New Member

[Salad_Shooter]

Diagnosed with CD 36 years ago. I have exhausted all medications known to man for my CD, and have been sent to Palliative Care. Currently only on pain meds and muscle relaxers.

-Severe fistualizing Crohn's Disease...recently diagnosed as "End Stage Crohn's Disease".
-Ileostomy
-MS-like demyelinating disease probably secondary to Humira.
-Systemic Lupus
-Sjogren's
-(+) titers for Scleroderma
-COPD
-RA
-Spinal stenosis of cervical spine with spinal cord flattening
-Spinal stenosis of lumbar spine
-Intra-abdominal abscesses
-multiple abdominal hernias

 

[ronroush7]

Welcome to this forum. I am sorry that you have this disease. Thus is a supportive group. Feel free to come here for questions or support.

 

[D Bergy]

What exactly does "end stage Crohns disease" mean? I am almost afraid to ask.

Dan

 

[Salad_Shooter]

What exactly does "end stage Crohns disease" mean? I am almost afraid to ask.

Dan

It means there are no more meds available to me. The best they can do now is to keep me as comfortable as possible. I had never heard of it either until now.

 

[fuzzy butterfly]

Oh bummer!! Welcome .So sorry you have exhausted all meds. Have you had any surgery ?. Take care n best wishes to you

 

[Salad_Shooter]

Yes, I have had many surgeries ranging from I&D of a rectal abscess to an ileostomy, and everything in between. Many many resections. I am no longer a surgical candidate because of my cardiopulmonary status.

 

[fuzzy butterfly]

Aw you have and are going through the mill. I hope they can keep you very comfortable indeed , you sure deserve some ease of pain. That is quite a cv of troubles you have dealt with over the years. My heart goes out to you . Please keep us updated on how you are doing. Even have a rant n rave if you feel like it. We are here for you .. best wishes hugs

 

[Bamba]

Really sorry to hear your story & I wish you all the best, I found this forum a great source of info since I joined recently & I also count myself quite lucky at the moment as my CD seems to be quite mild in comparision to others here but i do feel for all

 

[Salad_Shooter]

Thank you all very much. I am glad I have found this site. I do have a lot going on. It's been pretty bad lately. R/V fistula finally diagnosed after several months of excruciating pain and blistering from digestive juices. I have been happy I've had pain meds to take. Add in addition, too too many autoimmune disorders to deal with. So yeah, I'm glad I'm here.

Thanks again.

 

[fuzzy butterfly]

Your welcome☺ glad you found us and joined our forum. They are a great crew here. Best wishes and keep as well as you can