NEW MEMBER

[dpc]

I've just joined this forum, despite having been diagnosed with cd for 30+ years.

Had surgery 11 years ago, right hemicolectomy, + removal of terminal ileum.

Was very anaemic prior to surgery, that's corrected now, but the tiredness and fatigue continue. I've had b12 injections in the past, but my levels went sky high so not had for at least a couple of years.
Have regular episodes of diarrhoea (daily) and I'm sure that doesn't help with the fatigue.quality of life?
I wonder how many others find fatigue really affects their lifestyle/
Currently on Pentasa (Mesalazine) + Cholestyramine.

I live in the uk - I notice that a lot of the contributors to the forum live in the US, is this forum mainly for us residents?

 

[deb123]

Hi,
I'm from Hampshire in the UK. Like you i have had a hemicolectomy removal of terminal ileum 7 years ago - then had a full remission.

Im on Colestyramine, B12, Vitamin D3, and have just been diagnosed with a fistula, so i am starting Remicade soon.

This forum is wonderful, lots of very knowledgeable, experienced people who are always there for advice and support.

Welcome :ysmile:

 

[scottsma]

Hi and welcome.I can't give you any advice on your C.D as I have U.C but someone will get to you soon with help that you need I'm sure.I also live in the U.K and there is no discrimination at all.We all muck in together.It's THE BEST Crohns and U.C. forum and you'll get lots of support,so welcome once more and I hope you feel better soon.:thumright::soledance:

 

[Astra]

Hiya dpc
and welcome

I'm hoping to go to Cardiff soon!
We're all scattered from all over the World on this forum, you'll make loads of Crohnie friends.
Have you ever had an iron infusion?
I had one 6 weeks ago, the relief was immediate, but I'm starting to feel tired again, just waiting on blood work to come through.
Enjoy the forum, lotsa luv
Joan xxx

 

[Jennifer]

Yep, we're all over the map (add yourself if you like, click on the link, directions are in the second post under the link) http://www.crohnsforum.com/showthread.php?t=20514.

Welcome to the forum!

If your fatigue can't be explained from current meds to being low or deficient in any nutrients (have all your levels checked) then the Crohn's itself may likely be the cause. Might be time for a med check if the current ones aren't quite doing their job. What has your GI said about your fatigue?