Hello everyone,
I have recently came across this forum and it seems that this could be a good place to get some help and support. I'll start this by giving you all a little background of my Crohn's disease.
I am a 22 year old male who was diagnosed with Crohn's in October 2009. I started having major problems in August 2008 with really bad abdo pain, vomiting blood, bloody stools with mucous and having to go around 10 times a day. When I first went to my GP I was told that I just had a stomach bug and it would pass. My symptoms seemed to clear for a while but continued to come back periodically and so I was sent to the heamatology department at my local hospital for regular blood tests and got a colonoscopy booked in.
After I had the colonoscopy it was confirmed that I had Crohn's so I was given prednisolone steroids and put onto 4g of messalazine. This seemed to work at first until I came off the steroids and I had another flare. I was kept on the messalazine and given azathioprine which my body didnt tolerate and made me vomit blood within half an hour of taking the tablets and so I was then told to try 6-MP which did the same. Moved onto Methotrexate which made me feel much better for about a year till I had a major flare up which meant I needed a resection in April 2011. After having my terminal illeum removed I thought I would be symptom free for quite a while taking the reducing dose of steroids and 4g of messalazine but I was wrong. A few months after surgery I was back in hospital again with really bad abdo pain and increased loose bowel movements. Again it was steroids and messalazine to try and keep things under control.
I had another flare up 3 months ago and was put onto a different steroid Budesonide along with my 4g of messalazine. This worked at the higher dose of steroid but not when I reduced it even by 1 tablet started getting the pains and diarrhoea back. I was then put back onto the 6-MP as my GI had discovered that we didnt leave enough time between the failed attempt at azathioprine and 6-MP last time and things seemed to be going well for 3 weeks until and abscess started forming at my tail end a week before I was due in for scopes.
Spent 2 weeks in hospital again just there after discovering the abscess and had my scopes which revealed I know have crohn's in both my large and small bowel. I also have a number or ulcers throughout my whole bowel. It was decided that I should continue with my 25mg of 6-MP, 4g Messalazine and 40mg reducing Prednisolone (this is because I was giving IV Hydrocortisone in hospital) and also try using Modulen IBD. So now my diet consists of solely Modulen for 8 weeks to try and help my bowel heal and get me into remission of my Crohn's. I am almost 2 weeks into this diet taking 1500ml of modulen a day to get 2250 calories and can only drink water or weak black tea on top. It seems to be working as I am no longer experiencing any pain and my bowel movements are what would be considered normal. I'm no longer going 10+ times a day only once or twice.
Has anyone else had any experience of a sole 8 week period of Modulen? I havent been able to find out much information about it. Anything I have found has been the experience of younger people or people who use it as a supplement. Seen some stories of people not tolerating it or disliking it but I actually quite enjoy it.
Thanks for reading through this wall of text if you made it this far!
I have recently came across this forum and it seems that this could be a good place to get some help and support. I'll start this by giving you all a little background of my Crohn's disease.
I am a 22 year old male who was diagnosed with Crohn's in October 2009. I started having major problems in August 2008 with really bad abdo pain, vomiting blood, bloody stools with mucous and having to go around 10 times a day. When I first went to my GP I was told that I just had a stomach bug and it would pass. My symptoms seemed to clear for a while but continued to come back periodically and so I was sent to the heamatology department at my local hospital for regular blood tests and got a colonoscopy booked in.
After I had the colonoscopy it was confirmed that I had Crohn's so I was given prednisolone steroids and put onto 4g of messalazine. This seemed to work at first until I came off the steroids and I had another flare. I was kept on the messalazine and given azathioprine which my body didnt tolerate and made me vomit blood within half an hour of taking the tablets and so I was then told to try 6-MP which did the same. Moved onto Methotrexate which made me feel much better for about a year till I had a major flare up which meant I needed a resection in April 2011. After having my terminal illeum removed I thought I would be symptom free for quite a while taking the reducing dose of steroids and 4g of messalazine but I was wrong. A few months after surgery I was back in hospital again with really bad abdo pain and increased loose bowel movements. Again it was steroids and messalazine to try and keep things under control.
I had another flare up 3 months ago and was put onto a different steroid Budesonide along with my 4g of messalazine. This worked at the higher dose of steroid but not when I reduced it even by 1 tablet started getting the pains and diarrhoea back. I was then put back onto the 6-MP as my GI had discovered that we didnt leave enough time between the failed attempt at azathioprine and 6-MP last time and things seemed to be going well for 3 weeks until and abscess started forming at my tail end a week before I was due in for scopes.
Spent 2 weeks in hospital again just there after discovering the abscess and had my scopes which revealed I know have crohn's in both my large and small bowel. I also have a number or ulcers throughout my whole bowel. It was decided that I should continue with my 25mg of 6-MP, 4g Messalazine and 40mg reducing Prednisolone (this is because I was giving IV Hydrocortisone in hospital) and also try using Modulen IBD. So now my diet consists of solely Modulen for 8 weeks to try and help my bowel heal and get me into remission of my Crohn's. I am almost 2 weeks into this diet taking 1500ml of modulen a day to get 2250 calories and can only drink water or weak black tea on top. It seems to be working as I am no longer experiencing any pain and my bowel movements are what would be considered normal. I'm no longer going 10+ times a day only once or twice.
Has anyone else had any experience of a sole 8 week period of Modulen? I havent been able to find out much information about it. Anything I have found has been the experience of younger people or people who use it as a supplement. Seen some stories of people not tolerating it or disliking it but I actually quite enjoy it.
Thanks for reading through this wall of text if you made it this far!
