96. The pain never really stopped, so I was treated for H. Pylori(bug that causes ulcers). Still had issues, so was diagnosed with IBS. THyroid quit in there sometime as well.
Went many years dealing with almost chronic constipation. About 9 years ago, I started having pain and vomiting episodes that would last all night. They were far enough apart that I didn't really connect them- just thought I must have had the flu or food poisoning.
In 2009, I developed a dermoid cyst. The pain and episodes increased in frequency and intensity. I ended up in the hospital having an emergency hysterectomy. It was a long surgery. I had many complications - loss of blood, etc.
Turns out I was having repetitive partial small obstructions because of the bowel being adhered to my uterus and wrapped around the cyst. Digestive track never really settled down and I was unable to eat very much at all. For the first time, I had the awful diarrhea that goes along with this. I lost 50+ lbs from Aug 2009 to Jan 2010. I knew I had not been able to loose the weight for some reason before this!! I can't imagine how much worse off I would have been had I not been carrying around an extra 100 pds.
I had a colonoscopy and a biopsy which confirmed Crohn's in the terminal ileum. I was put on Pentasa 4000mg.
The repetitive partial small bowel obstructions continued and I was hospitalized for them many times. I convinced the GI to give me pain meds to have at home as getting treated in time at an ER was awful. I am in almost constant abdominal pain. I tend towards the more constipated side of Crohn's.
Recently things have gotten worse, as I have developed all over body pain. Its so bad that I can't walk without each step hurting. I managed to get two weeks off for medical leave to see if I could rest - I am not sleeping well either - night sweats and pain.
Stress in my life has been bad for about 7 years(bad divorce and kid issues) and I can feel myself finally running out of reserves and my health declining.
So I am here to see if I can find useful advice, tips and support. The Gi has only given meds and "see if you can find out what foods bother you". There doesn't seem to be any more help than that. My guy is very supportive, my sister has it too, and my mom thinks I should not let it get the better of me and just get on with life no matter how much pain I am in.
Hoping to meet people and make contacts with others.
I have been lurking here long enough that I thought I should finally join. Of all the forums I have looked at, this seems to be he most active and current.
I suspect I have had Crohn's for a long time. I remember having lower right quadrant pain since highschool. I went many years suffering from pain so bad I though I was having appendicitis. I had my gallbladder out in 96. The pain never really stopped, so I was treated for H. Pylori(bug that causes ulcers). Still had issues, so was diagnosed with IBS. THyroid quit in there sometime as well.
Went many years dealing with almost chronic constipation. About 9 years ago, I started having pain and vomiting episodes that would last all night. They were far enough apart that I didn't really connect them- just thought I must have had the flu or food poisoning.
In 2009, I developed a dermoid cyst. The pain and episodes increased in frequency and intensity. I ended up in the hospital having an emergency hysterectomy. It was a long surgery. I had many complications - loss of blood, etc.
Turns out I was having repetitive partial small obstructions because of the bowel being adhered to my uterus and wrapped around the cyst. Digestive track never really settled down and I was unable to eat very much at all. For the first time, I had the awful diarrhea that goes along with this. I lost 50+ lbs from Aug 2009 to Jan 2010. I knew I had not been able to loose the weight for some reason before this!! I can't imagine how much worse off I would have been had I not been carrying around an extra 100 pds.
I had a colonoscopy and a biopsy which confirmed Crohn's in the terminal ileum. I was put on Pentasa 4000mg.
The repetitive partial small bowel obstructions continued and I was hospitalized for them many times. I convinced the GI to give me pain meds to have at home as getting treated in time at an ER was awful. I am in almost constant abdominal pain. I tend towards the more constipated side of Crohn's.
Recently things have gotten worse, as I have developed all over body pain. Its so bad that I can't walk without each step hurting. I managed to get two weeks off for medical leave to see if I could rest - I am not sleeping well either - night sweats and pain.
Stress in my life has been bad for about 7 years(bad divorce and kid issues) and I can feel myself finally running out of reserves and my health declining.
So I am here to see if I can find useful advice, tips and support. The Gi has only given meds and "see if you can find out what foods bother you". There doesn't seem to be any more help than that. My guy is very supportive, my sister has it too, and my mom thinks I should not let it get the better of me and just get on with life no matter how much pain I am in.
Hoping to meet people and make contacts with others.
Glad you found us! Welcome to the forum! 
