xX_LittleMissValentine_Xx
Moderator
Hello my name is Holly and I have just turned 18. I live in the UK and i am hoping to start university in september, to do a degree in Nutrition.
I started getting my first symptoms of Crohn's Disease in about Oct 07 when i was 16. When i first went to the doctors the pain wasn't that bad, and the advice i was first given was 'eat more lunch'.
I started to get worse and worse, i was loosing weight, whimpering in pain during the night, getting night sweats, diorreah (sometimes with fresh red blood in it), The doctors started to take me seriously and a blood test showed that i was anaemic. However they still didnt know what to do and i didnt have any answers all through Christmas. The doctor sent me for an ultra sound when i told her about the night sweats saying it could be my appendix (though from the questions she was asking i actualy think she thought i had an eptopic pregnancy that i was hiding).
At this point even tho im sure u can tell i was quite bad (probably at my worst) I didnt actualy feel to bad. I think i was just coping with the constant pain that i had. I told the doctor that i couldnt go to the ultasound because i had to go to college!
At the begining of Jan i went to see the specialist who immediately suggested Crohn's. I had a Barium follow though, a biopsy, a stool test and countless blood tests which confirmed the diagnosis. I was finaly diagnosed in March 08.
I was started on pred, pantessa and iron supplements. I hated taking all the meds and on the first day it was too much for my body (at this time i was 5 and 1/2 stone) and i was sick.
I started to feel better and me again! like i said before i didnt realise how bad i was untill i started feeling better agian. my face got very puffed from the pred!
I felt so much better when i eventualy came off the pred that i stopped taking my meds. Bad i know but we all do it ( i take health psychology!) I started to get worse again (suprise suprise!) and I got started on Azathioprine. It was at this time that i actualy started to take in my diagnosis. In march i didnt care what i had i just wanted to start feeling better, but now that i was starting this medicine with so many scary risks i started to take it in and it felt horible that i had so much to deal with at such a young age. The physical pain is easier to deal with than the psychological pain of dealing with a cronic illness. Do other people feel this way too?
So anyway now its about a year after my diagnosis and i have been in remision for about 10 months now At the moment i am scared of a relapse because i am very stressed about my exams and i am starting to get that over active stomach feeling again :S
How do other people deal with stress?? I am so scared of a relapse because last time my doctor was talking about an operationa and i rly dnt want that again
I am so pleased i found this place as i dnt know anyone personaly who have CD and i feel that people around me just dnt understand it. When i mention it they say 'but your better now' they dnt realise i will never be better and that i live off medication.
Thank you so much for reading my story.
Best wishes to all of u
Holly
xxxxx
I started getting my first symptoms of Crohn's Disease in about Oct 07 when i was 16. When i first went to the doctors the pain wasn't that bad, and the advice i was first given was 'eat more lunch'.
I started to get worse and worse, i was loosing weight, whimpering in pain during the night, getting night sweats, diorreah (sometimes with fresh red blood in it), The doctors started to take me seriously and a blood test showed that i was anaemic. However they still didnt know what to do and i didnt have any answers all through Christmas. The doctor sent me for an ultra sound when i told her about the night sweats saying it could be my appendix (though from the questions she was asking i actualy think she thought i had an eptopic pregnancy that i was hiding).
At this point even tho im sure u can tell i was quite bad (probably at my worst) I didnt actualy feel to bad. I think i was just coping with the constant pain that i had. I told the doctor that i couldnt go to the ultasound because i had to go to college!
At the begining of Jan i went to see the specialist who immediately suggested Crohn's. I had a Barium follow though, a biopsy, a stool test and countless blood tests which confirmed the diagnosis. I was finaly diagnosed in March 08.
I was started on pred, pantessa and iron supplements. I hated taking all the meds and on the first day it was too much for my body (at this time i was 5 and 1/2 stone) and i was sick.
I started to feel better and me again! like i said before i didnt realise how bad i was untill i started feeling better agian. my face got very puffed from the pred!
I felt so much better when i eventualy came off the pred that i stopped taking my meds. Bad i know but we all do it ( i take health psychology!) I started to get worse again (suprise suprise!) and I got started on Azathioprine. It was at this time that i actualy started to take in my diagnosis. In march i didnt care what i had i just wanted to start feeling better, but now that i was starting this medicine with so many scary risks i started to take it in and it felt horible that i had so much to deal with at such a young age. The physical pain is easier to deal with than the psychological pain of dealing with a cronic illness. Do other people feel this way too?
So anyway now its about a year after my diagnosis and i have been in remision for about 10 months now
At the moment i am scared of a relapse because i am very stressed about my exams and i am starting to get that over active stomach feeling again :SHow do other people deal with stress?? I am so scared of a relapse because last time my doctor was talking about an operationa and i rly dnt want that again
I am so pleased i found this place as i dnt know anyone personaly who have CD and i feel that people around me just dnt understand it. When i mention it they say 'but your better now' they dnt realise i will never be better and that i live off medication.
Thank you so much for reading my story.
Best wishes to all of u
Holly
xxxxx
