Hello everyone! I recently stumbled across this forum and thought I would post my story and see if this sounds like Crohn's.
For as long as I can remember, I have been suffering from severe abdominal pain. I was told 'oh you are lactose intolerant' and 'Oh, it's just IBS' but was never referred to a gastroenterologist.
I went a good year or so feeling relatively normal. About a year and a half ago I started getting ill again. I have diarrhea daily, especially since I had my gall bladder removed last November. I can count on one hand the amount of normal stools I have had in the past year. I also have gas daily as well...I basically never feel good.
About once a week I will have an extremely severe attack. The pain is always down low. The cramping is so severe that I double over. I shake, sweat, cry..it is unbearable. I always have diarrhea with these attacks too...but I never pass blood. I am quite nauseous afterwards and my lower abdomen is very soar, esp to the touch. I will have stomach aches everytime I eat for the next few days as well. I get quite a few ulcers in my mouth, usually on my inner lip. They come and go and are not excruciatingly painful.
I finally saw a GI doctor and had a colonoscopy, stool test, and blood test 2 weeks ago. He did not say much afterwards except I had nodules on my ileum, but to make a follow up appt with him.. He did take biopsies of these nodules. For a week after my colonoscopy I was MISERABLE...very, very sick.
The tech from his office called to tell me the biopsy was 'negative'. When I asked negative for what, she did not know, LOL. What ARE nodules anyway?
My follow up appt. is Monday. I do not lose weight, do most people with Crohn's? Granted, I was on an anti depressant that did cause me to GAIN weight.
I did not suspect Crohn's until he mentioned my ileum. Do other gastrointestinal disorders cause ileal problems?
Thanks so much for reading!
For as long as I can remember, I have been suffering from severe abdominal pain. I was told 'oh you are lactose intolerant' and 'Oh, it's just IBS' but was never referred to a gastroenterologist.
I went a good year or so feeling relatively normal. About a year and a half ago I started getting ill again. I have diarrhea daily, especially since I had my gall bladder removed last November. I can count on one hand the amount of normal stools I have had in the past year. I also have gas daily as well...I basically never feel good.
About once a week I will have an extremely severe attack. The pain is always down low. The cramping is so severe that I double over. I shake, sweat, cry..it is unbearable. I always have diarrhea with these attacks too...but I never pass blood. I am quite nauseous afterwards and my lower abdomen is very soar, esp to the touch. I will have stomach aches everytime I eat for the next few days as well. I get quite a few ulcers in my mouth, usually on my inner lip. They come and go and are not excruciatingly painful.
I finally saw a GI doctor and had a colonoscopy, stool test, and blood test 2 weeks ago. He did not say much afterwards except I had nodules on my ileum, but to make a follow up appt with him.. He did take biopsies of these nodules. For a week after my colonoscopy I was MISERABLE...very, very sick.
The tech from his office called to tell me the biopsy was 'negative'. When I asked negative for what, she did not know, LOL. What ARE nodules anyway?
My follow up appt. is Monday. I do not lose weight, do most people with Crohn's? Granted, I was on an anti depressant that did cause me to GAIN weight.
I did not suspect Crohn's until he mentioned my ileum. Do other gastrointestinal disorders cause ileal problems?
Thanks so much for reading!
