new member to forum...old one to UC/Crohns'....
Just joined the forum yesterday.....
I was diagnosed wtih UC when I was @7 years old - after my Mom took me to multiple Dr's to try to figure out what was wrong with me.....been on many different treatments, azufadine, prednisone, 6MP, Asacol, etc etc etc.....each time the periods of remission would be shorter and shorter.....got to be that I would deal with pain pretty much every day, although I got pretty good at hiding it from family.....
My old GI Dr used to scold me when I would ~finally~ go see hime - because it was usually a direct trip to Hosp. admitting from his office.....well, I had a LIFE!.....I wasn't going to let something like this slow me down.....I have worked in all different kinds of jobs - from an auto parts driver (got to learn where all the CLEAN bathrooms were on my routes!).......worked on horse farms, was a Fire/Police/EMS dispatcher, and also a Volunteer firefighter.......and then some.....
Back around 2003 I started developing fistuals - omg were they PAINFUL!.....after multiple Dr visits, surgical consults etc I decided to live with them (for now).....had a flare in spring of 2004.......in the fall of 2004 I found out I was pregnant, and had a healthy baby girl March 2005.....another flare summer 2005, then started Remicade Nov 2005.....what a difference! I went from always trying to keep my weight up (to the point co-workers thought I was anorexic!) to trying to keep weight OFF due to being 'healthy'.....I am on a very low dose since then, every 7-8 weeks.....although lately I'm not sure if things are trying to flare a bit or now - have my next Remicade appt April 26th. I did just get over strep and a course of penicillian .......
I haven't really looked on line too much for support groups etc - I'm one of those people who suffers in silence mroe often than not....
Lisa
Just joined the forum yesterday.....
I was diagnosed wtih UC when I was @7 years old - after my Mom took me to multiple Dr's to try to figure out what was wrong with me.....been on many different treatments, azufadine, prednisone, 6MP, Asacol, etc etc etc.....each time the periods of remission would be shorter and shorter.....got to be that I would deal with pain pretty much every day, although I got pretty good at hiding it from family.....
My old GI Dr used to scold me when I would ~finally~ go see hime - because it was usually a direct trip to Hosp. admitting from his office.....well, I had a LIFE!.....I wasn't going to let something like this slow me down.....I have worked in all different kinds of jobs - from an auto parts driver (got to learn where all the CLEAN bathrooms were on my routes!).......worked on horse farms, was a Fire/Police/EMS dispatcher, and also a Volunteer firefighter.......and then some.....
Back around 2003 I started developing fistuals - omg were they PAINFUL!.....after multiple Dr visits, surgical consults etc I decided to live with them (for now).....had a flare in spring of 2004.......in the fall of 2004 I found out I was pregnant, and had a healthy baby girl March 2005.....another flare summer 2005, then started Remicade Nov 2005.....what a difference! I went from always trying to keep my weight up (to the point co-workers thought I was anorexic!) to trying to keep weight OFF due to being 'healthy'.....I am on a very low dose since then, every 7-8 weeks.....although lately I'm not sure if things are trying to flare a bit or now - have my next Remicade appt April 26th. I did just get over strep and a course of penicillian .......
I haven't really looked on line too much for support groups etc - I'm one of those people who suffers in silence mroe often than not....
Lisa
